权益分类	功能权益	普通用户	{{item.name}}会员
{{category.name}}	{{benefitItem.name}}

Open Source Science: Transforming Chronic Illness Care

开源科学：改变慢性病护理

基本信息

批准号：
8538947
负责人：
Peter A Margolis
金额：
$ 136.3万
依托单位：
CINCINNATI CHILDRENS HOSP MED CTR
依托单位国家：
美国
项目类别：
财政年份：
2009
资助国家：
美国
起止时间：
2009-09-30 至 2016-02-29
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8538947
关键词：
16 year old Adolescence Adolescent American Appointment Behavior Build-it Caring Child Childhood Chronic Care Chronic Disease Clinical Collaborations Communication Complex Creativeness Data Databases Disease Disease Outcome Family Fellowship Goals Health Healthcare Healthcare Systems Human Human Characteristics Individual Inflammatory Bowel Diseases Intelligence Internet Knowledge Lead Learning Linux Modeling Motivation Outcome Parents Patient Care Patients Pharmaceutical Preparations Physicians Privacy Provider Science Secure Self Management Site Social Network Structure Support System Surveys System Technology Testing Therapeutic Vision Visit Work abstracting base behavior change care systems clinical care clinical practice collaborative care cost design dietary restriction girls improved innovation killings member open source prototype social cognitive theory thiopurine tool web-enabled

项目摘要

Project Summary/Abstract Chronic illness kills too many and costs too much. Reducing this burden is possible, yet within our current health care system, Americans receive about 50% of indicated care and patients follow doctors' orders about as often. What if there was a way to create a vastly better chronic illness care system by harnessing the inherent motivation and collective intelligence of patients and clinicians? What if this system allowed patients and physicians to share information freely, collaborate to solve important problems, and use their collective creativity and expertise to act in ways that improve health? A system for transforming chronic care is possible - we intend to build it by designing, prototyping, optimizing, and evaluating a clinical collaborative care network (C3N). Our C3N is modeled after collaborative innovation networks (COINs),1, 2 cyberteams of self motivated individuals with a collective vision, enabled by the Web to achieve a common goal by sharing ideas, information, and work. The internet, though, has allowed COINs to deliver their full potential, with Wikipedia, Linux, and the World Wide Web Consortium itself as prominent examples. COINs are, however, new to chronic illness care and, while many doctors and patients use the Web to search for and find health information, existing health-related social networks separate patients from providers, despite the fact that patient-provider interaction is key to chronic illness care.3 Joining patients (patients and parents) and providers (physicians and other clinicians) in a shared collaborative network is a radically innovative approach in health care. It challenges the dominant chronic illness care system or paradigm, which views patients as objects on which to intervene, structures care around episodic one-to-one patient-physician interactions, and assumes an inherent power differential based on knowledge. Our proposed C3N challenges the paradigm by engaging patients as co-equals; by making interaction continuous through asynchronous one-to-one and one-to-many communication; and by leveling the knowledge gradient. Our Specific Aim is to design, prototype, optimize, and evaluate a patient-provider C3N to improve clinical practice, patient self-management, and disease outcomes of pediatric inflammatory bowel disease (IBD). Testing this hypothesis is important because changes within the current system are likely to lead to only incremental improvement. Harnessing the nascent power of social networking technology to join patients and providers in a shared collaborative to create a new system for clinical and self-management behavior change can transform clinical practice and the way that new clinical knowledge is generated. A successful example of such a network could have vast impact: If we are successful, C3Ns have the potential to transform chronic illness care across the US, saving hundreds of thousands of lives and billions of dollars.

项目总结/摘要慢性病杀死太多人，花费太多。减轻这一负担是可能的，但在我们目前的医疗保健系统中，美国人接受了大约50%的指定护理，病人也同样经常地听从医生的命令。如果有一种方法可以通过利用患者和临床医生的内在动机和集体智慧来创建一个更好的慢性病护理系统，那会怎么样？如果这个系统允许病人和医生自由分享信息，合作解决重要问题，并利用他们的集体创造力和专业知识来改善健康状况，那会怎么样？一个系统改造慢性病护理是可能的-我们打算建立它的设计，原型，优化和评估临床协作护理网络（C3 N）。我们的C3 N是仿照合作创新网络（COIN），1，2个自我激励的个人与集体愿景的网络团队，通过网络实现共享思想，信息和工作的共同目标。然而，互联网已经允许COIN发挥其全部潜力，维基百科，Linux和万维网联盟本身就是突出的例子。然而，COIN对慢性病护理来说是新的，尽管许多医生和患者使用网络搜索和查找健康信息，但现有的健康相关社交网络将患者与提供者分开，尽管患者与提供者的互动是慢性病护理的关键。将患者（患者和父母）和提供者（医生和其他临床医生）加入一个共享的协作网络是医疗保健领域的一种根本创新方法。它挑战了占主导地位的慢性病护理系统或范式，将患者视为干预对象，围绕一对一的患者-医生互动构建护理，并假设基于知识的固有权力差异。我们提出的C3 N挑战的范式，通过参与患者作为共同平等;通过异步一对一和一对多的沟通，使互动连续;并通过平衡知识梯度。我们的具体目标是设计，原型，优化和评估患者提供者C3 N，以改善儿科的临床实践，患者自我管理和疾病结局。炎症性肠病（IBD）。验证这一假设很重要，因为在目前的系统内，可能只会导致渐进的改进。利用社交网络技术的新生力量，将患者和提供者加入共享协作，为临床和自我管理行为改变创建一个新系统，可以改变临床实践和新临床知识的生成方式。这样一个网络的成功例子可能会产生巨大的影响：如果我们成功了，C3 N有可能改变整个美国的慢性病护理，拯救数十万人的生命和数十亿美元。