HELPING NONMAINSTREAM FAMILIES MANGAGE CHILDHOOD ASTHMA

儿童哮喘仍然具有高患病率，以及短期和长期的医疗后果，并且不成比例地影响少数民族儿童。管理最好由家庭来完成。然而，传统的以家庭为基础的教育方案往往无法满足非洲裔美国人和拉丁美洲家庭的需要，识字和英语水平低。在第一阶段，我们建议找出非主流家庭有效管理的障碍，并开发一个原型“以家庭为基础的哮喘管理/支持系统”，针对儿童和照顾者，整合了基于网络的教育/支持工具与印刷材料。创新功能包括：（1）根据非主流群体的需要和文化特点“裁剪”内容;（2）采用创新的交付方法--互动网站。第一阶段的结果将有助于确定原型系统实用性的参数。第二阶段将扩大原型的技术，包括对原型对患者健康状况、依从性和家庭应对指标的影响进行比较评估。在这两个阶段生产的家庭管理支持系统将成为Abacus的HEALTH DECISION ADVANTAGE（TM）（HDA）工具包的一部分，该工具包将销售给综合交付系统、提供者团体和管理式护理组织，以满足非主流人群的需求。拟议的商业应用：第一阶段提案的目标是开发消费者友好型和基于家庭的教育和支持工具和系统，以向医疗保健组织销售。在第一阶段生产的原型系统将成为Abacus的健康决策优势（TM）（HDA）工具包的一部分。这些工具是为文化程度、教育程度和英语水平较低的消费者量身定制的。Abacus已经实施了一项在美国全国分销HDA产品的营销计划。

Pediatric asthma continues to have a high prevalence rate, as well as short- term and long-term medical consequences, and disproportionately impacts minority children. Management is best accomplished by the family. However, traditional family-based educational programs often fail to meet the needs of African American and Latino families with low literacy and English proficiency levels. In Phase I, we propose to identify barriers to effective management by nonmainstream families and to develop a prototype "family- based asthma management/support system", targeted to children and caregivers, that integrates a Web-based education/support tool with print materials. Innovative features include: (1) "tailoring" content to the needs and cultural characteristics of nonmainstream groups; (2) using an innovative delivery approach - an interactive Web site. Phase I results will help define the parameters for the utility of the prototype system. Phase II will expand technologies of the prototype and include a comparative evaluation of the impact of the prototype on indicators of patient health status, adherence, and family coping. The family management support system produced during both Phases will become part of Abacus's HEALTH DECISION ADVANTAGE(TM) (HDA) tool kit to be marketed to integrated delivery systems, provider groups, and managed care organizations to address the needs of nonmainstream populations. PROPOSED COMMERCIAL APPLICATIONS: The goal of this Phase I proposal is to develop consumer-friendly and engineered family-based educational and support tools and systems to market to health care organizations. The prototype system produced in Phase I will become part of Abacus's HEALTH DECISION ADVANTAGE(TM) (HDA) tool kit. These tools are tailored to consumers with low levels of literacy, education, and English proficiency. Abacus has implemented a marketing plan for national distribution of HDA products in the United States.