Website and E-Care for Latino Family Caregivers

描述(申请人提供)：照顾患有疾病的长者的家庭照顾者 痴呆症患压力相关疾病的风险增加。这是特别的 对于拉丁裔照顾者来说是这样的，他们的负担因缺乏关于痴呆症的西班牙语信息和/或具有文化能力的服务而加剧。 即使有这样的服务，拉丁裔照顾者也经常面临 与日程安排的便利性、地理距离和 无法让患有痴呆症的老人无人照看。这个项目 满足了对方便、符合文化要求的西班牙语的需求 为拉丁裔照顾者提供的服务。我们建议发展多元识字。 为受痴呆症影响的家庭照顾者提供西班牙语-英语网站 长辈们。我们已经为拉丁裔照顾者建立了一个原型网站 在波士顿，并将在第一阶段进一步发展它。我们将通过 扩大网站西班牙语识字率较高的部分，以及 开发西班牙语和英语的低识字率版本。一项评估研究 将开展将该网站作为学习工具的研究。在第二阶段，我们会 扩展该网站以包括全国护理人员资源，并添加一个 定制的电子护理组件，提供在线和呼叫中心建议 痴呆症专家。预计HMO将与我们签订合同，以提供 E-care组件作为一项会员服务。

DESCRIPTION (provided by applicant): Family caregivers to elders suffering with dementia are at increased risk for stress-related illness. This is especially true for Latino caregivers, whose burden is exacerbated by a lack of Spanish-language information on dementia, and/or culturally-competent services. Even when such services are available, Latino caregivers often face access barriers related to scheduling convenience, geographic distances, and the inability to leave their dementia-affected elder unattended. This project addresses the need for convenient, culturally-competent, Spanish-language services for Latino caregivers. We propose the development of a multi-literacy level Spanish-English website for family caregivers to dementia-affected elders. We have already established a prototype website for Latino caregivers in the Boston are, and will further develop it in Phase 1. We will do this by expanding the higher literacy Spanish component of the website, as well as developing lower literacy versions in Spanish and English. An evaluation study of the website as a learning tool will be conducted. In Phase II, we will expand the website to include caregiver resources nationally, and add a customized e-care component offering on-line and call-in center advice from dementia specialists. HMOs can be expected to contract with us to provide the e-care component as a member service.