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CONCEPTS OF RACE & ETHNICITY IN GENETICS RESEARCH

种族概念

基本信息

批准号：
7124497
负责人：
LINDA M HUNT
金额：
$ 2.08万
依托单位：
MICHIGAN STATE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2000
资助国家：
美国
起止时间：
2000-07-01 至 2007-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7124497
关键词：
behavioral /social science research tag classification concept ethnic group expectancy genetics health science research human data perception racial /ethnic difference

项目摘要

(Applicant's Abstract): The proposed training and research plan will give Dr. Hunt the knowledge and skills required to examine and constructively address the ways biomedicine views and represents ethnic and racial minority groups in medical research and intervention efforts, particularly focusing on genetics research and practice. This will enable her to contribute to the establishment of criteria and policies which assure that conceptual and methodological rigor underlie the design, interpretation and application of research on racial and ethnic differences in disease distribution and health behaviors. A national group of prominent experts in research ethics, and the ethics of genetics research and practice, will act as mentors and advisors. The comprehensive training will include attending national workshops and conferences, attending courses and seminars offered at ethics centers and carrying out a set of carefully supervised directed readings. In addition to studying research ethics, in order to assure an adequate knowledge base to conduct studies on genetic research, Dr. Hunt will also complete some courses and readings in medical genetics and statistics. Dr. Hunt will carry out research examining how genetic scientists and clinicians integrate concepts of race and ethnicity into their work. While in recent years there has been increasing interest in understanding the racial and ethnic distribution of genetic characteristics and genetic diseases, the basis of the definition and classification of racial and ethnic groups and the principles for interpreting and responding to observed differences have not been well articulated. Using a combined qualitative and quantitative approach, the proposed research will explore how race and ethnicity are defined and categorized; how implicit social constructs about racial and ethnic differences may be affecting these concepts and practices; and ways that unexamined constructs of racial and ethnic difference may influence how genetic knowledge is interpreted and applied. The specific aims are to: 1) Identify the perceptions and expectations of genetic scientists and clinicians regarding the importance of race and ethnicity to their work. 2) Describe how race and ethnicity are understood and how classifications are made by genetic scientists and clinicians in their research and practice. 3) Explore how research findings and clinical experiences regarding the relevance of race and ethnicity are interpreted and applied by genetic scientists and clinicians.

（申请人摘要）：拟定的培训和研究计划会给亨特医生提供检查和建设性地解决生物医学的观点和代表种族和少数种族群体参与医学研究和干预工作，特别是专注于遗传学研究和实践。这将使她协助制定标准和政策，确保概念和方法的严谨性是设计、解释和种族和族裔差异研究在疾病中的应用分布和健康行为。一个全国知名专家小组，研究伦理，遗传学研究和实践的伦理，将作为导师和顾问。综合培训将包括参加国家讲习班和会议，参加在道德中心，并开展了一系列精心监督的指导读数。除了研究伦理学，为了确保足够的知识基础，进行遗传研究的研究，亨特博士将完成一些医学遗传学和统计学的课程和阅读。亨特博士将进行研究，研究遗传科学家和临床医生将种族和族裔的概念纳入他们的工作。而在近年来，人们越来越感兴趣的是了解种族和民族分布的遗传特征和遗传病的基础种族和族裔群体的定义和分类以及解释和应对观察到的差异的原则尚未被很好地表达出来。采用定性和定量相结合的方法，拟议中的研究将探讨种族和民族是如何定义的，分类;关于种族和民族差异的隐性社会结构可能会影响这些概念和做法;以及未经审查的方式，种族和民族差异的结构可能会影响遗传知识它被解释和应用。具体目标是：1）确定遗传科学家和临床医生对种族和民族对他们工作的重要性。2)描述种族和了解种族以及遗传科学家如何进行分类和临床医生在他们的研究和实践。3)探索研究结果如何关于人种和种族相关性的临床经验是被遗传科学家和临床医生解释和应用。