Building, Implementing and Evaluating Cancer Supportive Care Programs

描述(由申请人提供)：有强有力的科学证据支持使用最近开发的干预措施来帮助患者应对癌症。然而，正如文献中所记载的那样，对于这些程序还没有足够的标准。拟议的培训计划将开始弥合缺乏有组织和协调良好的跨学科服务之间的差距，以及可能的差距，即为全面的支持性护理计划建立明确的基础设施，从而实现以患者为中心的卓越。然而，缺乏具有领导这种复杂计划的知识、技能和专业知识的卫生保健专业人员。拟议的R-25E将汇集16名在建立和监督成功的支持性护理计划方面拥有国际公认记录的教职员工，为总计约500名癌症保健专业人员举办为期3天的十个系列研讨会。医生、护士、社会工作者、心理学家、健康教育者和企业管理人员将被竞争性地挑选出来，参加一项独特的持续教育计划，该计划已被证明在实际改变专业实践方面是有效的。这些研讨会将在五年内每年举行两次，并将在希望之城和西奈山医疗中心交替提供。研讨会的目标是让学员了解并能够加强全面支持性关怀计划发展的方方面面。在小组学习模式和Grol等人的制度变革模型的指导下，教师将讨论对建立或改进新的或现有的支持性护理计划至关重要的主题。该计划的短期和长期影响将根据受训人员获得的知识和技能以及受训人员所在机构的支持性护理计划的发展或增长进行评估。总体目标：1.通过为卫生保健和行政管理专业人员举办培训讲习班，应用课程来创建、改进、实施和评估高质量的新的或现有的综合支持性护理方案；2.支持正在进行的培训，并为学员提供网络机会，在每个讲习班之后举行每月6次的受训人员电话会议，并在方案期间和一年后允许学员和教员访问在线讨论板；以及3.在每个讲习班之后的24个月内，通过评估：a)课程内容的质量，在多个级别评估培训方案的短期和长期效果；B)学员的知识、自我效能、满意度和通过该计划获得的特定技能的实施情况；以及c)学员在各自机构加强或发展有效的项目支持性护理工作(例如，机构接纳、提高工作效率、增加临床或办公空间、MD/RN满意度、预算增长)。 与公共健康相关：癌症是一种严重的疾病，会给所有癌症患者以及那些关心他们的人带来一定程度的情绪不安和实际问题。虽然大多数癌症中心都有合格的专业人员来帮助癌症患者和他们的亲人，但这些支持性护理服务通常没有很好的组织或协调。这项提案汇集了许多最知名的癌症护理专家，向卫生保健和行政管理专业人员传授如何最好地组织、评估和改进以患者为中心的计划，同时最大限度地提高癌症患者及其家人的生活质量。

DESCRIPTION (provided by applicant): There is strong scientific evidence supporting the use of recently developed interventions to help patients cope with cancer. However, as documented in the literature, there are yet to be adequate standards for these programs. The proposed training program will begin to bridge the gap between what is, lack of organized and well coordinated interdisciplinary services, and what can be, a clearly established infrastructure for comprehensive supportive care programs resulting in patient-centered excellence. However, there is a dearth of health care professionals with the knowledge, skills and expertise in leading such complex programs. The proposed R-25E will bring together 16 faculty members with internationally recognized track records in building and overseeing successful supportive care programs to conduct a series of ten 3-day workshops for a total of approximately 500 cancer health care professionals. Physicians, nurses, social workers, psychologists, health educators and business administrators will be competitively selected to participate in a unique ongoing program of continuing education that has been shown to be effective in actually changing professional practice. The workshops will be carried out twice yearly for five years, and will be offered alternately at the City of Hope and the Mount Sinai Medical Center. The goal of the workshop is for trainees to understand and be able to enhance all aspects of comprehensive supportive care program development. Guided by the small-group learning model and by the by Grol et al's Institutional Change Model, faculty will discuss topics that are critical to building r improving a new or existing supportive care programs. The short- and long-term impacts of the program will be evaluated in terms of the knowledge and skills gained by trainees, and the development or growth of supportive care programs at the trainees' home institutions. Overall Goals: 1. To apply a curriculum to create, refine, implement and evaluate high-quality new or existing comprehensive supportive care programs by conducting training workshops for health care and administrative professionals; 2. To support ongoing training and provide networking opportunities for trainees by conducting six, monthly, faculty-trainee telephone conference-calls following each workshop, and by providing trainees and faculty with access to an online discussion board during the tenure of the program and for one year afterwards; and 3. To assess the short- and long-term effectiveness of the training program at multiple levels for 24 months following each workshop by evaluating: a) quality of curriculum content; b) trainee knowledge, self-efficacy, satisfaction, and implementation of specific skills acquired through the program; and c) trainees' enhancements to, or development of, effective programmatic supportive care efforts at their respective institutions (i.e., institutional uptake, increased stafing, increased clinical or office space, MD/RN satisfaction, budget growth). PUBLIC HEALTH RELEVANCE: Cancer is a serious illness that causes some degree of emotional upset and practical problems in all cancer patients as well as in those people who care about them. Although there are qualified professionals in most cancer centers to assist cancer patients and their loved ones, these supportive care services are commonly not well organized or coordinated. This proposal brings together many of most recognized experts in cancer care to teach health care and administrative professionals how to best organize, evaluate and improve programs that focus on being patient-friendly while maximizing the quality of life for cancer patients and their families.