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Outcomes of Education and Counseling for BRCA1/2 Testing

Outcomes of Education and Counseling for BRCA1/2 Testing
BRCA1/2 检测的教育和咨询成果
批准号：
6681473
负责人：
BARBARA BOWLES BIESECKER
金额：
$0.0万
依托单位：
NATIONAL HUMAN GENOME RESEARCH INSTITUTE
依托单位国家：
美国
项目类别：
财政年份：
--
资助国家：
美国
项目状态：
未结题
起止时间：
至
来源：
https://reporter.nih.gov/project-details/6681473
关键词：
behavioral /social science research tag belief brca gene breast neoplasm /cancer diagnosis breast neoplasms cancer risk clinical research decision making family genetics gene expression genetic counseling genetic screening health behavior health services research tag human genetic material tag human subject interview neoplasm /cancer education neoplasm /cancer genetics personality psychological values psychometrics religion

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中文摘要
翻译
这项遗传性乳腺癌和卵巢癌家族提供BRCA 1/2检测的研究结果数据表明，家庭关系可能会围绕接受检测的决定和收到基因检测结果进行调整。咨询模式也可能对心理困扰产生预期效果。那些接受解决问题咨询互动的参与者在6-9个月后获得测试结果后似乎没有那么痛苦。目前正在编写三份关于心理痛苦、对家庭关系的影响和对风险的认识的论文，以便发表。
英文摘要
Outcome data from this study of hereditary breast and ovarian cancer families offered BRCA1/2 testing suggest that family relationships may be adjusted around the decision to be tested and upon receipt of genetic test results. Mode of counseling also may have had a desired effect on psychological distress. Those participants undergoing a problem-solving counseling interaction seemed to have less distress at 6-9 months beyond getting test results. Three papers are currently being written for publication on psychological distres, impact on family relationships and on risk perception.
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会议论文
Access to Genetic Information Leveraging Innovative Technology (AGILITY) Study
  • 批准号：
    10292565
  • 项目类别：
  • 资助金额：
    $43.42万
  • 财政年份：
    2021
  • 负责人：
    BARBARA BOWLES BIESECKER
  • 依托单位：
    RESEARCH TRIANGLE INSTITUTE
CONFERENCE ON HUMAN GENOME RESEARCH IMPLICTIONS
Stigma/culture/genetics of schizophrenia--Family perspec
Language Interpreters in Genetic Counseling
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