Building Inclusive Recovery through Theatre (BIRTh): people with autism going beyond the COVID-19 pandemic in Peru

通过剧院构建包容性康复 (BIRTh)：自闭症患者超越秘鲁的 COVID-19 大流行

• 批准号: AH/X008576/1
• 负责人: Paul Heritage
• 金额: $ 10.27万
• 依托单位: Queen Mary University of London
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FX008576%2F1
• 关键词: Building; Inclusive; Recovery; through; Theatre

To address the increased social isolation and consequent mental distress of neurodiverse young people during the COVID-19 pandemic, who were already experiencing severe marginalisation in Peru, People's Palace Projects/PPP in the Queen Mary University of London Drama Department (UK), Flute Theatre (UK), Teatro La Plaza (Peru) and the Centre of Excellence in Chronic Diseases/CRONICAS (Peru) created Heartbeat; Creating Recovery (AH/V013688/1): a research project that designed, implemented and tested an inclusive, participatory and interactive Spanish language online production of The Tempest (La Tempestad). The production was developed using the Hunter Heartbeat Methodology of drama games, which offer autistic people an opportunity to express themselves in a creative space dedicated to their needs and abilities.Evaluation of the project was overwhelmingly positive; *Participants enjoyed themselves while learning skills and building their personal and social capacities.*Families found an inclusive environment built on trust and noticed reduced levels of mental distress in their children.*Representatives from arts, health, education and culture called for the project to be incorporated into government and non-governmental services.*The digital environment provided stable social connections during a period of extreme uncertainty.However, recent research by Peru's National Council for the Integration of Persons with Disability (CONADIS) emphasises that the long-term discrimination, neglect and marginalisation affecting the neurodiverse community predates the COVID-19 pandemic (CONADIS, 2021). Moreover, the UN Economic Commission for Latin America (CEPAL) are projecting a pessimistic outlook for the future without an urgent overhaul of Disability and neurodiversity policymaking in Latin America (Meresman & Ullmann, 2020). The benefits of engagement with artistic and/or creative activities for neurodiverse people are widely evidenced in government reports, arts and culture surveys and academic literature. But the unparalleled levels of exclusion from culture experienced by autistic people in Latin America is perpetuated by the same Peruvian national policies designed to address structural discrimination. The limited resources and specialist services that are available tend to be concentrated in larger cities, making rural populations, women and Indigenous people the most vulnerable to the correlation between Disability, poverty and social exclusion (CONADIS, 2021). Making resources available beyond geographical barriers and deliverable in community settings is clearly essential to addressing access to services and reaching communities threatened by intersecting vulnerabilities.The Follow-On project will focus on touring a live and online production of The Tempest (La Tempestad) in Peru, which has been determined as the most effective way to enhance the value and extract the maximum benefit from the original research project. By developing a toolkit of activities to accompany the production, the Follow-On project will achieve significant social and cultural impact as well as provide a transferable and low-cost model that can be scaled up by stakeholders and policymakers. This Follow-On will demonstrate that Heartbeat is a programme that can be flexibly delivered in a variety of settings, including in rural and hard-to-reach communities that urgently need support services. Sharing accessible resources with larger audiences through high-profile performance events, stakeholder roundtables and an impactful communications campaign that raise awareness of autism, this Follow-On applies the methods identified by members of the Disabled and neurodiverse community in Peru for improving their quality of life (CONADIS, 2021).

2019冠状病毒病大流行期间，神经系统多样化的年轻人在秘鲁已经历严重边缘化，为解决他们日益加剧的社会孤立和随之而来的精神困扰，伦敦玛丽皇后大学戏剧系（英国）、长笛剧院（英国）、广场剧院（秘鲁）和慢性病卓越中心（秘鲁）的人民宫项目/PPP创建了心跳;创造复苏（AH/V013688/1）：一个研究项目，设计、实施和测试一个包容性、参与性和互动性的西班牙语在线制作《暴风雨》（La Tempestad）。该作品采用了戏剧游戏的猎人心跳方法，为自闭症患者提供了一个表达自己的机会，在一个致力于满足他们需求和能力的创意空间中。该项目的评价非常积极; * 参与者在学习技能和建立个人和社会能力的同时享受自己。*家庭发现了一个建立在信任基础上的包容性环境，并注意到孩子的精神痛苦程度有所降低。来自艺术、卫生、教育和文化的代表呼吁将该项目纳入政府和非政府服务。数字化环境在极端不确定的时期提供了稳定的社会联系，然而，秘鲁国家残疾人融入理事会（CONADIS）最近的研究强调，影响神经多样性社区的长期歧视、忽视和边缘化早在COVID-19大流行之前（CONADIS，2021）。此外，联合国拉丁美洲经济委员会（CEPAL）预测，如果不对拉丁美洲的残疾和神经多样性政策进行紧急改革，未来前景将是悲观的（Meresman & Ullmann，2020）。参与艺术和/或创造性活动对神经多样性人群的好处在政府报告、艺术和文化调查以及学术文献中得到了广泛的证明。但是，秘鲁旨在解决结构性歧视的国家政策使拉丁美洲自闭症患者所经历的前所未有的文化排斥程度永久化。现有的有限资源和专业服务往往集中在大城市，使农村人口、妇女和土著人民最容易受到残疾、贫困和社会排斥之间的相互关系的影响（全国支助残疾人理事会，2021年）。使资源超越地理障碍并可在社区环境中交付，对于解决服务获取问题和接触受交叉脆弱性威胁的社区显然至关重要。（La Tempestad），秘鲁被认为是提高价值和从原始研究项目中获得最大利益的最有效途径。通过开发一个与制作相配套的活动工具包，后续项目将产生重大的社会和文化影响，并提供一个可转让的低成本模式，可由利益攸关方和政策制定者推广。这一后续行动将表明，心跳是一个可以在各种环境中灵活提供的方案，包括在迫切需要支助服务的农村和难以到达的社区。通过高调的表演活动、利益相关者圆桌会议和提高自闭症意识的有影响力的宣传活动，与更多的受众分享可获得的资源，这一后续行动采用了秘鲁残疾人和神经多样性社区成员确定的方法，以改善他们的生活质量（全国残疾委员会，2021年）。