A National Collaborative Study of Community-Based Processes for Research Ethics R

描述(由申请人提供)：基于社区的参与性研究(CBPR)越来越多地被美国国立卫生研究院、研究人员和社区团体视为理解和解决种族、民族、社会经济和环境健康差距的关键。因此，希望在他们所服务或可以进入的社区进行研究的研究人员正在与更多的社区团体接洽，更多的社区团体正在发起自己的研究。越来越多的社区团体制定了确定是否参与或支持在其社区进行的研究的程序。我们之前的研究确定并描述了109个在美国各地运行的此类病毒，其中30个正在开发中。我们已经让参与我们先前研究的五个社区团体作为合作伙伴，对他们的研究审查过程进行了深入的案例研究。通过这样做，我们试图了解他们在研究审查中出现的研究道德和诚信问题，以及他们在确保在其社区进行的研究的道德和诚信方面所起的作用。通过查看案例研究，我们将确定社区团体、研究人员和研究机构可以实施的有前途的做法，以确保CBPR的道德和完整性。 公共卫生相关性：美国国立卫生研究院、研究人员和社区团体日益认识到，基于社区的参与性研究(CBPR)对于在组成美国的不同社区实现健康公平至关重要。我们的研究旨在帮助理解和确保CBPR的伦理和完整性，以确保未来的此类研究能够充分发挥其改善公共卫生的潜力。

DESCRIPTION (provided by applicant): Community-based participatory research (CBPR) is increasingly recognized by NIH, researchers and community groups as critical to understanding and addressing racial, ethnic, socioeconomic and environmental health disparities. As a result, more community groups are being approached by researchers who want to conduct research in the communities they serve or have access to, and more community groups are initiating their own research studies. A growing number of community groups have developed processes for determining whether to participate in or support a study that takes place in their community. Our prior study identified and described 109 of these operating across the United States and 30 in development. We have engaged five of the community groups that participated in our prior study as partners in conducting in-depth case studies of their research review processes. In doing so, we seek to understand the research ethics and integrity issues that arise in their research reviews, and their role in ensuring the ethics and integrity of the research conducted in their communities. By looking across the case studies, we will identify promising practices that community groups, researchers, and research institutions can put in place to ensure the ethics and integrity of CBPR. PUBLIC HEALTH RELEVANCE: Community-based participatory research (CBPR) is increasingly recognized by NIH, researchers and community groups as critical to achieving health equity across the diverse communities that comprise the United States. Our study seeks to help understand and ensure the ethics and integrity of CBPR, in order to ensure that such research in the future can reach its full potential to improve public health.