Creating recovery: a case-study of how autistic people, families, health professionals & artists in Peru can build inclusive learning through COVID-19

创造康复：关于自闭症患者、家庭、卫生专业人员如何进行的案例研究

• 批准号: AH/V013688/1
• 负责人: Paul Heritage
• 金额: $ 11.87万
• 依托单位: Queen Mary University of London
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FV013688%2F1
• 关键词: Creating; recovery; case; study; how

This case-study interrogates how innovative, theatre-based methodologies can be adapted to enable resilience to and inclusive recovery from Covid-19 by autistic individuals. HERITAGE (PI) will lead a multidisciplinary study that brings together expertise and knowledge from academics (arts/humanities/medicine), arts practitioners including Peruvian theatre company La Plaza and British theatre company Flute Theatre, autistic people and their families, healthcare workers and civil society organisations.While the pandemic continues to impact the lives of people around the globe, 'individuals with autism spectrum disorder are being identified a part of a group at higher risk for complications from Covid-19' (Eshraghi et al., 2020). As stay-at-home and social distancing protocol made access to much needed therapies impossible for many families, Flute developed innovative ways of working online to build the resilience and enable the recovery of autistic young people within the context of COVID-19.Teatro La Plaza is one of Latin America's leading theatre organisations. It recently completed a two-year neurodiverse theatre project (for actors and audiences) that resulted in an internationally acclaimed production of Hamlet and, since itstheatre was closed in March 2020, has reached over 700,000 audience members through online performances and virtual workshops. La Plaza is keen to continue previous work with neurodiverse actors and audiences using Flute's online performance strategies, to inform the development of arts-based strategies for disability-inclusive recovery.For over 20 years Flute has been developing the Hunter Heartbeat Method, a series of sensory drama games based on Shakespearean rhythms and language, created by Kelly Hunter MBE, offering autistic people an opportunity to express themselves (see: https://flutetheatre.co.uk/changing-lives-of-people-with-autism/hunterheartbeatmethod/ https://www.amazon.co.uk/Shakespeares-Heartbeat-Kelly-Hunter/dp/1138016977).This project will investigate how Flute's innovative participatory methodologies can be adapted by Spanish-speaking theatre-makers in Peru, testing how autistic individuals and their families in Latin America can gain access to support from arts organisations throughout the pandemic that reduces social isolation.The methodologies developed by Flute and La Plaza will be disseminated through observation, engagement and discussion with three arts organisations working in Argentina (Crear Vale la Pena), Colombia Fundación Batuta) and Brazil (Redes da Maré) who are part of a regional network on arts and mental health established by HERITAGE (https://peoplespalaceprojects.org.uk/en/projects/building-resilience/). The network will then seek to establish mechanisms for wider dissemination and implementation.Peru's National Plan for People with Autism Spectrum Disorder (2019-2021) describes the four interconnected axes or approaches that will underpin its programme: 1) Human Rights: to guarantee the State's political, legal and ethical responsibility to guarantee the respect, protection and promotion of the rights of people with ASD in order to overcome discriminatory practices and social inequalities that affect them. 2) Equality: to reduce the profound social disadvantage experienced by people with ASD and take into account gender and a range of other socio-economic or cultural factors which produce inequalities. 3) Intercultural: to respect cultural differences as a pillar of a just society means to accept neurodiversity as a part of the human condition. 4) Intergenerational: to create interventions that recognises the generational interdependence within families and the importance of reciprocal relations between different ages. The case-study will explore how each of these approaches can be advanced by establishing community-based partnerships between artists, health care workers, neighbours (i.e. local audiences), families and autistic individuals.

本案例研究探讨了如何采用基于剧场的创新方法，使自闭症患者能够从 Covid-19 中恢复过来并实现包容性康复。 HERITAGE (PI) 将领导一项多学科研究，汇集来自学术界（艺术/人文/医学）、包括秘鲁剧院公司 La Plaza 和英国剧院公司长笛剧院在内的艺术从业者、自闭症患者及其家人、医护人员和民间社会组织的专业知识和知识。 虽然这一流行病继续影响全球人民的生活，但“患有自闭症谱系障碍的个人正在被确定为一个群体的一部分” Covid-19' 并发症的风险更高（Eshraghi 等人，2020）。由于居家隔离和社交疏远协议使许多家庭无法获得急需的治疗，Fute 开发了创新的在线工作方式，以增强自闭症年轻人的适应能力，并使其能够在 COVID-19 的背景下康复。Teatro La Plaza 是拉丁美洲领先的剧院组织之一。它最近完成了一个为期两年的神经多元化戏剧项目（针对演员和观众），制作了国际知名的《哈姆雷特》，自 2020 年 3 月剧院关闭以来，通过在线表演和虚拟研讨会吸引了超过 700,000 名观众。 La Plaza 热衷于利用 Fute 的在线表演策略继续与神经多元化的演员和观众开展先前的合作，为基于艺术的残疾包容性康复策略的制定提供信息。 20 多年来，Fute 一直在开发猎人心跳法，这是一系列基于莎士比亚节奏和语言的感官戏剧游戏，由 Kelly Hunter MBE 创建，为自闭症患者提供了表达自己的机会（请参阅： https://frudetheatre.co.uk/changing-lives-of-people-with-autism/hunterheartbeatmethod/ https://www.amazon.co.uk/Shakespeares-Heartbeat-Kelly-Hunter/dp/1138016977）。该项目将研究如何通过以下方式调整 Fute 的创新参与式方法： 秘鲁的西班牙语戏剧制作人正在测试拉丁美洲的自闭症患者及其家人如何在整个大流行期间获得艺术组织的支持，从而减少社会孤立。Fute 和 La Plaza 开发的方法将通过与在阿根廷（Crear Vale la Pena）、哥伦比亚 Fundación Batuta）和巴西（Redes da）工作的三个艺术组织的观察、参与和讨论来传播 Maré），他们是 HERITAGE 建立的艺术和心理健康区域网络的一部分 (https://peoplespalaceprojects.org.uk/en/projects/building-resilience/)。然后，该网络将寻求建立更广泛传播和实施的机制。秘鲁《自闭症谱系障碍患者国家计划》（2019-2021年）描述了支撑其计划的四个相互关联的轴心或方法： 1) 人权：保证国家的政治、法律和道德责任，保证尊重、保护和促进自闭症谱系障碍患者的权利，以克服影响他们的歧视性做法和社会不平等。 2) 平等：减少自闭症谱系障碍患者所经历的深刻的社会劣势，并考虑性别和一系列其他造成不平等的社会经济或文化因素。 3）跨文化：尊重文化差异作为公正社会的支柱意味着接受神经多样性作为人​​类状况的一部分。 4) 代际：制定干预措施，承认家庭内代际相互依存以及不同年龄段之间相互关系的重要性。该案例研究将探讨如何通过在艺术家、医护人员、邻居（即当地观众）、家庭和自闭症患者之间建立基于社区的伙伴关系来推进这些方法。