The medicalisation of race and culture: Inequalities and organ donation in the UK.

这份博士提案概述了一个旨在探索英国种族和器官捐赠动态的项目。NHS和其他组织最近发起的许多活动都聚焦于增加BAME对器官捐赠的参与，以解决在等待救命器官移植期间死亡的BAME患者人数不成比例的问题。这些运动中的叙述援引了围绕种族、遗传和疾病的观念之间的联系，往往忽视了结构性和制度性不平等在为移植患者制造不平等方面所起的作用。这项拟议的研究项目旨在探索英国关于种族和器官捐赠的叙事，以解决以下研究问题：在英国，围绕种族和器官捐赠的话语如何唤起慷慨和亲情的概念，以塑造BAME身份认同和社区意识？通过生物文化的视角，这项研究将考虑治理形式如何在BAME个人和社区中产生特定的主体性。特别关注关于亲情和慷慨的想法，可以考虑个人之间的关系，这一领域的现有研究侧重于主题或社区的产生。为了回答这一研究问题，本项目将使用语篇和内容分析和访谈。这一点的关键将是发展对移植医学领域的科学叙述的理解，因为这对于探索其社会影响是至关重要的。还将与BAME个人开展焦点小组，以探索这些活动是如何被接受的，以及个人如何参与生物文化。

This PhD proposal outlines a project that aims to explore the dynamics around race and organ donation in the UK. Many recent campaigns produced by the NHS and other organisations have focused on increasing BAME participation in organ donation to address disproportionate numbers of BAME patients who die while awaiting life-saving organ transplants. The narratives in these campaigns invoke linkages between ideas around race, genetics, and disease, and often ignore the role that structural and institutional inequality has to play in producing inequalities for transplant patients. The proposed research project aims to explore narratives around race and organ donation in the UK to address the following research question: how do discourses around race and organ donation in the UK evoke notions of generosity and kinship to shape BAME identities and sense of community? Through the lens of bio-cultures, this research will consider how forms of governance produce particular subjectivities in BAME individuals andcommunities. Focusing specifically on ideas around kinship and generosity allows for a consideration of relations between individuals, where existing research in this field focuses on the production of subjects or communities. To answer the research question, this project will use discourse and content analysis and interviews. Key to this will be developing an understanding of the scientific narratives in the field of transplant medicine, as this is essential for exploring their social ramifications. Focus groups will also be conducted with BAME individuals to explore how the campaigns are received, and how individuals engage within biocultures.