Administrative Data Research Centre - Scotland

行政数据研究中心 - 苏格兰

• 批准号: ES/L007487/1
• 负责人: Christopher Dibben
• 金额: $ 983.35万
• 依托单位: University of Edinburgh
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2013
• 资助国家: 英国
• 起止时间: 2013 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FL007487%2F1
• 关键词: Administrative; Data; Research; Centre; Scotland

Administrative data (that is, information collected primarily for administrative purposes) has long contributed to central government and other statistics. However in the last 15-20 years, technological advancement has seen something of a revolution with the formation of very large administrative databases held by central and local government, and by specialist agencies across the UK. The existence of such databases raises the possibility that administrative data could become, in an annoymised form, a core resource for social science academic research. Many northern European countries (notably Denmark, Finland, Norway and Sweden) are further ahead in this regard, as they have placed much greater emphasis on developing national 'register data' from the 1980s onwards, to replace national censuses and major surveys. For example, Statistics Denmark now bases most of its national statistics on 'register data' which can be linked both longitudinally and between registers of different types (e.g. health, education, income). Datasets with very similar potential now exist in the UK. They represent a rich potential research resource for the UK social science research community. However, on the whole, the academic social science community in the UK has had difficulty gaining access to these potential powerful datasets for a variety of reasons. In 2011 the Administrative Data Taskforce was formed with the 'aim of improving access to and linkage between government administrative data for research and policy purposes'. One of its recommendations was the formation of Administrative Data Research Centres (ADRC) in each of the countries of the UK. A Scottish ADRC will aim to make de-identified data available for research that will produce internationally important findings and guide the development, implementation and evaluation of policy. It will particularly focus on building trust between data providers, researchers and the public and will adopt the highest international standards of governance, professional practise and public engagement.The ADRC will have a core service that will: - provide state-of-the-art facilities for research access to de-identified administrative data by accredited researchers - provide data management and statistical analysis support functions for external researchers accessing the data - engage in training, capacity building, and public engagementand a set of developmental work packages that will: - conduct original research using linked administrative data and important analytical and methodological approaches that support the creation of research useful datasets - Explore important aspects of the legal environment and public acceptability of the new linkages that the ADRC's will naturally be engaged withit will do this through - A support unit providing researchers with a single, initial point of contact for the Scottish ADRC - A central team of data scientists - researching administrative datasets and supporting researchers through the support unit - A wide circle of collaborating academics - covering the spectrum of administrative data holding sectors driving forward the data scientists (central team) and bespoke research projects - A wider circle of academics/ researchers supported, trained and engaged by the ADRC

行政数据(即主要为行政目的收集的信息)长期以来一直是中央政府和其他统计数据的组成部分。然而，在过去的15-20年里，技术进步见证了一场革命，形成了由中央和地方政府以及英国各地的专业机构持有的非常大的行政数据库。这种数据库的存在增加了这样一种可能性，即行政数据可能会以一种令人恼火的形式成为社会科学学术研究的核心资源。许多北欧国家(特别是丹麦、芬兰、挪威和瑞典)在这方面走得更远，因为它们从1980年代起更加重视发展国家“登记数据”，以取代国家人口普查和重大调查。例如，丹麦统计局现在的大多数国家统计数据都是以“登记数据”为基础的，这些数据既可以纵向联系，也可以在不同类型的登记机构(如健康、教育、收入)之间建立联系。具有非常相似潜力的数据集现在存在于英国。它们为英国社会科学研究界提供了丰富的潜在研究资源。然而，总体而言，出于各种原因，英国的学术社会科学社区很难获得这些潜在的强大数据集。2011年成立了行政数据工作组，目的是“改善政府行政数据的获取和联系，以用于研究和政策目的”。它的建议之一是在英国每个国家成立行政数据研究中心(ADRC)。苏格兰的一个ADRC将致力于为研究提供未经确认的数据，这些数据将产生国际上重要的发现，并指导政策的制定、实施和评估。ADRC将特别注重在数据提供者、研究人员和公众之间建立信任，并将采用最高的国际治理、专业实践和公共参与标准。ADRC将拥有一项核心服务，将：-提供最先进的设施，供研究人员获取未经认可的行政数据-为外部研究人员获取数据提供数据管理和统计分析支持功能-参与培训、能力建设、和公共参与以及一套发展工作包，这些工作包将：-使用相关的行政数据和重要的分析和方法方法进行原创研究，以支持创建研究有用的数据集--探索法律环境的重要方面和公众对新的联系的接受度，ADRC将自然地与其接触-它将通过-一个支持单位为研究人员提供单一的、苏格兰ADRC的初始联系点-数据科学家的中央团队-研究行政数据集并通过支持单位支持研究人员-广泛的合作学者圈-涵盖推动数据科学家(中央团队)和定制研究项目的行政数据持有部门的范围-由ADRC支持、培训和聘用的更广泛的学者/研究人员圈

项目成果

Linking Scottish vital event records using family groups

使用家庭组链接苏格兰生命事件记录

• DOI: 10.1080/01615440.2019.1571466
• 发表时间: 2019
• 期刊: A Journal of Quantitative and Interdisciplinary History
• 作者: Akgün Ö

Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.

• DOI: 10.23889/ijpds.v4i1.586
• 发表时间: 2019-02-12
• 期刊: International journal of population data science
• 作者: Aitken M;Tully MP;Porteous C;Denegri S;Cunningham-Burley S;Banner N;Black C;Burgess M;Cross L;van Delden JJ;Ford E;Fox S;Fitzpatrick NK;Gallacher K;Goddard C;Hassan L;Jamieson R;Jones KH;Kaarakainen M;Lugg-Widger F;McGrail K;McKenzie A;Moran R;Murtagh MJ;Oswald M;Paprica A;Perrin N;Richards EV;Rouse J;Webb J;Willison DJ
• 通讯作者: Willison DJ

Who benefits and how? Public expectations of public benefits from data-intensive health research

• DOI: 10.1177/2053951718816724
• 发表时间: 2018-12-06
• 期刊: BIG DATA & SOCIETY
• 影响因子: 8.5
• 作者: Aitken, Mhairi;Porteous, Carol;Cunningham-Burley, Sarah
• 通讯作者: Cunningham-Burley, Sarah

An identifier scheme for the Digitising Scotland project

数字化苏格兰项目的标识符方案

• 发表时间: 2017
• 作者: Akgün, Ö

Learning From Past Links: Understanding the Limits of Linkage Quality

从过去的链接中学习：了解链接质量的限制

• 发表时间: 2017
• 作者: Akgün, Ö