AGING MOTHERS OF RETARDED ADULTS--IMPACTS OF CAREGIVING

智障成人的年迈母亲——照顾的影响

• 批准号: 3120529
• 负责人: MARSHA RUTH MAILICK
• 金额: $ 20.29万
• 依托单位: UNIVERSITY OF WISCONSIN-MADISON
• 依托单位国家: 美国
• 财政年份: 1990
• 资助国家: 美国
• 起止时间: 1990-02-01 至 1995-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/3120529
• 关键词: Downs syndrome; aging; caregivers; coping; decision making; extended care; family structure /dynamics; functional ability; home health care; longitudinal human study; mental health; mental retardation; parent offspring interaction; physical fitness; physiologic stressor; psychological stressor; social support network; stress

The proposed longitudinal research is a study of 450 aging mothers who provide in-home care to an adult mentally retarded child. These mothers face an atypical and unstudied dual challenge: the continuing caregiving responsibility for a dependent child and the personal challenge of adjusting to the manifestations and consequences of their own aging. It is estimated that during the study period as many as two-thirds may permanently place their son or daughter out of the home for the first time. This study will investigate the factors contributing to late-life placement decisions, the consequences of such decisions for mothers who place and who do not place, and the impacts on the development of retarded adults of continuing to live at home compared to placement out of the home during their adult years. The study addresses these issues using a longitudinal data set to be collected from the largest existing sample in the country of aging mothers (mean age- 66 years) and their retarded adult sons or daughters (mean age-33 years), about one-third of whom have Down syndrome. In-home interviews and assessments with the 450 mothers and their adult retarded sons and daughters will be conducted three times (each 18 months apart) during the study period. The proposed research consists of 3 studies. Study 1 investigates the factors associated with successful aging in the mother (defined in terms of physical health, mental health, cognitive abilities, and functional abilities) and with favorable affective reactions to caregiving for her son or daughter with retardation. Comparisons will be made between mothers who do and do not place their retarded child during the study period, and between mothers whose child has Down syndrome and mothers whose child's retardation is due to other factors. Study 2 identifies the maternal and child characteristics predictive of late-life placement vase. continued in-home residence for the adult with retardation. Study 3 investigates the factors associated with successful aging in retarded adults, with comparisons made between placed and non- placed adults and between those with and without Down syndrome.

拟议的纵向研究是一项对450名年迈母亲的研究 他们为成年智障儿童提供居家护理。 这些母亲面临着一个非典型且未经研究的双重挑战： 对受供养子女的持续照顾责任和 适应这些表现和表现的个人挑战 它们自身衰老的后果。据估计，在 学习期间多达三分之二的人可能会永久安置他们的儿子 或女儿第一次走出家门。这项研究将 调查影响晚年安置的因素 决定，这些决定对母亲的后果是什么 和谁不放，以及对发展的影响 与安置相比，智障成年人继续生活在家中的可能性 在他们成年后走出家门。这项研究解决了 这些问题使用的纵向数据集是从 全国现有最大的老年母亲样本(平均年龄- 66岁)及其发育迟缓的成年子女(平均年龄-33岁 年)，其中约三分之一患有唐氏综合症。在家中 450名母亲及其成人的访谈和评估 智障儿女将进行三次(每次18次 相隔几个月)。 建议的研究包括3项研究。研究1调查 与母亲成功衰老相关的因素(定义 在身体健康，心理健康，认知能力， 和功能能力)和良好的情感反应 照顾发育迟缓的儿子或女儿。 我们将对做过和不做过的母亲进行比较 他们的智障儿童在研究期间和母亲之间 孩子患有唐氏综合症的母亲和孩子发育迟缓的母亲 是由其他因素造成的。研究2确定了母亲和儿童 晚年摆放花瓶的特征预测。续 为智力落后的成年人提供居家住宿。研究3 调查与成功老化相关的因素 智障成年人，在安置和不放置之间进行比较 放置在成人和有唐氏综合症和没有唐氏综合症的人之间。