The medicalisation of race and culture: Inequalities and organ donation in the UK.

这个博士提案概述了一个项目，旨在探索英国种族和器官捐赠的动态。NHS和其他组织最近开展的许多活动都集中在增加BAME参与器官捐赠，以解决在等待挽救生命的器官移植时死亡的BAME患者人数不成比例的问题。这些运动中的叙述援引了种族、遗传和疾病之间的联系，往往忽视了结构和制度不平等在造成移植患者不平等方面所起的作用。拟议的研究项目旨在探讨在英国的种族和器官捐赠的叙事，以解决以下研究问题：如何在英国的种族和器官捐赠的话语唤起慷慨和亲属关系的概念，塑造BAME的身份和社区意识？透过生物文化的透镜，本研究将考虑治理形式如何在BAME个人和社区中产生特定的主体性。特别关注亲属关系和慷慨的想法允许考虑个人之间的关系，在这个领域的现有研究集中在生产的主题或社区。为了回答研究问题，本项目将使用话语和内容分析以及访谈。这一点的关键将是发展对移植医学领域科学叙述的理解，因为这对于探索其社会影响至关重要。还将与BAME个人进行焦点小组讨论，以探索活动的接受情况以及个人如何参与生物文化。

This PhD proposal outlines a project that aims to explore the dynamics around race and organ donation in the UK. Many recent campaigns produced by the NHS and other organisations have focused on increasing BAME participation in organ donation to address disproportionate numbers of BAME patients who die while awaiting life-saving organ transplants. The narratives in these campaigns invoke linkages between ideas around race, genetics, and disease, and often ignore the role that structural and institutional inequality has to play in producing inequalities for transplant patients. The proposed research project aims to explore narratives around race and organ donation in the UK to address the following research question: how do discourses around race and organ donation in the UK evoke notions of generosity and kinship to shape BAME identities and sense of community? Through the lens of bio-cultures, this research will consider how forms of governance produce particular subjectivities in BAME individuals andcommunities. Focusing specifically on ideas around kinship and generosity allows for a consideration of relations between individuals, where existing research in this field focuses on the production of subjects or communities. To answer the research question, this project will use discourse and content analysis and interviews. Key to this will be developing an understanding of the scientific narratives in the field of transplant medicine, as this is essential for exploring their social ramifications. Focus groups will also be conducted with BAME individuals to explore how the campaigns are received, and how individuals engage within biocultures.