THE ETHICS OF IDENTIFYING RACE IN THE NEW GENETICS

这项人种学研究考察了在人类基因组研究中使用种族和民族类别的社会和伦理影响。拟议研究的具体目标是：1)追溯生物医学中关于种族和民族类别的公共话语的历史，因为它有助于当前基因研究的设计；2)确定在单核苷酸多态(SNPs)研究中发现被识别为种族和/或民族的群体之间的差异的社会政治利害关系；3)批判性地检查细胞库的种族分类和在基因研究中使用人类变异小组；4)分析目前努力将种族和民族识别的人口纳入围绕基因组研究和技术的讨论中的“社区”的含义；以及5)发现在基因组研究中部署种族和民族的伦理影响，并确定在保护个人和社区免受潜在研究相关伤害方面的文化适当机制。本研究将运用参与观察法、半结构式访谈法、调查管理法和档案研究法等人类学方法。

This ethnographic study examines the social and ethnical implications of the use of categories of race and ethnicity in human genome research. The specific goals of the proposed research are: 1) to trace the history of public discourse on categories of race and ethnicity within biomedicine as it has contributed to the design of current genetic research; 2) to identify the sociopolitical stakes in discovering difference between groups identified as racial and/or ethnic in the research for single nucleotide polymorphisms (SNPs); 3) to critically examine the racial categorization of cell repositories and the use of human variation panels in genetic research; 4) analyze the meaning of 'community' in current efforts to include racially and ethnically identified population in the discourse surrounding genomic research and technology; and 5) to discover the ethnical implications of the deployment of race and ethnicity in genomics research and to identify culturally appropriate mechanisms in protecting both individuals and communities from potential research related harms. This study will utilize anthropological methods of participant observation, semi-structured interviews, survey administration and archival research.