Improving Quality of Life and Quality of Care for Oncology Family Caregivers

提高肿瘤家庭护理人员的生活质量和护理质量

• 批准号: 7807580
• 负责人: BETTY R FERRELL
• 金额: $ 31.23万
• 依托单位: BECKMAN RESEARCH INSTITUTE/CITY OF HOPE
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-05-01 至 2015-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7807580
• 关键词: Address; Adult; American; Association of Community Cancer Centers; Attention; Cancer Center; Cancer Patient; Cancer Survivorship; Caring; Characteristics; Clinical; Collaborations; Communities; Complex; Comprehensive Cancer Center; Continuing Education; Continuity of Patient Care; Development; Discipline of Nursing; Education; Education Projects; Educational Activities; Educational Curriculum; Educational workshop; Evaluation; Faculty; Family; Family Caregiver; Goals; Grant; Health Educators; Health Personnel; Health Professional; Individual; Institutes; Institution; Literature; Longevity; Malignant Neoplasms; Medicine; Methods; Modeling; National Cancer Institute; Nurses; Nursing Education; Outcome; Pain management; Palliative Care; Palliative Care Nursing; Participant; Patients; Pediatric Oncology; Peer Review; Physicians; Process Measure; Professional Organizations; Provider; Psychologist; Psychology; Publications; Quality of Care; Quality of life; Research; Research Personnel; Social Work; Social Workers; Survivors; Training; Vulnerable Populations; base; cancer diagnosis; cancer education; cancer therapy; caregiving; cohort; college; end of life; evidence base; experience; improved; innovation; loved ones; oncology; patient home care; programs; psychologic; psychosocial; public health relevance; research to practice; skills; social; success; treatment center

DESCRIPTION (provided by applicant): The ultimate aim of this training proposal is to improve quality of care and quality of life for those impacted by a loved one's cancer across the trajectory of illness. This proposal uses a quality of life model (QOL) to address physical, social, psychological and spiritual concerns associated with cancer and its treatment. Family caregivers (FC), although profoundly impacted by a loved one's cancer diagnosis, have received only minimal attention by most healthcare providers who are focused primarily upon the physical needs of the patient. The primary aim of this proposal is to develop and implement a national education program on family caregiving in cancer and this will be achieved through four annual workshops for two professionals each from 50 cancer treatment centers (total of N=400). Additional dissemination methods and an extensive evaluation will provide a basis for the continuing education of health care professionals beyond the project period. Specific Aims include: 1. Develop a comprehensive FC curriculum for training an interdisciplinary professional audience from cancer centers. The professional audience will include nurses, physicians and social workers as a first tier, and chaplains, psychologists, health educators and other professionals as a second tier. 2. Implement the Family Caregiving curriculum in national workshops to competitively selected staff from National Cancer Institute-designated clinical and comprehensive cancer centers, and community cancer centers as identified through the Association of Community Cancer Centers (ACCC). 3. Evaluate the impact of this curriculum by measuring process and outcomes of the educational activities on family caregivers and change-efforts initiated by the participants that impact family caregivers. 4. Disseminate the findings through peer-reviewed publications, various oncology organizations and professional networks and develop a network of course participants to share experiences in dissemination of the FC curriculum to the staff of participating cancer centers. Describe successes and issues related to dissemination of project actions in cancer centers in terms of the characteristics of individual course participants, interdisciplinary teams, and institutions. This proposal is consistent with the NCI Cancer Plan for 2008 strategic goal to "Improve the Quality of Life for Cancer Patients, Survivors and their families". PUBLIC HEALTH RELEVANCE: The ultimate aim of this training proposal is to improve quality of care and quality of life for family caregivers impacted by a loved one's cancer across the trajectory of illness. The primary aim of this proposal is to develop and implement a national education program on family caregiving in cancer and this will be achieved through four annual workshops for two professionals each from 50 cancer treatment centers. Thus a total of 400 participants is planned. Additional dissemination methods and an extensive evaluation will provide a basis for the continuing education of health care professionals beyond the project period.

描述（由申请人提供）：本培训提案的最终目的是提高那些在整个疾病过程中受亲人癌症影响的人的护理质量和生活质量。该提案使用生活质量模型（QOL）来解决与癌症及其治疗相关的身体、社会、心理和精神问题。尽管家庭护理人员 (FC) 受到亲人癌症诊断的深刻影响，但大多数医疗保健提供者仅给予很少的关注，他们主要关注患者的身体需求。该提案的主要目的是制定和实施一项关于癌症家庭护理的国家教育计划，这将通过为 50 个癌症治疗中心（总共 N = 400）的两名专业人员举办四次年度研讨会来实现。额外的传播方法和广泛的评估将为项目期结束后医疗保健专业人员的继续教育提供基础。具体目标包括： 1. 开发全面的 FC 课程，用于培训癌症中心的跨学科专业受众。第一层的专业观众包括护士、医生和社会工作者，第二层的包括牧师、心理学家、健康教育工作者和其他专业人士。 2. 在国家讲习班中向来自国家癌症研究所指定的临床和综合癌症中心以及社区癌症中心协会 (ACCC) 确定的社区癌症中心竞争性选拔的工作人员实施家庭护理课程。 3. 通过衡量教育活动对家庭照顾者的过程和结果以及参与者发起的影响家庭照顾者的变革努力来评估本课程的影响。 4. 通过同行评审出版物、各种肿瘤学组织和专业网络传播研究结果，并建立课程参与者网络，向参与癌症中心的工作人员分享传播 FC 课程的经验。根据个体课程参与者、跨学科团队和机构的特征，描述与癌症中心项目行动传播相关的成功和问题。 该提案与2008年NCI癌症计划“改善癌症患者、幸存者及其家人的生活质量”的战略目标一致。 公共卫生相关性：本培训提案的最终目标是提高受亲人癌症影响的家庭护理人员的护理质量和生活质量。该提案的主要目的是制定和实施一项关于癌症家庭护理的国家教育计划，这将通过为 50 个癌症治疗中心的两名专业人员举办四次年度研讨会来实现。因此计划总共有 400 名参与者。额外的传播方法和广泛的评估将为项目期结束后医疗保健专业人员的继续教育提供基础。