Outcomes/Client Meanings in Pre-Aminocentesis Counseling

抽氨前咨询中的结果/客户含义

• 批准号: 6559328
• 负责人: BARBARA BOWLES BIESECKER
• 金额: --
• 依托单位: NATIONAL HUMAN GENOME RESEARCH INSTITUTE
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/6559328
• 关键词: amniocentesis; behavioral /social science research tag; clinical research; decision making; female; genetic counseling; health services research tag; human pregnant subject; interview; patient care personnel relations; prenatal diagnosis; videotape /videodisc; women's health

Women undergoing pre-amniocentesis genetic counseling sessions were invited to participate in a qualitative exploratory study into personal meaning. Sessions with genetic counselors at a variety of different locations (5) were audiotaped and transcribed. Further, participating genetic counselors were interviewed about their counseling approaches in general and clients participating in the sessions were interviewed as well. These three sources of data are being compared in order to seek understanding of the relationships between counselor conceptualizations of practice, actual practice and client's stated needs. Analysis indicates that much of pre-amniocentesis counseling sessions is the communication of medical information. The counselor's goals to meet client needs do not always coincide with the process undertaken in the sessions. This pilot study will foster additional work into the process of genetic counseling. This study resulted in the successful awarding of a master's degree from Johns Hopkins University School of Public Health. A manuscript for publication is pending.

接受羊膜穿刺术前遗传咨询的妇女被邀请参加一项关于个人意义的定性探索性研究。在不同地点与遗传咨询师的会议(5)被录音和转录。此外，参与的遗传顾问被采访了关于他们的咨询方法的一般情况，参加会议的客户也被采访了。这三个数据来源正在进行比较，以寻求理解咨询师对实践的概念化、实际实践和客户所陈述的需求之间的关系。分析表明，羊膜穿刺术前的咨询环节很大程度上是医疗信息的交流。辅导员满足客户需求的目标并不总是与会议进行的过程相一致。这项初步研究将促进遗传咨询过程中的额外工作。这项研究成功地授予了约翰霍普金斯大学公共卫生学院的硕士学位。即将出版的手稿正在等待出版。