Fertile couples chosing preimplantation genetic diagnosi
Fertile couples chosing preimplantation genetic diagnosi
批准号:
6430286
负责人:
BARBARA BOWLES BIESECKER
金额:
$0.0万
依托单位国家:
美国
项目类别:
财政年份:
--
资助国家:
美国
项目状态:
未结题
起止时间:
至
中文摘要
迄今为止,已经采访了16名接受过植入前诊断(PGD)的成年男女。这项定性研究旨在了解导致有生育能力的夫妇尝试PGD而不是其他生殖选择的原因、经历和信念。在这一领域以前没有做过任何工作。除了确定那些尝试PGD的人的决策过程的要素外,正在评估这些夫妇未满足的需求以及对遗传咨询实践的影响。初步分析建议!父母们认为获取、费用和了解PGD过程的细节都是障碍。有些人表示没有决定,PGD是他们的明显选择。这一过程涉及压力,许多受访者对保健专业人员改进干预措施提出了建议。还安排了更多的访谈,研究仍在进行中。
英文摘要
To date sixteen adult women and men who have undergone preimplantation diagnosis (PGD) have been interviewed. This qualitative study seeks to understand the reasons, experiences and beliefs that lead fertile couples to attempt PGD rather than other reproductive options. No prior work has been done in this area. In addition to determining the elements of the decision-making process for those attempting PGD, unmet needs of these couples are being assessed as well as implications for genetic counseling practice. Preliminary analysis suggest! s that access, costs and learning the details of the PGD process were each considered barriers by parents. Some expressed the idea that there was no decision, that PGD was the obvious choice for them. There was stress involved in the process and many interviewees had suggestions for improved interventions by health care professionals. Additional interviews are scheduled and the study is still ongoing.
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会议论文
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