Mind-Body E-Portal: A Practice-to-Research Platform for Consumer-Driven Wellness

身心电子门户：消费者驱动的健康实践研究平台

• 批准号: 7907509
• 负责人: Joel B Bennett
• 金额: $ 18.88万
• 依托单位: ORGANIZATIONAL WELLNESS & LEARNING SYS
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-08-01 至 2011-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7907509
• 关键词: Acupressure; Address; Adherence; Adult; Area; Behavior; Belief; Books; Budgets; Calendar; Chinese People; Chinese Traditional Medicine; Clinical Research; Clinical Trials; Communities; Complementary and alternative medicine; Computer software; Consult; Data; Data Analyses; Data Collection; Development; Diet; Effectiveness; Electronics; Elements; Evidence based program; Feedback; Foundations; Future; Goals; Growth; Health; Health Benefit; Health Care Costs; Health education; Healthcare; Herbal Medicine; Holistic Health; Individual; Informed Consent; Institute of Medicine (U.S.); Instruction; Internet; Knowledge; Learning; Link; Massage; Medical; Meditation; Meridians; Mind; Mind-Body Intervention; Modality; Modeling; Monitor; Motion; Movement; National Center for Complementary and Alternative Medicine; National Health Interview Survey; Outcome; Outcome Study; Outcomes Research; Paper; Pattern; Phase; Pilot Projects; Practice based research; Principal Investigator; Process; Production; Program Development; Protocols documentation; Provider; Prunella vulgaris; Public Health; Publishing; Qi Gong; Reaction; Recommendation; Regulation; Relaxation; Reporting; Research; Resources; Review Literature; Scientist; Self Assessment; Self Care; Sentinel; Sentinel Surveillance; Services; Site; Small Business Innovation Research Grant; Social Network; Social support; Surveys; Symptoms; System; Tai Ji; Testing; United States National Institutes of Health; Voice; Wellness Program; Work; base; body-mind; career; design; evidence base; experience; falls; innovation; interest; meetings; neglect; novel strategies; practice-based research network; preference; programs; prototype; public health relevance; research to practice; self help; software development; systems research; teacher; theories; tool

DESCRIPTION (provided by applicant): This Phase I project has two long-term and interrelated objectives. Both pertain to developing an evidence- based program in holistic wellness and a practice-based research community for the study of complementary and alternative medicine (CAM). First, we seek to build, test, and disseminate an Internet-based wellness program that gives instruction, guidance, and social support for the self-care practice of Qigong (pronounced "chee-gong") - a form of meditative movement, relaxation, and self-massage based in Traditional Chinese Medicine and showing positive health effects in clinical trials research. Second, the program will function as a research tool, collecting user information (following informed consent) about health and Qigong practices and monitor the impact of practice. The need for this program is based on growing popular interest in Qigong, evidence for its effectiveness, limited research on consumer-driven CAM practices, expansion of the Internet (including social networking) for CAM, and growth in whole-systems research. As a commercial product, the program will include self-assessments, access to practice modules that address issues identified in assessments, social networking, coaching, planning (a calendar), and other resources. The program has the potential to address two Institute of Medicine (2005) recommendations for CAM, to develop (1) a sentinel surveillance system composed of sites that collect data on patterns of CAM and (2) practice-based CAM research networks. The current project has three aims: (Aim 1) Develop a prototype with easy to use, health instruction tools. The prototype will present Qigong in ways that address concerns users identify via a dynamic self-assessment tool. Phase I will develop a tool prototype, including display of feedback and links to Qigong practices. (Aim 2) Pilot test the program by obtaining reactions from novice (n=30) and more advanced (n=30) Qigong practitioners. Users will rate program content, knowledge gained, and potential for the program to enhance health. (Aim 3) Utilize pilot test findings to identify revisions for Phase II production. The project team includes an advanced teacher of Qigong whose career includes more than 30 years of practice experience, authoring books on Qigong, and service as a national advisor on Qigong. Consultants include scientists from the field of CAM and an expert in e-learning, all of whom will advise on program design and interpretation of Phase I findings. The Principal Investigator (with an established track record in evidence-based wellness research) has worked previously with the software development group in building e-health protocols. The PI, software group, and Qigong teacher have laid out very specific plans/milestones for prototype development. The pilot study is designed to yield a rich set of survey data for analysis and Phase II full-program development. This includes preliminary evidence regarding who might be the best candidates for such a program (beginners versus advanced users, or those with particular symptom profiles) and what its effects might be, which will be vital to planning future clinical research. Phase I plans include publishing results from these analyses. PUBLIC HEALTH RELEVANCE: Many individuals use holistic (mind-body) wellness practices for health care in complementary and alternative medicine (CAM) without consulting professionals and little is known about the contexts, processes, and outcomes of such self-care behavior. The proposed project is relevant to public health in aiming to understand these processes while also promoting CAM practices known to have positive health impact. The project will develop a highly interactive, Internet-based learning tool to present Simple Qigong practices (gentle movement, relaxation, and self-massage) from Traditional Chinese Medicine. It will be designed to appeal to a wide group of users. Pilot data on practice and outcomes will advance knowledge of consumer-driven CAM.

描述（由申请人提供）：此第一期项目有两个长期且相互关联的目标。两者都涉及发展一个以证据为基础的整体健康计划和一个以实践为基础的研究社区，以研究补充和替代医学（CAM）。首先，我们寻求建立、测试和传播一个基于互联网的健康项目，为气功（发音为“chee-gong”）的自我保健实践提供指导、指导和社会支持。气功是一种冥想运动、放松和自我按摩的形式，基于传统中医，在临床试验研究中显示出积极的健康效果。其次，该项目将作为一个研究工具，收集用户关于健康和气功练习的信息（遵循知情同意），并监测练习的影响。对这个项目的需求是基于对气功日益增长的兴趣，其有效性的证据，消费者驱动的CAM实践研究有限，互联网（包括社交网络）的扩展，以及整体系统研究的增长。作为一个商业产品，该计划将包括自我评估、访问解决评估中确定的问题的实践模块、社交网络、指导、计划（日历）和其他资源。该计划有可能解决医学研究所（2005）对CAM的两项建议，即开发(1)一个由收集CAM模式数据的站点组成的哨点监测系统和(2)基于实践的CAM研究网络。目前的项目有三个目标：（目标1）开发一个易于使用的健康指导工具的原型。原型机将以解决用户通过动态自我评估工具识别的问题的方式呈现气功。第一阶段将开发一个工具原型，包括显示反馈和气功练习的链接。（目标2）通过获得新手（n=30）和高级气功练习者（n=30）的反应，对程序进行试点测试。用户将对节目内容、获得的知识以及节目增进健康的潜力进行评分。（目标3）利用中试结果确定第二阶段生产的修订。项目团队包括一位资深气功老师，从业30多年，撰写气功书籍，担任国家气功顾问。顾问包括来自CAM领域的科学家和电子学习专家，他们都将为项目设计和第一阶段研究结果的解释提供建议。首席研究员（在循证健康研究方面有良好的记录）以前曾与软件开发小组合作建立电子健康协议。PI、软件组和气功老师已经为原型开发制定了非常具体的计划/里程碑。该试点研究旨在为分析和二期全项目开发提供丰富的调查数据。这包括关于谁可能是这种程序的最佳候选人的初步证据（初学者与高级用户，或具有特定症状的用户）以及它可能产生的效果，这对规划未来的临床研究至关重要。第一阶段计划包括发布这些分析的结果。