CORI: Consortium Expansion and Database Enhancement

描述(由申请人提供)：提高质量和降低成本的压力 医疗保健的发展刺激了对医疗服务有效性的评估 干预措施，如胃肠道(GI)内窥镜检查。尽管广泛使用 内窥镜在胃肠道疾病的诊断和治疗中的应用很少 了解社区环境中的利用率和有效性。这个 临床结果研究倡议(CORI)建立了一个医生联盟 世卫组织向国家内窥镜数据储存库提供数据以研究结果 在不同的实践环境中使用内窥镜检查程序。这些数据已经被 用于研究内窥镜的使用情况、频率和严重程度 结果，内窥镜治疗的结果，内窥镜检查对质量的影响 生命和卫生保健利用、新的内窥镜创新、不良事件 与内窥镜检查和慢性疾病的自然病史有关。这 项目跨越了生物医学研究和信息的接口 技术。 CORI的成功依赖于维持一个以实践为基础的联盟 将数据发送到国家存储库的临床医生。一个庞大的、多样化的 联盟允许研究内窥镜检查在“现实生活”中的有效性 练习一下。在该项目的第一阶段，所有临床附属机构都使用计算机化的 专门为该项目开发的报告生成器。在第二阶段， 将创建接口以捕获来自其他计算机化的内窥镜数据 报告生成器、图像管理系统和非内窥镜数据 在保持质量控制和保护患者的同时保持电子记录 隐私。这些增强功能将丰富数据存储库并增强 有效性研究。这项提议的主要目标是利用信息 通过以下方式加强CORI研究任务的技术：扩展 商业软件用户参加CORI，包括 将非内窥镜数据输入内窥镜数据库，增强 用新的成员沟通方法建立联盟，收购 用于研究和术语验证的内窥镜图像。

Description (provided by applicant): Pressure to improye quality and lower cost of health care has stimulated the evaluation of the effectiveness of medical interventions, such as gastrointestinal (GI) endoscopy. Despite widespread use of endoscopy in the diagnosis and treatment of GI diseases, very little is known about the utilization and effectiveness in community-based settings. The Clinical Outcomes Research Initiative (CORI) built a consortium of physicians who contribute data to a national endoscopic data repository to study outcomes of endoscopic procedures in diverse practice settings. These data have been used to study endoscopic utilization, frequency and severity of endoscopic findings, outcomes of endoscopic treatment, impact of endoscopy on quality of life and heath care utilization, new endoscopic innovations, adverse events associated with endoscopy, and natural history of chronic conditions. This project spans the interface of biomedical research and information technologies. CORI's success depends upon maintaining a consortium of practice-based clinicians who send data to the national repository. A large, diverse consortium allows the study of effectiveness of endoscopy in "real life" practice. In Phase I of the project, all clinical affiliates use a computerized report generator developed specifically for the project. In Phase II, interfaces will be created to capture endoscopic data from other computerized report generators, image management systems, and non-endoscopic data from electronic records while maintaining quality control and preserving patient privacy. These enhancements will enrich the data repository and enhance effectiveness research. The primary goal of this proposal is to use information technologies to enhance CORI's research mission through: Expansion of participation in CORI to users of commercial software, Incorporation of non-endoscopic data into the endoscopic database, Enhancement of consortium-building with novel methods of member communication, Acquisition of endoscopic images for research and validation of terminology.