Helping Oneself by Helping Others: A Writing Intervention for Chinese American Cancer Survivors

通过帮助他人来帮助自己：对华裔美国癌症幸存者的写作干预

基本信息

批准号：
10543040
负责人：
William Tsai
金额：
$ 13.05万
依托单位：
NEW YORK UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-09-25 至 2025-12-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10543040
关键词：
Address Area Asia Asian Americans Award Basic Science Breast Cancer survivor Cancer Burden Cancer Patient Cancer Survivor Cancer Survivorship Cause of Death Chinese Chinese American Chinese population Cities Clinic Clinical Collaborations Communities Data Development Disparity Emotions Evidence based intervention Fatigue Feedback Focus Groups Fright Future Goals Immigrant Individual Intervention Intervention Studies Interview Knowledge Linguistics Malignant Neoplasms Mental Depression Mental Health Mentored Research Scientist Development Award Mentors Methods Minority Minority Health Research Modeling New York City Not Hispanic or Latino Oncologist Oncology Outcome Participant Patient Self-Report Personal Satisfaction Population Population Heterogeneity Process Public Health Qualitative Research Quality of life Questionnaires Randomized Randomized, Controlled Trials Reporting Research Resources Stress Stressful Event Testing Training Well in self Work Writing anxiety symptoms cancer diagnosis cancer health disparity cancer risk cancer survival career community based participatory research community organizations coping cultural values depressive symptoms disparity reduction emotion regulation emotional disclosure ethnic minority evidence base experience expressive writing feasibility testing follow-up implementation strategy improved informant member neoplasm resource peer post intervention preference primary outcome programs psychologic psychosocial adjustment recruit retention rate secondary outcome skills social stigma socioeconomics

项目摘要

Project Summary/Abstract The proposed K01 Mentored Research Scientist Development Award will provide the applicant with advanced training and skills to launch an independent research program focused on developing and adapting culturally- sensitive interventions to reduce disparities in the psychological burden of cancer among ethnic minority cancer patients and survivors. This K01 proposal seeks to culturally-adapt and test the feasibility of a writing- based intervention, expressive helping, and its efficacy on psychological well-being, quality of life (QoL), and cancer-related fatigue (CRF) among Chinese American cancer survivors. Expressive helping integrates two distinct areas of research showing that expressive writing (i.e., a writing intervention that facilitates emotional disclosure) and helping others (e.g., support giving) improves psychological well-being among healthy and clinical populations. In expressive helping, participants write about their cancer experiences, disclosing their emotions and providing encouragement and guidance, with the knowledge that their narratives will be shared with and used as a resource for other cancer survivors. Aim 1 of the study is to conduct a qualitative study to culturally adapt the expressive helping intervention for Chinese American cancer survivors. 24 In-depth interviews and 3 focus group discussions with Chinese American cancer survivors and key informants will inform the adaptation of the expressive helping intervention by focusing on material development and recruitment, implementation, and retention strategies. In Aim 2, a mixed methods randomized controlled trial of expressive helping will be conducted to test the feasibility and preliminary efficacy on psychological well-being, QoL, and CRF outcomes (N = 108). Participants will complete follow-up outcome questionnaires at 1-, 3-, and 6-month follow-ups. A subset of the participants (n = 20) will complete post-intervention qualitative interviews to examine how writing may have influenced their psychosocial adjustment. The proposed study is well-suited to the expertise the applicant brings to the project, and well-suited to be conducted in New York City (NYC), as NYC has the largest Chinese population of any city outside of Asia. The K01 award will facilitate the applicant’s transition from conducting basic research on culture and emotion regulation with healthy Asian Americans to intervention research with minority cancer survivors. It will help build his long-term career goal in implementing evidence-based interventions to reduce cancer health disparities in the psychological burden of cancer among minority cancer survivors. As part of this award, the applicant will train in cancer survivorship, community- based participatory research (CBPR), qualitative research, and mixed methods intervention research by conducting the proposed study in collaboration with Drs. Chau Trinh-Shevrin (primary mentor), Qian Lu (co- mentor), Jennifer Leng (co-mentor), Marjorie Kagawa-Singer (consultant), and Annette Stanton (consultant).

项目摘要/摘要拟议的K01指导研究科学家发展奖将为申请人提供高级培训和技能启动独立研究计划，旨在在文化上发展和适应敏感的干预措施，以减少少数民族癌症心理烧伤的分布癌症患者和存活。该K01提案旨在在文化上适应和测试写作的可行性 - 基于干预，表现力的帮助及其对心理健康，生活质量（QOL）的有效性以及华裔美国癌症存活中与癌症相关的疲劳（CRF）。表现力帮助整合两个不同的研究领域表明表达性写作（即一种促进情感的写作干预措施披露）并帮助他人（例如，支持给予）改善了健康和临床人群。在富有表现力的帮助下，参与者写了他们的癌症经历，披露了他们的情绪并提供鼓励和指导，并知道他们的叙述将被分享并用作其他癌症存活的资源。该研究的目的1是进行定性研究在文化上适应了对华裔美国癌症生存的富有帮助干预。 24深度访谈和3个焦点小组讨论与中国癌症的生存和关键线人将通过专注于材料开发和招聘，实施和保留策略。在AIM 2中，混合方法随机对照试验将进行表现力，以测试心理健康的可行性和初步效率， QOL和CRF结果（n = 108）。参与者将在1-，3-和 6个月的随访。参与者的子集（n = 20）将完成干预后定性访谈检查写作如何影响他们的社会心理调整。拟议的研究非常适合为了专业知识，该申请带来了该项目，并且非常适合在纽约市（纽约）进行纽约市是亚洲以外任何城市中最大的中国人口。 K01奖将促进申请人的从对健康的亚裔美国人进行有关文化和情感调节的基础研究的过渡到与少数族裔癌症生存的干预研究。这将有助于建立他的长期职业目标基于证据的干预措施，以减少癌症癌症心理负担的癌症健康分布少数癌症存活。作为该奖项的一部分，申请人将培训癌症生存，社区 - 基于参与研究（CBPR），定性研究和混合方法干预研究与DRS合作进行拟议的研究。 Chau Trinh-shevrin（主要导师），Qian Lu（共同导师），珍妮弗·伦（Jennifer Leng）（联合学），玛乔丽·卡川（Marjorie Kagawa-Singer）（顾问）和安妮特·斯坦顿（Annette Stanton）（顾问）。