A Multimedia Introduction to CAM for Cancer Patients

描述（由研究者提供）：美国约有900万癌症患者，从诊断到死亡或生存的姑息治疗可以补充治疗护理，以提高患者及其家人的生活质量。第一阶段SBIR将产生一个带有信息和互动工具的原型CD-ROM，以帮助癌症患者及其家属在整个疾病过程中做出姑息治疗决定。在第一阶段，形成性评价和可用性测试将为光盘的内容和设计提供信息，原型将在反映整个内容范围的图形界面中包括信息和三至五个互动工具。原型的一组前后测试将评估使用该产品改变癌症患者和家庭成员关于制定和实施姑息治疗决策的知识和自我效能的可行性。在第二阶段，我们将制作剩余的信息和工具，并在随机现场测试中测试CD-ROM，以确定其在增加姑息治疗相关决策行为、患者生活质量、家庭照顾者福祉以及患者和家庭成员的情绪状态方面的有效性，并将知识和自我效能的变化作为中间变量。

DESCRIPTION (provided by investigator): There are about 9 million people living with cancer in the U.S. Palliative care from diagnosis to death or survivorship can supplement curative care to improve quality of life for both patients and their family members. This Phase I SBIR will result in a prototype CD-ROM with information and interactive tools to help cancer patients and their families address palliative care decisions throughout the disease course. In Phase I, formative evaluation and usability testing will inform the content and design of the CD-ROM. The prototype will include information and three to five interactive tools in a graphic interface that reflects the entire scope of content. A one-group pre-post-test of the prototype will assess the feasibility of using this product to change cancer patients' and family members' knowledge and self-efficacy about making and implementing palliative care decisions. In Phase II, we will produce the remainder of the information and tools and test the CD-ROM in a randomized field test to determine its effectiveness in increasing palliative care-related decision behavior, patient quality of life, family caregiver well-being, and emotional state of both patients and family members, with changes in knowledge and self-efficacy as intermediate variables.