Core--Caregiver

NYU-ADCC Caregiver Core对参与临床核心的所有AD患者的主要照顾者进行全面评估，纵向跟踪他们，并根据要求为他们提供咨询。常规的结构化多方面评估分为两部分：第一部分包括抑郁、焦虑、社会网络和支持以及生活质量的测量;第二部分测量家庭冲突、行为问题和照顾者反应、照顾者评价以及其他与照顾有关的具体特征。AD患者的护理人员完成整个评估。与所有正常对照受试者一样，所有轻度认知障碍（MCI）ADCC受试者的关键信息提供者仅完成该评估的第一部分。护理人员核心协议是基于纽约大学ADCC为护理人员开发的心理社会干预研究，该研究现已进入第12个年头。在临床核心的每次诊断评估结束时，护理人员核心的顾问与主要护理人员和其他家庭成员举行会议。他们每6个月对所有AD患者的护理人员以及所有正常受试者进行定期电话随访，并负责联系所有受试者进行重新评估。咨询人员可以回应临床核心受试者的所有护理人员的帮助和信息请求。他们是一个“用户友好”的资源和临床科目和临床医生之间的联系。他们的活动有助于招募新的受试者，留住现有受试者，并使受试者参与尸检跟踪和研究。辅导员也作为一个宝贵的资源，其他ADCC核心和发展未来的研究在该中心。大型数据库和受试者库，我们将继续增加纵向信息收集同时对照顾者和他们的家庭成员与AD，轻度受损的主题和他们的线人和正常的非癫痫对照组，将是一个有价值的研究资源本身的权利，并促进制定新的研究，以改善照顾者和病人的福祉，并了解癫痫的影响。

The NYU-ADCC Caregiver Core conducts a comprehensive assessment of the primary caregivers of all AD patients participating in the Clinical Core, follow them longitudinally and provides them with counseling on request. The routine structured multifaceted assessment is in two parts: the first part includes measures of depression, anxiety, social network and support and quality of life; the second part measures family conflict, behavior problems and caregiver reaction, caregiver appraisal and other specific characteristics related to caregiving. The caregiver of a patient with AD completes the entire assessment. The key informant of all ADCC subjects with mild cognitive impairment (MCI) completes only the first part of this assessment, as do all normal control subjects. The Caregiver Core protocol os based on a psychosocial intervention study developed for caregivers at the NYU-ADCC which is now in its 12th year. At the conclusion of every diagnostic evaluation of the Clinical Core, counselors of the Caregiver Core conduct conferences with the primary caregiver and other family members. They make regular follow-up telephone calls every 6 months to the caregivers of all AD patients as well as to all normal subjects and are also responsible for contacting all subjects for re-evaluation. The counseling staff is available to respond to requests for help and information from all caregivers of subject of the Clinical Core. They are a "user-friendly" resource and a link between clinic subjects and clinic physicians. Their activities facilitate recruitment of new subjects, retention of current subjects and participation of subjects in autopsy tracking and in research studies. The counselors also serve as a valuable resource to other ADCC cores and for development of future research on caregiving at the Center. The large database and subject pool, about which we will continue to add longitudinal information collected concurrently on caregivers and their family members with AD, on mildly impaired subjects and their informants and on normal non-caregiving control subjects, will be a valuable research resource in its own right and foster the formulation of new research to improve caregiver and patient well-being and to understand the impact of caregiving.