Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disor

照顾照顾者：支持自闭症谱系障碍患者的照顾者

• 批准号: 7881745
• 负责人: CYNTHIA D BAKER
• 金额: $ 41.92万
• 依托单位: DANYA INTERNATIONAL, INC.
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-07-01 至 2012-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7881745
• 关键词: Adolescent; Adult; Age; Anxiety; Autistic Disorder; Award; Caregiver Burden; Caregivers; Caring; Child; Child Advocacy; Chronic Disease; Clinical Services; Collaborations; Communities; Community Services; Contracts; Coping Skills; Development; Development Plans; Diagnosis; Educational Curriculum; Educational Materials; Educational process of instructing; Effectiveness; Emotional Stress; Ensure; Evaluation; Family; Feasibility Studies; Feedback; Feeling; Film; Fright; Funding; Goals; Guilt; Individual; International; Longevity; Medical center; Mental disorders; Methods; Multimedia; National Institute of Mental Health; Parents; Persons; Phase; Program Effectiveness; Research; Research Contracts; Research Project Grants; Role; Schools; Self Efficacy; Services; Small Business Innovation Research Grant; Stress; Structure; Symptoms; Target Populations; Targeted Research; Techniques; Testing; Training; Work; autism spectrum disorder; base; coping; coping mechanism; design; disability; experience; flexibility; innovation; meetings; member; multidisciplinary; product development; programs; prototype; psychoeducational; public health relevance; response; skills; stress management; stressor; tool; web site; young adult

DESCRIPTION (provided by applicant): Danya International, Inc. (Danya), proposes to continue development of Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disorders (CFC), an innovative, multimedia curriculum designed to support individuals caring for someone with Autism Spectrum Disorders (ASD). A large body of research targets stress reduction and coping skills in caregivers of persons with chronic illnesses and mental disorders. However, little research has yet to be applied to caregivers of individuals with ASD. To meet the needs of autism caregivers, Danya will develop a modular facilitator's guide, workbook, accompanying audiovisual program, Caregiver Connection Web site, and training materials for professionals and paraprofessionals to educate and inform autism caregivers about coping with common stressors associated with providing care for an individual with autism across the lifespan. The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms. In Phase II, formative research with key autism organizations, expert Advisory Panel members, caregivers, professionals, and paraprofessionals will help to refine the remaining content of the CFC materials. The CFC curriculum will be completed, including the finalization of the facilitator's guide, workbook, audiovisual program, Web site, and training materials. A full- scale evaluation of the entire CFC product will then be conducted with representative caregiver users. Given our established relationships with autism community partners, as well as the progress of the Phase I project, we anticipate CFC will be a unique and engaging product for caregivers that provides needed tools and strategies to reduce caregiver burden and increase caregivers' use of effective coping skills. PUBLIC HEALTH RELEVANCE: The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms.

描述（由申请人提供）：Danya International，Inc。（Danya），建议继续开发照顾者：自闭症谱系障碍患者的护理人员（CFC）（CFC），这是一种创新的，创新的多媒体课程，旨在支持为患有自闭症谱系谱系障碍的人提供护理的个人（ASD）。大量的研究目标是减轻压力和应对慢性疾病和精神疾病患者的护理人员的技能。但是，很少有研究尚未应用于ASD患者的护理人员。为了满足自闭症护理人员的需求，Danya将开发一个模块化的主持人指南，工作簿，随附的视听计划，护理人员连接网站以及针对专业人士和专业人士的培训材料，以教育和自闭症护理人员，以告知与为与自动抗体提供的共同压力相关的共同压力，以应对整个Lifespan的普通压力。 CFC的总体目标是为在整个生命周期中具有ASD的个人的护理人员创建创新的心理教育课程，该课程集中在以问题为中心的压力减少策略和应对技巧上。通过使用CFC，其目的是使护理人员提高与应对技能相关的自我效能感，同时通过有效的应对机制降低压力和负担。在第二阶段，与主要的自闭症组织，专家咨询小组成员，护理人员，专业人士和专业人士的形成性研究将有助于完善CFC材料的剩余内容。 CFC课程将完成，包括最终确定主持人指南，工作簿，视听计划，网站和培训材料。然后，将对代表的护理人员用户进行整个CFC产品的全面评估。鉴于我们与自闭症社区合作伙伴的建立关系以及第一阶段项目的进步，我们预计CFC将成为护理人员的独特而引人入胜的产品，这些产品提供了所需的工具和策略，以减轻护理人员负担并提高看护者对有效应对技能的使用。公共卫生相关性：CFC的总体目标是为在整个生命周期内拥有ASD的个人的护理人员创建创新的心理教育课程，该课程集中在以问题为中心的压力减少策略和应对能力上。通过使用CFC，其目的是使护理人员提高与应对技能相关的自我效能感，同时通过有效的应对机制降低压力和负担。