Communic-Aid

通讯援助

• 批准号: 7393942
• 负责人: CYNTHIA D BAKER
• 金额: $ 10万
• 依托单位: DANYA INTERNATIONAL, INC.
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-04-10 至 2009-04-09
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7393942
• 关键词: Anxiety; Awareness; Books; Caring; Cessation of life; Child; Childhood; Clinical; Communication; Development; Effectiveness; Environment; Evaluation; Face; Family; Family member; Feasibility Studies; Field Reports; Film; Focus Groups; Goals; Health Personnel; Hospice Care; Hospitals; Institute of Medicine (U.S.); Institution; International; Intervention; Life; Life Experience; Literature; Medical; Multimedia; Needs Assessment; Palliative Care; Pamphlets; Parents; Pediatric Hospitals; Pediatric Nurse Specialist; Phase; Principal Investigator; Professional counselor; Provider; Psychologist; Purpose; Quality of life; Regrets; Research; Research Personnel; Research Project Grants; Research Proposals; Resources; School-Age Population; Services; Siblings; Small Business Innovation Research Grant; Social Workers; Structure; Suggestion; Taxes; Techniques; Therapeutic; Work; advocacy organizations; base; coping; design; guidebooks; hospice environment; improved; innovation; member; prevent; programs; prototype; tool

DESCRIPTION (provided by applicant): In this Phase I SBIR grant, Danya International, Inc., proposes the development and evaluation of the Communic-Aid program, a practical, innovative, and comprehensive resource for parents, group facilitators, and direct care providers to support engagement of family communication with a school-age child with a life threatening illness (LTI). Parents of children with LTI face many significant and important questions; one of these questions-should I, or should I not, talk about death with my child?-is the central concern of this proposed work. Therefore, the goal of this project is to develop and evaluate a family-centered intervention that will increase positive communication among family members about LTIs, death, and dying. The proposed product will be designed as a multimedia program, including: a parent guidebook that can be used as a self directed support tool by parents or as a facilitator-led, group-based tool; a children's activity book; a video/DVD; an accompanying booklet for institutions and direct care providers; and a facilitator's guide for providers (e.g., child life specialists, pediatric nurses, psychologists, social workers) implementing the program in a group setting. During the Phase I period, the research team will complete intensive formative research through input from our partners, Content Advisors and Advisory Panel members; a needs assessment with various hospice and hospital programs; and formative research focus groups with parents. Content will be developed for the first two modules, "In the Beginning" and "Collaborating with Medical Teams," of the parent guidebook. Outlines for the child's activity book and the provider facilitator's guide will also be developed. A feasibility study will be conducted to determine the appropriateness and viability of the prototype. Phase II will involve the completion of content for the parent guidebook and child activity book, filming the video/DVD component, development and completion of the provider booklet and facilitator's guide, as well as a full-scale evaluation of the Communic-Aid product to assess its effectiveness in improving family communication. Open family communication is a critical and widely recommended support mechanism for families enduring the difficulty of LTIs in children. This practical and innovative program will fill an unmet need in the pediatric hospice and palliative care field.

描述（由申请人提供）：在第一阶段SBIR拨款中，丹亚国际有限公司提议开发和评估沟通援助项目，这是一个实用、创新和全面的资源，为父母、团体促进者和直接护理提供者提供支持，以参与与患有危及生命疾病（LTI）的学龄儿童的家庭沟通。LTI患儿的父母面临许多重要的问题；其中一个问题——我是否应该和我的孩子谈论死亡？——是这项工作的中心问题。因此，该项目的目标是开发和评估以家庭为中心的干预措施，以增加家庭成员之间关于lti、死亡和临终的积极沟通。拟议的产品将被设计成一个多媒体程序，包括：家长指南，可作为家长自我指导的支持工具或作为辅导员领导的、以小组为基础的工具；儿童活动手册；一个视频/ DVD;附赠给机构和直接护理提供者的小册子；以及为在小组环境中实施该计划的提供者（如儿童生活专家、儿科护士、心理学家、社会工作者）提供的协调人指南。