HRQOL-enhancing ostomy self-management intervention for CRC survivors

提高 CRC 幸存者 HRQOL 的造口自我管理干预措施

基本信息

  • 批准号:
    7917405
  • 负责人:
  • 金额:
    $ 12.81万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2009
  • 资助国家:
    美国
  • 起止时间:
    2009-09-13 至 2014-01-31
  • 项目状态:
    已结题

项目摘要

DESCRIPTION (provided by applicant): Our aims are consonant with the NCI's strategic objective to improve the quality of life for cancer patients, survivors, and their families, as well as with the Institute of Medicine's Chronic Care Model, which seeks to transform what is currently a reactive health care system into one that keeps patients as healthy as possible through planning, proven strategies and management. Colorectal cancer (CRC) and other cancer patients who are required to undergo intestinal ostomies, face many obstacles in coping with their condition, not least of which is medical care that often does not meet their needs for effective training and information regarding self-care, clinical management, or psychological support. Ostomates and their families must engage in ostomy management, make behavioral changes, and adjust to the consequences of this condition. This may include a family member or friend becoming the principal caretaker. Preparation of the patient and their chosen caregiver is requisite to assure optimal HRQOL and functioning. Our primary aim is to recruit a group of community cancer patients through three community hospitals to test the feasibility, acceptability, and comprehensibility of a Chronic Care Ostomy Self-Management (CCOSM) Program facilitated by a certified ostomy care nurse (COCN) and trained peer-ostomate "buddies". Secondary aims are to: a) evaluate the patient- and caregiver-rated effectiveness of each session; b) obtain interventionists' estimates of the effectiveness of each session for each participant at the end of the sessions; c) use exit interviews to evaluate the acceptability of, and satisfaction with, the program; d) evaluate relationships and correlations between ostomy-specific HRQOL scores and both Activation (PAM) scale scores and Ways of Coping (WAYS) patterns and scores; e) measure CCOSM program costs and patient/family out of pocket expenses to participate in the program; and f) develop the infrastructure and strategy for a larger intervention study. Our long term objectives are to initiate a randomized, controlled, multi-site Chronic Care Ostomy Self-Management Program intervention study for CRC and other cancer survivors. The ultimate goal of this research is to develop an effective, satisfying and exportable system of care for CRC and other cancer patients with new intestinal stomas so that they can maintain their maximum HRQOL and functioning, using an evidence-based, clinically and cost-effective, sustainable ostomy-management program, incorporating "buddy" peers, along with patient and family education and support. Importantly, we will create the infrastructure for a larger intervention study. PUBLIC HEALTH RELEVANCE: The ultimate goal of this research is to develop an effective, satisfying and easily usable system of care for colorectal and other cancer patients with new fecal intestinal stomas so that they can maintain their maximum health-related quality of life and functioning, using an evidence-based, clinically and cost-effective, sustainable ostomy-management program, incorporating "buddy" peers, along with patient and family education and support. Our aims follow the National Cancer Institute's strategic objective to improve the quality of life for cancer patients, survivors, and their families, as well as with the Institute of Medicine's Chronic Care Model, which seeks to transform what is currently a reactive health care system into one that keeps patients as healthy as possible through planning, proven strategies and management.
描述(由申请人提供):我们的目标与NCI的战略目标一致,以提高癌症患者,幸存者及其家属的生活质量,以及与医学研究所的慢性病护理模式,旨在将目前的反应性医疗保健系统转变为通过规划,行之有效的策略和管理使患者尽可能健康的系统。结肠直肠癌(CRC)和其他需要接受肠造口术的癌症患者在应对其病情时面临许多障碍,其中最重要的是医疗护理往往不能满足他们对自我护理,临床管理或心理支持的有效培训和信息的需求。造口者及其家人必须参与造口管理,改变行为,并适应这种情况的后果。这可能包括家庭成员或朋友成为主要的照顾者。患者和他们选择的护理人员的准备是必要的,以确保最佳的HRQOL和功能。我们的主要目的是通过三家社区医院招募一组社区癌症患者,以测试慢性护理造口术自我管理(CCOSM)计划的可行性,可接受性和可理解性,该计划由经过认证的造口术护理护士(COCN)和训练有素的同行造口术“伙伴”提供便利。次要目标是:a)评估每个疗程的患者和患者评价的有效性; B)在疗程结束时,获得干预者对每个参与者的每个疗程的有效性的估计; c)使用离职面谈来评估该计划的可接受性和满意度; d)评价造口特异性HRQOL评分与激活(PAM)量表评分和应对方式(WAYS)之间的关系和相关性模式和分数; e)测量CCOSM计划成本和患者/家庭参与计划的自付费用;以及f)为更大的干预研究开发基础设施和策略。我们的长期目标是为CRC和其他癌症幸存者启动一项随机、对照、多中心慢性护理造口术自我管理计划干预研究。本研究的最终目标是开发一个有效的,令人满意的和可出口的系统的照顾CRC和其他癌症患者与新的肠造口,使他们能够保持其最大的HRQOL和功能,使用循证医学,临床和成本效益,可持续的造口管理计划,纳入“伙伴”的同行,沿着与病人和家庭的教育和支持。重要的是,我们将为更大规模的干预研究创建基础设施。公共卫生相关性:本研究的最终目标是开发一个有效的,令人满意的和易于使用的系统,为结直肠癌和其他癌症患者的新的粪便肠造口,使他们能够保持他们的最大健康相关的生活质量和功能,使用循证医学,临床和成本效益,可持续的造口管理计划,纳入“伙伴”的同龄人,沿着患者和家庭的教育和支持。我们的目标遵循国家癌症研究所的战略目标,以提高癌症患者,幸存者及其家属的生活质量,以及医学研究所的慢性病护理模式,该模式旨在将目前的反应性医疗保健系统转变为通过规划,经过验证的策略和管理尽可能保持患者健康的系统。

项目成果

期刊论文数量(1)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
Applying the Chronic Care Model to Support Ostomy Self-Management: Implications for Oncology Nursing Practice.
  • DOI:
    10.1188/16.cjon.20-03ap
  • 发表时间:
    2016-06-01
  • 期刊:
  • 影响因子:
    1.1
  • 作者:
    Ercolano E;Grant M;McCorkle R;Tallman NJ;Cobb MD;Wendel C;Krouse R
  • 通讯作者:
    Krouse R
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Robert Scott Krouse其他文献

Robert Scott Krouse的其他文献

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{{ truncateString('Robert Scott Krouse', 18)}}的其他基金

Ostomy Telehealth Self-management Training for Cancer Survivors
造口术远程医疗癌症幸存者自我管理培训
  • 批准号:
    10435133
  • 财政年份:
    2021
  • 资助金额:
    $ 12.81万
  • 项目类别:
Ostomy Telehealth Self-management Training for Cancer Survivors
造口术远程医疗癌症幸存者自我管理培训
  • 批准号:
    10368100
  • 财政年份:
    2019
  • 资助金额:
    $ 12.81万
  • 项目类别:
Ostomy Telehealth Self-management Training for Cancer Survivors
造口术远程医疗癌症幸存者自我管理培训
  • 批准号:
    9904567
  • 财政年份:
    2019
  • 资助金额:
    $ 12.81万
  • 项目类别:
Ostomy Telehealth Self-management Training for Cancer Survivors
造口术远程医疗癌症幸存者自我管理培训
  • 批准号:
    10620109
  • 财政年份:
    2019
  • 资助金额:
    $ 12.81万
  • 项目类别:
Prospective Comparative Effectiveness Trial for Malignant Bowel Obstruction
恶性肠梗阻的前瞻性比较有效性试验
  • 批准号:
    8642511
  • 财政年份:
    2013
  • 资助金额:
    $ 12.81万
  • 项目类别:
Prospective Comparative Effectiveness Trial for Malignant Bowel Obstruction
恶性肠梗阻的前瞻性比较有效性试验
  • 批准号:
    8930994
  • 财政年份:
    2013
  • 资助金额:
    $ 12.81万
  • 项目类别:
HRQOL-enhancing ostomy self-management intervention for CRC survivors
提高 CRC 幸存者 HRQOL 的造口自我管理干预措施
  • 批准号:
    7738212
  • 财政年份:
    2009
  • 资助金额:
    $ 12.81万
  • 项目类别:
HR-QOL in Colorectal Cancer Survivors with Stomas
有造口的结直肠癌幸存者的 HR-QOL
  • 批准号:
    7124370
  • 财政年份:
    2004
  • 资助金额:
    $ 12.81万
  • 项目类别:
HR-QOL in Colorectal Cancer Survivors with Stomas
有造口的结直肠癌幸存者的 HR-QOL
  • 批准号:
    7276520
  • 财政年份:
    2004
  • 资助金额:
    $ 12.81万
  • 项目类别:
HR-QOL in Colorectal Cancer Survivors with Stomas
有造口的结直肠癌幸存者的 HR-QOL
  • 批准号:
    7114397
  • 财政年份:
    2004
  • 资助金额:
    $ 12.81万
  • 项目类别:

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