Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disor

照顾照顾者：支持自闭症谱系障碍患者的照顾者

• 批准号: 7881745
• 负责人: CYNTHIA D BAKER
• 金额: $ 41.92万
• 依托单位: DANYA INTERNATIONAL, INC.
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-07-01 至 2012-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7881745
• 关键词: Adolescent; Adult; Age; Anxiety; Autistic Disorder; Award; Caregiver Burden; Caregivers; Caring; Child; Child Advocacy; Chronic Disease; Clinical Services; Collaborations; Communities; Community Services; Contracts; Coping Skills; Development; Development Plans; Diagnosis; Educational Curriculum; Educational Materials; Educational process of instructing; Effectiveness; Emotional Stress; Ensure; Evaluation; Family; Feasibility Studies; Feedback; Feeling; Film; Fright; Funding; Goals; Guilt; Individual; International; Longevity; Medical center; Mental disorders; Methods; Multimedia; National Institute of Mental Health; Parents; Persons; Phase; Program Effectiveness; Research; Research Contracts; Research Project Grants; Role; Schools; Self Efficacy; Services; Small Business Innovation Research Grant; Stress; Structure; Symptoms; Target Populations; Targeted Research; Techniques; Testing; Training; Work; autism spectrum disorder; base; coping; coping mechanism; design; disability; experience; flexibility; innovation; meetings; member; multidisciplinary; product development; programs; prototype; psychoeducational; public health relevance; response; skills; stress management; stressor; tool; web site; young adult

DESCRIPTION (provided by applicant): Danya International, Inc. (Danya), proposes to continue development of Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disorders (CFC), an innovative, multimedia curriculum designed to support individuals caring for someone with Autism Spectrum Disorders (ASD). A large body of research targets stress reduction and coping skills in caregivers of persons with chronic illnesses and mental disorders. However, little research has yet to be applied to caregivers of individuals with ASD. To meet the needs of autism caregivers, Danya will develop a modular facilitator's guide, workbook, accompanying audiovisual program, Caregiver Connection Web site, and training materials for professionals and paraprofessionals to educate and inform autism caregivers about coping with common stressors associated with providing care for an individual with autism across the lifespan. The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms. In Phase II, formative research with key autism organizations, expert Advisory Panel members, caregivers, professionals, and paraprofessionals will help to refine the remaining content of the CFC materials. The CFC curriculum will be completed, including the finalization of the facilitator's guide, workbook, audiovisual program, Web site, and training materials. A full- scale evaluation of the entire CFC product will then be conducted with representative caregiver users. Given our established relationships with autism community partners, as well as the progress of the Phase I project, we anticipate CFC will be a unique and engaging product for caregivers that provides needed tools and strategies to reduce caregiver burden and increase caregivers' use of effective coping skills. PUBLIC HEALTH RELEVANCE: The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms.

描述（由申请人提供）： Danya International, Inc. (Danya) 建议继续开发“照顾照顾者：支持自闭症谱系障碍患者 (CFC)”的照顾者，这是一门创新的多媒体课程，旨在支持照顾自闭症谱系障碍 (ASD) 患者的个人。大量研究的目标是减轻慢性病和精神障碍患者的护理人员的压力和应对技能。然而，目前还没有多少研究应用于自闭症谱系障碍患者的护理人员。为了满足自闭症护理人员的需求，Danya 将开发模块化辅导员指南、工作簿、随附的视听程序、护理人员连接网站以及针对专业人员和辅助专业人员的培训材料，以教育和告知自闭症护理人员如何应对与为自闭症患者提供终身护理相关的常见压力源。 CFC 的总体目标是为自闭症谱系障碍患者的整个生命周期的护理人员创建创新的心理教育课程，重点关注以问题为中心的减压策略和应对技能。通过使用 CFC，目的是让护理人员提高与应对技能相关的自我效能，同时通过有效的应对机制降低压力和负担。在第二阶段，与主要自闭症组织、专家顾问小组成员、护理人员、专业人员和辅助专业人员进行的形成性研究将有助于完善 CFC 材料的其余内容。 CFC 课程即将完成，包括主持人指南、练习册、视听节目、网站和培训材料的定稿。然后，将与具有代表性的护理人员用户一起对整个 CFC 产品进行全面评估。鉴于我们与自闭症社区合作伙伴建立的关系以及第一阶段项目的进展，我们预计 CFC 将成为护理人员独特且有吸引力的产品，它提供所需的工具和策略，以减轻护理人员的负担并提高护理人员对有效应对技能的使用。公共卫生相关性：CFC 的总体目标是为自闭症谱系障碍患者整个生命周期的护理人员创建创新的心理教育课程，重点关注以问题为中心的减压策略和应对技能。通过使用 CFC，目的是让护理人员提高与应对技能相关的自我效能，同时通过有效的应对机制降低压力和负担。