Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disor

照顾照顾者：支持自闭症谱系障碍患者的照顾者

• 批准号: 7881745
• 负责人: CYNTHIA D BAKER
• 金额: $ 41.92万
• 依托单位: DANYA INTERNATIONAL, INC.
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-07-01 至 2012-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7881745
• 关键词: Adolescent; Adult; Age; Anxiety; Autistic Disorder; Award; Caregiver Burden; Caregivers; Caring; Child; Child Advocacy; Chronic Disease; Clinical Services; Collaborations; Communities; Community Services; Contracts; Coping Skills; Development; Development Plans; Diagnosis; Educational Curriculum; Educational Materials; Educational process of instructing; Effectiveness; Emotional Stress; Ensure; Evaluation; Family; Feasibility Studies; Feedback; Feeling; Film; Fright; Funding; Goals; Guilt; Individual; International; Longevity; Medical center; Mental disorders; Methods; Multimedia; National Institute of Mental Health; Parents; Persons; Phase; Program Effectiveness; Research; Research Contracts; Research Project Grants; Role; Schools; Self Efficacy; Services; Small Business Innovation Research Grant; Stress; Structure; Symptoms; Target Populations; Targeted Research; Techniques; Testing; Training; Work; autism spectrum disorder; base; coping; coping mechanism; design; disability; experience; flexibility; innovation; meetings; member; multidisciplinary; product development; programs; prototype; psychoeducational; public health relevance; response; skills; stress management; stressor; tool; web site; young adult

DESCRIPTION (provided by applicant): Danya International, Inc. (Danya), proposes to continue development of Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disorders (CFC), an innovative, multimedia curriculum designed to support individuals caring for someone with Autism Spectrum Disorders (ASD). A large body of research targets stress reduction and coping skills in caregivers of persons with chronic illnesses and mental disorders. However, little research has yet to be applied to caregivers of individuals with ASD. To meet the needs of autism caregivers, Danya will develop a modular facilitator's guide, workbook, accompanying audiovisual program, Caregiver Connection Web site, and training materials for professionals and paraprofessionals to educate and inform autism caregivers about coping with common stressors associated with providing care for an individual with autism across the lifespan. The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms. In Phase II, formative research with key autism organizations, expert Advisory Panel members, caregivers, professionals, and paraprofessionals will help to refine the remaining content of the CFC materials. The CFC curriculum will be completed, including the finalization of the facilitator's guide, workbook, audiovisual program, Web site, and training materials. A full- scale evaluation of the entire CFC product will then be conducted with representative caregiver users. Given our established relationships with autism community partners, as well as the progress of the Phase I project, we anticipate CFC will be a unique and engaging product for caregivers that provides needed tools and strategies to reduce caregiver burden and increase caregivers' use of effective coping skills. PUBLIC HEALTH RELEVANCE: The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms.

描述（由申请人提供）：丹亚国际有限公司（简称丹亚）提议继续开发“关爱关爱者：支持自闭症谱系障碍患者的关爱者”（CFC）课程，这是一个创新的多媒体课程，旨在支持照顾自闭症谱系障碍（ASD）患者的个人。大量的研究针对慢性疾病和精神障碍患者护理人员的减压和应对技能。然而，很少有研究应用于自闭症患者的护理人员。为了满足自闭症护理人员的需求，Danya将为专业人士和辅助专业人士开发一个模块化的辅导员指南、工作手册、配套的视听节目、护理人员联系网站和培训材料，以教育和告知自闭症护理人员如何应对与终身护理自闭症患者相关的常见压力因素。CFC的总体目标是为ASD患者的护理人员创建一个创新的心理教育课程，该课程以以问题为中心的减压策略和应对技能为中心。通过使用CFC，目的是提高照顾者应对技能的自我效能感，同时通过有效的应对机制降低他们的压力和负担率。在第二阶段，与主要自闭症组织、专家咨询小组成员、护理人员、专业人员和辅助专业人员的形成性研究将有助于完善CFC材料的剩余内容。CFC课程将完成，包括引导者指南、练习册、视听节目、网站和培训材料的最后定稿。然后将与具有代表性的护理人员一起对整个氟氯化碳产品进行全面评估。鉴于我们与自闭症社区合作伙伴建立的关系，以及第一阶段项目的进展，我们预计CFC将成为一款独特而引人入胜的产品，为护理人员提供所需的工具和策略，以减轻护理人员的负担，并提高护理人员有效应对技能的使用。公共卫生相关性：CFC的总体目标是为ASD患者的护理人员创建一个创新的心理教育课程，该课程以问题为中心的减压策略和应对技巧为中心。通过使用CFC，目的是提高照顾者应对技能的自我效能感，同时通过有效的应对机制降低他们的压力和负担率。