Building Inclusive Recovery through Theatre (BIRTh): people with autism going beyond the COVID-19 pandemic in Peru

为了解决新冠肺炎疫情期间日益加剧的社会孤立和随之而来的精神痛苦，这些年轻人已经在秘鲁经历了严重的边缘化，人民宫项目/购买力平价项目在伦敦玛丽女王大学戏剧系(英国)、长笛剧院(英国)、Teatro La Plaza(秘鲁)和慢性病英才中心/克罗尼卡斯(秘鲁)创建了心跳；创造恢复(AH/V013688/1)：这是一个研究项目，设计、实施并测试了包容、参与和互动的西班牙语在线制作的《暴风雨》(La Tempestad)。这部作品是使用戏剧游戏的猎人心跳方法开发的，该游戏为自闭症患者提供了一个在致力于他们的需求和能力的创造性空间中表达自己的机会。该项目的评估是压倒性的积极；*参与者在学习技能、建设个人和社交能力的过程中玩得很开心。*家庭发现一个建立在信任基础上的包容环境，并注意到他们孩子的精神痛苦程度有所降低。*来自艺术、卫生、教育和文化的代表呼吁将该项目纳入政府和非政府服务。*数字环境在极端不确定的时期提供了稳定的社会联系。然而，秘鲁国家残疾人融合委员会(CONADIS)最近的研究强调，影响神经多样性社区的长期歧视、忽视和边缘化早在新冠肺炎大流行(CONADIS，2021年)之前。此外，联合国拉丁美洲经济委员会(CEPAL)预测，如果不对拉丁美洲的残疾和神经多样性政策制定进行紧急改革，未来的前景将是悲观的(Meresman&Ullmann，2020)。政府报告、艺术和文化调查和学术文献广泛证明了参与艺术和/或创造性活动对不同神经质的人的好处。但是，拉丁美洲自闭症患者所经历的空前程度的文化排斥，正是秘鲁旨在解决结构性歧视问题的国家政策所延续的。可用的有限资源和专业服务往往集中在较大的城市，使农村人口、妇女和土著人民最容易受到残疾、贫困和社会排斥之间的关联的影响(CONADIS，2021年)。提供跨越地理障碍的资源并在社区环境中交付显然对于解决获得服务的机会和接触到受到交叉脆弱性威胁的社区至关重要。后续项目将侧重于在秘鲁巡回演出现场和在线制作的暴风雨(La Tempestad)，这已被确定为提高原始研究项目价值和获取最大利益的最有效方式。通过开发与制作配套的活动工具包，后续项目将产生重大的社会和文化影响，并提供一种可转让的低成本模式，利益攸关方和政策制定者可以扩大这种模式。这一后续行动将表明，心跳是一项可以在各种情况下灵活提供的方案，包括在迫切需要支助服务的农村和难以到达的社区。通过高调的表演活动、利益攸关方圆桌会议和提高对自闭症认识的有影响力的交流运动，与更多的受众分享可获得的资源，这一后续行动应用了秘鲁残疾人和神经多样性社区成员确定的提高他们生活质量的方法(CONADIS，2021年)。

To address the increased social isolation and consequent mental distress of neurodiverse young people during the COVID-19 pandemic, who were already experiencing severe marginalisation in Peru, People's Palace Projects/PPP in the Queen Mary University of London Drama Department (UK), Flute Theatre (UK), Teatro La Plaza (Peru) and the Centre of Excellence in Chronic Diseases/CRONICAS (Peru) created Heartbeat; Creating Recovery (AH/V013688/1): a research project that designed, implemented and tested an inclusive, participatory and interactive Spanish language online production of The Tempest (La Tempestad). The production was developed using the Hunter Heartbeat Methodology of drama games, which offer autistic people an opportunity to express themselves in a creative space dedicated to their needs and abilities.Evaluation of the project was overwhelmingly positive; *Participants enjoyed themselves while learning skills and building their personal and social capacities.*Families found an inclusive environment built on trust and noticed reduced levels of mental distress in their children.*Representatives from arts, health, education and culture called for the project to be incorporated into government and non-governmental services.*The digital environment provided stable social connections during a period of extreme uncertainty.However, recent research by Peru's National Council for the Integration of Persons with Disability (CONADIS) emphasises that the long-term discrimination, neglect and marginalisation affecting the neurodiverse community predates the COVID-19 pandemic (CONADIS, 2021). Moreover, the UN Economic Commission for Latin America (CEPAL) are projecting a pessimistic outlook for the future without an urgent overhaul of Disability and neurodiversity policymaking in Latin America (Meresman & Ullmann, 2020). The benefits of engagement with artistic and/or creative activities for neurodiverse people are widely evidenced in government reports, arts and culture surveys and academic literature. But the unparalleled levels of exclusion from culture experienced by autistic people in Latin America is perpetuated by the same Peruvian national policies designed to address structural discrimination. The limited resources and specialist services that are available tend to be concentrated in larger cities, making rural populations, women and Indigenous people the most vulnerable to the correlation between Disability, poverty and social exclusion (CONADIS, 2021). Making resources available beyond geographical barriers and deliverable in community settings is clearly essential to addressing access to services and reaching communities threatened by intersecting vulnerabilities.The Follow-On project will focus on touring a live and online production of The Tempest (La Tempestad) in Peru, which has been determined as the most effective way to enhance the value and extract the maximum benefit from the original research project. By developing a toolkit of activities to accompany the production, the Follow-On project will achieve significant social and cultural impact as well as provide a transferable and low-cost model that can be scaled up by stakeholders and policymakers. This Follow-On will demonstrate that Heartbeat is a programme that can be flexibly delivered in a variety of settings, including in rural and hard-to-reach communities that urgently need support services. Sharing accessible resources with larger audiences through high-profile performance events, stakeholder roundtables and an impactful communications campaign that raise awareness of autism, this Follow-On applies the methods identified by members of the Disabled and neurodiverse community in Peru for improving their quality of life (CONADIS, 2021).