A National Collaborative Study of Community-Based Processes for Research Ethics R

描述（由申请人提供）：基于社区的参与式研究（CBPR）越来越被NIH、研究人员和社区团体认识到，对于理解和解决种族、民族、社会经济和环境健康差异至关重要。因此，希望在他们所服务的社区或有机会进入的社区进行研究的研究人员正在接触更多的社区团体，并且更多的社区团体正在启动他们自己的研究。越来越多的社区团体制定了决定是否参与或支持在其社区进行的研究的程序。我们之前的研究确定并描述了在美国运营的109个和正在开发的30个。我们邀请了参与我们先前研究的五个社区团体作为合作伙伴，对其研究审查过程进行深入的案例研究。在此过程中，我们试图了解在他们的研究评审中出现的研究伦理和诚信问题，以及他们在确保在其社区进行的研究的伦理和诚信方面的作用。通过查看案例研究，我们将确定有希望的实践，社区团体、研究人员和研究机构可以实施这些实践，以确保CBPR的道德和完整性。

DESCRIPTION (provided by applicant): Community-based participatory research (CBPR) is increasingly recognized by NIH, researchers and community groups as critical to understanding and addressing racial, ethnic, socioeconomic and environmental health disparities. As a result, more community groups are being approached by researchers who want to conduct research in the communities they serve or have access to, and more community groups are initiating their own research studies. A growing number of community groups have developed processes for determining whether to participate in or support a study that takes place in their community. Our prior study identified and described 109 of these operating across the United States and 30 in development. We have engaged five of the community groups that participated in our prior study as partners in conducting in-depth case studies of their research review processes. In doing so, we seek to understand the research ethics and integrity issues that arise in their research reviews, and their role in ensuring the ethics and integrity of the research conducted in their communities. By looking across the case studies, we will identify promising practices that community groups, researchers, and research institutions can put in place to ensure the ethics and integrity of CBPR.