Archiving NHANES: Enhancing Biosocial Research Opportunities

归档 NHANES：增加生物社会研究机会

• 批准号: 7769483
• 负责人: JAMES W MCNALLY
• 金额: $ 15.68万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-03-01 至 2012-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7769483
• 关键词: Access to Information; Address; African American; Age; Aging; Archives; Attention; Behavior Therapy; Benchmarking; Bibliography; Biological; Biological Markers; Biological Preservation; Biosocial; Characteristics; Child; Clinical Data; Collaborations; Collection; Communities; Complex; Data; Data Collection; Data Files; Data Quality; Development; Discipline; Documentation; Economics; Environment; Evaluation; Extensible Markup Language; Foundations; Funding; Generations; Goals; Health; Health Policy; Health Status; Health behavior; Individual; Infant; Internet; Laboratories; Leadership; Life; Light; Link; Literature; Measures; Mediating; Medical; Metadata; Mexican Americans; Minority; Modeling; National Health and Nutrition Examination Survey; Nature; Nutritional; Obesity; Online Systems; Outcome; Play; Population; Population Group; Publications; Questionnaires; Recording of previous events; Request for Applications; Research; Research Design; Research Infrastructure; Research Personnel; Research Project Grants; Resources; Role; Sampling; Scientist; Services; Social Impacts; Social Interaction; Stress; Structure; Surveys; System; Systems Analysis; Technology; Testing; Time; United States; United States National Center for Health Statistics; Update; Work; aged; base; comparative; computerized; data management; data structure; design; file format; health disparity; indexing; insight; interest; medical examination; meetings; mortality; nutrition; public health relevance; research study; social; statistics; tool; trend; user-friendly

DESCRIPTION (provided by applicant): This application requests funds to support work by NACDA in the development of enhanced archival research materials and extraction tools that facilitate the use of the NHANES study. The current application focuses on core enhancements that will establish a archival framework using the five most recent NHANES panels (1999 to 2008), creating a more uniform data collection and performing a thorough evaluation of historical documentation and related metadata that are not currently part of the NHANES public use files but could facilitate original research and grant development. NACDA has supported the NHANES since the mid-1980's but the evolving nature of the study requires we reevaluate our existing archival model. A recent evaluation of data quality has identified specific enhancements that will make the data more accessible for secondary research and introduce it to a broad new community of researchers. We propose to implement a focused archival delivery system that will allow us to address four distinct research needs: 1) Enhancements to Data Structure: We will update and standardize the NHANES data to meet current archival standards for biomedical data collections. 2) Enhancements to Documentation: We will significantly enhance the extensive documentation currently available for the NHANES. This will include user- friendly versions of codebooks, crosswalks, and cross-indexing questionnaires and other survey instruments. More importantly, we will create dynamic link driven online documentation files for the NHANES using XML, DDI compliant file format standards. 3) Enhancements to Biomedical Data Content: We will review the NHANES collection of biomedical, laboratory and clinical data files and dynamically link the data fields to their associated documentation for straightforward reference. These files represent the strength and core value of NHANES study but are difficult for researcher new to biomedical and biosocial research to use effectively. 4) Enhancements to Value Added Support Services: We will provide the NHANES a full suite of support tools and value added products. Included in this suite of tools will be analysis ready system files, the capacity to use the NHANES within our web-based analysis system and the studies inclusion in our dynamic online bibliography that is searchable and has stable links to all electronically available publications. PUBLIC HEALTH RELEVANCE: Project Narrative This work addresses the organization of research data to provide access to and information on biological and medical indicators of health and make it more accessible to social scientists. The project will help researchers develop original research that studies the impacts of medical tests, obesity and other health factors on the lives of individuals and how their demographic, economic and educational characteristics impact health outcomes.

描述（由申请人提供）：本申请要求资金支持NACDA在开发增强档案研究材料和提取工具方面的工作，以促进NHANES研究的使用。目前的申请侧重于核心增强功能，将使用最近的五个NHANES小组（1999年至2008年）建立一个档案框架，创建一个更统一的数据收集，并对历史文档和相关元数据进行彻底评估，这些文档和元数据目前不是NHANES公共使用文件的一部分，但可以促进原始研究和拨款开发。NACDA自20世纪80年代中期以来一直支持NHANES，但研究的演变性质要求我们重新评估现有的档案模型。最近对数据质量的评估已经确定了具体的改进，这些改进将使数据更容易用于二级研究，并将其介绍给广泛的新研究群体。我们建议实施一个集中的档案传递系统，这将使我们能够满足四个不同的研究需求：1)增强数据结构：我们将更新和标准化NHANES数据，以满足当前生物医学数据收集的档案标准。2)文件的增强：我们将显著增强目前可用于NHANES的大量文件。这将包括用户友好版本的代码本、人行横道、交叉索引问卷和其他调查工具。更重要的是，我们将使用XML、DDI兼容的文件格式标准为NHANES创建动态链接驱动的在线文档文件。3)增强生物医学数据内容：我们将审查NHANES收集的生物医学、实验室和临床数据文件，并将数据字段动态链接到相关文档，以便直接参考。这些文件代表了NHANES研究的优势和核心价值，但对于刚从事生物医学和生物社会研究的研究人员来说，难以有效利用。4)增强增值支持服务：我们将为NHANES提供全套支持工具和增值产品。这套工具将包括分析就绪的系统文件，在我们基于网络的分析系统中使用NHANES的能力，以及在我们的动态在线参考书目中包含的研究，这些书目是可搜索的，并且与所有电子出版物有稳定的链接。这项工作涉及研究数据的组织，以便提供有关健康的生物和医学指标的信息，并使社会科学家更容易获得这些数据。该项目将帮助研究人员开展原创性研究，研究医学检查、肥胖和其他健康因素对个人生活的影响，以及这些因素的人口、经济和教育特征如何影响健康结果。