HELPING NONMAINSTREAM FAMILIES MANGAGE CHILDHOOD ASTHMA

帮助非主流家庭控制儿童哮喘

• 批准号: 6074355
• 负责人: SARA M BANKS
• 金额: $ 9.94万
• 依托单位: ABACUS GROUP
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-03-15 至 2000-09-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6074355
• 关键词: African American; Hispanic Americans; Internet; asthma; caregivers; computer program /software; computer system design /evaluation; coping; educational resource design /development; family structure /dynamics; family therapy; health education; human subject; patient care management; pediatrics; questionnaires; therapy compliance

Pediatric asthma continues to have a high prevalence rate, as well as short- term and long-term medical consequences, and disproportionately impacts minority children. Management is best accomplished by the family. However, traditional family-based educational programs often fail to meet the needs of African American and Latino families with low literacy and English proficiency levels. In Phase I, we propose to identify barriers to effective management by nonmainstream families and to develop a prototype "family- based asthma management/support system", targeted to children and caregivers, that integrates a Web-based education/support tool with print materials. Innovative features include: (1) "tailoring" content to the needs and cultural characteristics of nonmainstream groups; (2) using an innovative delivery approach - an interactive Web site. Phase I results will help define the parameters for the utility of the prototype system. Phase II will expand technologies of the prototype and include a comparative evaluation of the impact of the prototype on indicators of patient health status, adherence, and family coping. The family management support system produced during both Phases will become part of Abacus's HEALTH DECISION ADVANTAGE(TM) (HDA) tool kit to be marketed to integrated delivery systems, provider groups, and managed care organizations to address the needs of nonmainstream populations. PROPOSED COMMERCIAL APPLICATIONS: The goal of this Phase I proposal is to develop consumer-friendly and engineered family-based educational and support tools and systems to market to health care organizations. The prototype system produced in Phase I will become part of Abacus's HEALTH DECISION ADVANTAGE(TM) (HDA) tool kit. These tools are tailored to consumers with low levels of literacy, education, and English proficiency. Abacus has implemented a marketing plan for national distribution of HDA products in the United States.

小儿哮喘的患病率仍然很高，并且会造成短期和长期的医疗后果，并且对少数族裔儿童的影响尤为严重。管理最好由家庭来完成。然而，传统的家庭教育项目往往无法满足读写能力和英语水平较低的非裔美国人和拉丁裔家庭的需求。在第一阶段，我们建议找出非主流家庭有效管理的障碍，并开发一个针对儿童和护理人员的原型“基于家庭的哮喘管理/支持系统”，该系统将基于网络的教育/支持工具与印刷材料相结合。创新特点包括：（1）针对非主流群体的需求和文化特征“量身定制”内容； (2)采用创新的交付方式——交互式网站。第一阶段的结果将有助于定义原型系统的实用参数。第二阶段将扩展原型的技术，包括对原型对患者健康状况、依从性和家庭应对指标的影响进行比较评估。这两个阶段产生的家庭管理支持系统将成为 Abacus 的 HEALTH DECISION ADVANTAGE(TM) (HDA) 工具包的一部分，向综合交付系统、提供者团体和管理式医疗组织销售，以满足非主流人群的需求。拟议的商业应用：第一阶段提案的目标是开发消费者友好型和工程化的基于家庭的教育和支持工具和系统，以向医疗保健组织推销。第一阶段生产的原型系统将成为 Abacus 的 HEALTH DECISION ADVANTAGE(TM) (HDA) 工具包的一部分。这些工具是为识字率、教育水平和英语水平较低的消费者量身定制的。 Abacus 已实施一项在美国全国分销 HDA 产品的营销计划。