Improving Quality of Life and Quality of Care for Oncology Family Caregivers

描述(由申请者提供)：本培训计划的最终目的是改善那些在疾病发展过程中受到亲人癌症影响的人的护理和生活质量。这项建议使用生活质量模型(QOL)来解决与癌症及其治疗相关的生理、社会、心理和精神问题。家庭照顾者(FC)尽管受到亲人癌症诊断的深刻影响，但大多数医疗保健提供者只得到了最少的关注，他们主要关注患者的身体需求。这项建议的主要目标是制定和实施一项关于癌症家庭护理的国家教育方案，这将通过为来自50个癌症治疗中心(总共400个)的两名专业人员举办四个年度讲习班来实现。更多的传播方法和广泛的评估将为保健专业人员在项目期后的继续教育提供基础。具体目标包括：1.为培养来自癌症中心的跨学科专业受众，开发一套全面的FC课程。专业观众将包括护士、医生和社会工作者作为第一层，牧师、心理学家、健康教育者和其他专业人员作为第二层。2.在国家讲习班中向国家癌症研究所指定的临床和综合癌症中心以及社区癌症中心协会(ACCC)确定的社区癌症中心的竞争性挑选的工作人员实施家庭护理课程。3.通过衡量教育活动对家庭照顾者的过程和结果以及参与者发起的影响家庭照顾者的变革努力，评估本课程的影响。4.通过同行评议的出版物、各种肿瘤学组织和专业网络传播研究结果，并建立课程参与者网络，以分享向参与的癌症中心的工作人员传播FC课程的经验。根据个别课程参与者、跨学科团队和机构的特点，描述与在癌症中心传播项目行动有关的成功和问题。 这项建议与NCI 2008年癌症计划的战略目标一致，即“改善癌症患者、幸存者及其家人的生活质量”。 公共卫生相关性：这项培训计划的最终目的是改善受亲人癌症影响的家庭照顾者的护理质量和生活质量。这项提议的主要目标是制定和实施一项关于癌症家庭护理的国家教育方案，这将通过为来自50个癌症治疗中心的两名专业人员各举办四次年度讲习班来实现。因此，计划总共有400人参加。更多的传播方法和广泛的评估将为保健专业人员在项目期后的继续教育提供基础。

DESCRIPTION (provided by applicant): The ultimate aim of this training proposal is to improve quality of care and quality of life for those impacted by a loved one's cancer across the trajectory of illness. This proposal uses a quality of life model (QOL) to address physical, social, psychological and spiritual concerns associated with cancer and its treatment. Family caregivers (FC), although profoundly impacted by a loved one's cancer diagnosis, have received only minimal attention by most healthcare providers who are focused primarily upon the physical needs of the patient. The primary aim of this proposal is to develop and implement a national education program on family caregiving in cancer and this will be achieved through four annual workshops for two professionals each from 50 cancer treatment centers (total of N=400). Additional dissemination methods and an extensive evaluation will provide a basis for the continuing education of health care professionals beyond the project period. Specific Aims include: 1. Develop a comprehensive FC curriculum for training an interdisciplinary professional audience from cancer centers. The professional audience will include nurses, physicians and social workers as a first tier, and chaplains, psychologists, health educators and other professionals as a second tier. 2. Implement the Family Caregiving curriculum in national workshops to competitively selected staff from National Cancer Institute-designated clinical and comprehensive cancer centers, and community cancer centers as identified through the Association of Community Cancer Centers (ACCC). 3. Evaluate the impact of this curriculum by measuring process and outcomes of the educational activities on family caregivers and change-efforts initiated by the participants that impact family caregivers. 4. Disseminate the findings through peer-reviewed publications, various oncology organizations and professional networks and develop a network of course participants to share experiences in dissemination of the FC curriculum to the staff of participating cancer centers. Describe successes and issues related to dissemination of project actions in cancer centers in terms of the characteristics of individual course participants, interdisciplinary teams, and institutions. This proposal is consistent with the NCI Cancer Plan for 2008 strategic goal to "Improve the Quality of Life for Cancer Patients, Survivors and their families". PUBLIC HEALTH RELEVANCE: The ultimate aim of this training proposal is to improve quality of care and quality of life for family caregivers impacted by a loved one's cancer across the trajectory of illness. The primary aim of this proposal is to develop and implement a national education program on family caregiving in cancer and this will be achieved through four annual workshops for two professionals each from 50 cancer treatment centers. Thus a total of 400 participants is planned. Additional dissemination methods and an extensive evaluation will provide a basis for the continuing education of health care professionals beyond the project period.