Improved support for regional and remote paediatric oncology families: a randomised controlled trial of videotelephony

改善对区域和偏远儿科肿瘤家庭的支持：视频电话随机对照试验

• 批准号: nhmrc : 455922
• 负责人: A/Pr Andrew Hallahan
• 金额: $ 20.33万
• 依托单位: The University of Queensland
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Project Grants
• 财政年份: 2007
• 资助国家: 澳大利亚
• 起止时间: 2007-01-01 至 2009-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/improved-support-regional-trial-videotelephony/99498
• 关键词: Improved; support; regional; remote; paediatric

Childhood cancer presents a major life stressor for the entire family. Significant changes to the everyday lives of families, practically, socially and emotionally cause major disruption. There is evidence that this disruption results in isolation and poor communication between family members, anxiety, low self-esteem and school problems for siblings and anxiety, post-traumatic stress symptoms and risk of depression for parents. Providing ongoing support to these families is an essential part of care. The Royal Children's Hospital (RCH) Paediatric Oncology Service in Brisbane is the major tertiary paediatric referral centre for Queensland, northern New South Wales and the southwest Pacific. A multidisciplinary team of medical, nursing, and allied health professionals provides care and support to children with cancer, as well as their families. Each year around 100 newly diagnosed patients are cared for. Around 60% of the families cared for by the service live in regional and remote areas. There are a number of challenges which inhibit the equitable provision of specialist health services to these areas including availability of health care professionals and accessibility due to distance, time, cost and transport. For paediatric oncology families, opportunities to receive support are limited. One possible solution is the use of online support mechanisms, such as videotelephony, to facilitate the provision of much needed support to patients, parents, siblings and the family as a whole. The objective of this research is to see if videotelephony can be used to support regional and remote families of the Royal Children's Hospital Paediatric Oncology Service providing indizidualised communication, education, counselling and monitoring. This will present a new and innovative use of videophone technology as well as a new method for supporting regional and remote oncology patients and their families.

儿童癌症是整个家庭的主要生活压力源。家庭日常生活在实际、社会和情感上的重大变化造成重大破坏。有证据表明，这种中断导致家庭成员之间的孤立和沟通不畅，兄弟姐妹的焦虑、自卑和学校问题，以及父母的焦虑、创伤后应激障碍症状和抑郁风险。为这些家庭提供持续的支持是护理的重要组成部分。位于布里斯班的皇家儿童医院儿科肿瘤服务是昆士兰州、北方新南威尔士州和西南太平洋地区的主要三级儿科转诊中心。一个由医疗、护理和专职医疗人员组成的多学科团队为癌症儿童及其家人提供护理和支持。每年约有100名新诊断的患者得到护理。该服务所照顾的家庭中约有60%生活在区域和偏远地区。有一些挑战阻碍了向这些地区公平提供专家保健服务，包括保健专业人员的可用性以及距离、时间、费用和交通造成的可及性。对于儿科肿瘤家庭，获得支持的机会有限。一个可能的解决办法是使用视频电话等在线支助机制，以便利向患者、父母、兄弟姐妹和整个家庭提供急需的支助。这项研究的目的是，看看视频电话是否可以用来支持区域和偏远家庭的皇家儿童医院儿科肿瘤服务提供indizidualised通信，教育，咨询和监测。这将提出一个新的和创新的使用视频电话技术，以及一个新的方法，为支持区域和远程肿瘤患者及其家属。