HELPING NONMAINSTREAM FAMILIES MANGAGE CHILDHOOD ASTHMA

儿童哮喘的患病率以及短期和长期的医疗后果仍然很高，对少数族裔儿童的影响不成比例。管理最好由家族来完成。然而，传统的以家庭为基础的教育计划往往无法满足识字和英语水平较低的非裔美国人和拉丁裔家庭的需求。在第一阶段，我们建议找出非主流家庭有效管理的障碍，并发展一个原型的“以家庭为基础的哮喘管理/支援系统”，以儿童和照顾者为目标，把网上教育/支援工具与印刷资料整合在一起。创新的特点包括：(1)根据非主流群体的需要和文化特征“定制”内容；(2)使用一种创新的交付方法--互动网站。第一阶段的结果将有助于确定原型系统的实用参数。第二阶段将扩展原型的技术，并包括对原型对患者健康状况、依从性和家庭应对指标的影响的比较评估。在这两个阶段生产的家庭管理支持系统将成为Abacus的Health Decision Advantage(TM)(HDA)工具包的一部分，该工具包将销售给集成的交付系统、提供者团体和受管护理组织，以满足非主流人群的需求。拟议的商业应用：这项第一阶段提案的目标是开发方便消费者和工程化的以家庭为基础的教育和支持工具和系统，向卫生保健组织推销。第一阶段生产的原型系统将成为Abacus健康决策优势(商标)(HDA)工具包的一部分。这些工具是为识字、教育和英语水平较低的消费者量身定做的。Abacus已经实施了HDA产品在美国的全国分销营销计划。

Pediatric asthma continues to have a high prevalence rate, as well as short- term and long-term medical consequences, and disproportionately impacts minority children. Management is best accomplished by the family. However, traditional family-based educational programs often fail to meet the needs of African American and Latino families with low literacy and English proficiency levels. In Phase I, we propose to identify barriers to effective management by nonmainstream families and to develop a prototype "family- based asthma management/support system", targeted to children and caregivers, that integrates a Web-based education/support tool with print materials. Innovative features include: (1) "tailoring" content to the needs and cultural characteristics of nonmainstream groups; (2) using an innovative delivery approach - an interactive Web site. Phase I results will help define the parameters for the utility of the prototype system. Phase II will expand technologies of the prototype and include a comparative evaluation of the impact of the prototype on indicators of patient health status, adherence, and family coping. The family management support system produced during both Phases will become part of Abacus's HEALTH DECISION ADVANTAGE(TM) (HDA) tool kit to be marketed to integrated delivery systems, provider groups, and managed care organizations to address the needs of nonmainstream populations. PROPOSED COMMERCIAL APPLICATIONS: The goal of this Phase I proposal is to develop consumer-friendly and engineered family-based educational and support tools and systems to market to health care organizations. The prototype system produced in Phase I will become part of Abacus's HEALTH DECISION ADVANTAGE(TM) (HDA) tool kit. These tools are tailored to consumers with low levels of literacy, education, and English proficiency. Abacus has implemented a marketing plan for national distribution of HDA products in the United States.