Engaging Vulnerable Consumers in Developing Useful Public Healthcare Reports

让弱势消费者参与制定有用的公共医疗保健报告

• 批准号: 8450524
• 负责人: Daniel R Longo
• 金额: $ 34.8万
• 依托单位: VIRGINIA COMMONWEALTH UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-30 至 2015-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8450524
• 关键词: Engaging; Vulnerable; Consumers; Developing; Useful

DESCRIPTION (provided by applicant): Our objective is to build the scientific base for effective public reporting of healthcare quality by examining the nature, type and dissemination of public reports by engaging consumers in focus groups to identify their needs in healthcare decision-making. Consistent with the Patient Protection and Affordable Care Act of 2010, that aims to improve dissemination of measures of healthcare quality and resource use and as identified in the Agency for Healthcare Research and Quality's (AHRQ) request for applications, we intend to fill two of the major gaps in the public reporting evidence base identified by AHRQ through the engagement of subgroups of AHRQ's priority populations and Medicare beneficiaries. We will address the major gaps identified by AHRQ: "1) improve the design and presentation of public reports to meet the needs to consumers, and 2) increase consumer's use and the dissemination of public reports." Our application aims to help fill the gaps identified above through a qualitative developmental study that engages consumers in the Commonwealth of Virginia, most specifically vulnerable Medicare beneficiaries with type II diabetes: African Americans and Latinos compared with a White population. We will engage these target populations in focus groups to ask them about the role public reports of quality data may play in meeting their personal health care needs. Specifically we aim to determine: (1) How public reports can be designed to address the varying information needs of vulnerable populations as they make decisions for their personal health care including selection of health care providers - both physicians and hospitals. (2) How the content, design and dissemination of public reports can best reflect meaningful information that consumers would actually use in their personal decision-making. Our qualitative study design proposes two rounds of focus groups. The first round will focus on Aim 1 and the results will be used by project staff together with Virginia Health Information (VHI) developer of Virginia consumer reports, to develop public report templates and to identify themes, both of which will be relevant in the design of the round two focus groups, which will focus on Aim 2. Final study results will be used by VHI to develop a final public report to Virginia Medicare beneficiaries on type II diabetes; further we will disseminate project findings with the assistance of our national advisory committee to ensure wide scale dissemination beyond Virginia. PUBLIC HEALTH RELEVANCE: This study is critically important to building the science of public reporting of quality of care and empowering consumers with information that allows rating or comparison of providers according to performance standards of quality. Further it addresses the information needs of vulnerable priority populations identified by the Agency for Healthcare Research and Quality by focusing on Medicare beneficiaries with type 2 diabetes who are African American, Latino and White. This approach is critical because each of these populations likely have different needs and concerns related to the design, content and dissemination of public reports; previous research clearly indicates that "one size does not fit all" and must be taken into account with regard to the needs of various ethnic and racial populations.

描述(由申请人提供)：我们的目标是通过研究公共报告的性质、类型和传播，通过让消费者参与焦点小组来确定他们在医疗决策中的需求，为有效的公共报告医疗质量建立科学基础。根据2010年《患者保护和平价医疗法案》，该法案旨在改善医疗质量和资源使用措施的传播，并如医疗保健研究和质量机构(AHRQ)的申请请求所确定的那样，我们打算通过让AHRQ的优先人群和医疗保险受益人的子群体参与，来填补AHRQ确定的公共报告证据基础中的两个主要空白。我们将解决AHRQ发现的主要差距：“1)改进公共报告的设计和呈现，以满足消费者的需求；2)增加消费者对公共报告的使用和传播。”我们的应用程序旨在通过一项定性的发展研究帮助填补上述空白，该研究涉及弗吉尼亚州联邦的消费者，尤其是患有II型糖尿病的脆弱的联邦医疗保险受益人：非洲裔美国人和拉美裔美国人与白人人口相比。我们将让这些目标人群参加焦点小组，询问他们关于高质量数据的公共报告在满足他们的个人医疗保健需求方面可能起到的作用。具体来说，我们的目标是确定：(1)如何设计公共报告，以满足弱势群体在为其个人保健做出决策时的不同信息需求，包括选择保健提供者--包括医生和医院。(2)公共报告的内容、设计和传播如何最好地反映消费者在个人决策中实际使用的有意义的信息。我们的定性研究设计提出了两轮焦点小组。第一轮将集中于目标1，结果将由项目工作人员与弗吉尼亚州消费者报告的弗吉尼亚健康信息(VHI)开发者一起使用，以开发公共报告模板并确定主题，这两个主题都将与第二轮重点关注目标2的焦点小组的设计相关。VHI将利用最终研究结果向弗吉尼亚州联邦医疗保险受益人编制关于II型糖尿病的最终公开报告；此外，我们将在我们的国家咨询委员会的协助下传播项目结果，以确保在弗吉尼亚州以外的地区广泛传播。 公共卫生相关性：这项研究对于建立公共护理质量报告的科学和赋予消费者权力，使其能够根据质量绩效标准对提供者进行评级或比较，具有至关重要的意义。此外，它还通过侧重于患有2型糖尿病的非裔美国人、拉丁裔和白人的联邦医疗保险受益人，满足了医疗保健研究和质量机构确定的弱势优先人口的信息需求。这一做法至关重要，因为这些群体中的每一个人在设计、内容和传播公共报告方面可能都有不同的需要和关切；以前的研究明确表明，“一刀切”并不适合所有人，必须考虑到不同族裔和种族群体的需要。