CORE--PATIENT COORDINATION AND ASSESSMENT

核心——患者协调和评估

• 批准号: 6108887
• 负责人: DEBORAH Ann PEARSON
• 金额: $ 16.82万
• 依托单位: UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON
• 依托单位国家: 美国
• 财政年份: 1999
• 资助国家: 美国
• 起止时间: 1999-03-01 至 2000-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6108887
• 关键词: Hispanic Americans; autism; behavior test; biomedical facility; clinical research; data collection; ethnic group; human subject; interview; medical outreach /case finding; patient care management; problem solving; volunteer

The purpose of the Patient Coordination and Assessment Core Module (PCACM-CORE B) is to facilitate the participation of human subjects in Program Project research, in particular, Projects I and II. Specific aims are as follows: Aim 1: To provide assessment, eligibility determination, and enrollment of potential participants into Project 1 (neurobehavioral project) and Project II (neuroimaging project); Aim 2: To recruit potential participants for the Program project, while maintaining and expanding liaison with community agencies such as parent groups, mental health agencies, and schools, in order to increase the participant recruitment base for this program of research; Aim 3: Maintain participant enrollment in the Program project and prevent attrition. Aim 4: Collect clinical data for comparison with data from Projects I and II; Aim 5: Provide culturally-based translation of parent-report measures to allow participation of children from Spanish-speaking families and other minority individuals in protocols. The PCACM will serve as a central mechanism for the management of all aspects of human subjects' participation including screening, enrollment, scheduling, transitions between projects, problem resolution, and oversight of informed consent and human subjects protection.

患者协调和评估核心模块的目的 （PCACM核B）是为了促进人类受试者的参与 计划项目研究，特别是项目I和II。具体的 目的如下： 目标1：提供评估，资格确定和入学 潜在参与者参与项目1（神经行为项目）和 项目II（神经影像学项目）； 目标2：招募计划项目的潜在参与者，而 维持和扩大与父母等社区机构的联络 小组，心理健康机构和学校，以增加 该研究计划的参与者招聘基础； 目标3：维护计划项目的参与者入学率 防止损耗。 AIM 4：收集临床数据以与项目I的数据进行比较 和II； 目标5：提供基于文化的父母报告措施的翻译 允许来自讲西班牙语的家庭和其他其他儿童参加 协议中的少数民族个人。 PCACM将作为管理所有人的中心机制 人类受试者参与的各个方面，包括筛查， 注册，调度，项目之间的过渡，问题 解决方案以及对知情同意和人类主题的监督 保护。