Reducing Barriers to Autism Care in Latino Children

减少拉丁裔儿童自闭症护理的障碍

基本信息

批准号：
8452602
负责人：
Katharine Elizabeth Zuckerman
金额：
$ 17.95万
依托单位：
OREGON HEALTH & SCIENCE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2012
资助国家：
美国
起止时间：
2012-04-05 至 2017-03-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8452602
关键词：
Address Adult Affect Age Area Autistic Disorder Behavioral Belief Caring Case Manager Characteristics Child Child Development Chronic Colorado Communities Community Healthcare Data Development Development Plans Developmental Disabilities Diagnosis Diagnostic Diagnostic Services Disadvantaged Disease Early Diagnosis Early treatment Evidence based intervention Family Family health status Funding Genetic Goals Health Sciences Health Services Accessibility Healthcare Systems Improve Access Intervention Journals Knowledge Latino Malignant Neoplasms Medical Mental Health Methods Minority Modeling National Institute of Mental Health Oregon Outcome Parents Patients Pediatric Hospitals Peer Review Pennsylvania Philadelphia Population Prevalence Principal Investigator Publishing Reporting Research Research Design Research Personnel Services Site Strategic Planning Surveys Symptoms Testing Training Underrepresented Minority United States National Institutes of Health Universities Variant autism spectrum disorder base career development community intervention coping cost design effective intervention ethnic difference evidence base health belief health disparity improved meetings member outcome forecast programs screening skills therapy design usability

项目摘要

DESCRIPTION (provided by applicant): Early Autism Spectrum Disorder (ASD) diagnosis improves long-term child development and families' ability to cope with this disorder. Latino children are diagnosed with ASDs at older ages and at the point of more severe symptoms, putting them and their families at significant disadvantage. Interventions addressing family, community, and health care systems factors hold promise for improving access to ASD diagnostic services for minority children. The goal of this project is to develop an evidence-based intervention to reduce ethnic differences in ASD care among Latinos. To accomplish this goal, we will develop a survey of 350 Latino parents of either typically-developing children or children with ASDs, to assess common beliefs about autism in Latino communities, and to assess which community factors, health beliefs, and health care system factors are associated with delays in ASD diagnosis. The survey will be conducted at three sites within the Autism Treatment Network: Oregon Health & Science University in Portland, Oregon; University of Colorado/The Children's Hospital in Denver; and University of Pennsylvania/Children's Hospital of Philadelphia. Based on the barriers found in the survey, we will develop a pilot community-based patient navigator intervention designed to reduce barriers to care. This research will be incorporated into a career development plan that includes increasing the Principal Investigator's knowledge and skills in the areas of autism diagnosis and treatment, mental health disparities, interventional study design, and community-based research. The results of this research will be published in peer-reviewed journals and used as the basis for an NIH-funded proposal to conduct a multi-site test of the intervention designed in this project. Over 120,000 U.S. Latino children have been diagnosed with an ASD, a figure that likely underestimates the true prevalence. This project will help such children achieve earlier diagnosis and better long-term prognosis.

描述（由申请人提供）：早期自闭症谱系障碍（ASD）诊断可提高长期儿童发展和家庭应对这种疾病的能力。拉丁裔儿童被诊断出年龄较大的年龄段和更严重的症状，使他们及其家人处于严重的劣势。针对家庭，社区和医疗保健系统因素的干预措施有望改善少数民族儿童获得ASD诊断服务的机会。该项目的目的是制定基于证据的干预措施，以减少拉丁美洲人的ASD护理中的种族差异。为了实现这一目标，我们将对350个通常成长为儿童或ASD的儿童的拉丁裔父母进行调查，以评估拉丁裔社区中对自闭症的共同信念，并评估哪些社区因素，健康信念和医疗保健系统因素与ASD诊断的延迟有关。该调查将在自闭症治疗网络的三个地点进行：俄勒冈州波特兰的俄勒冈健康与科学大学；科罗拉多大学/丹佛儿童医院；宾夕法尼亚大学/费城儿童医院。根据调查中发现的障碍，我们将开发一种基于社区的试验性患者导航器干预措施，旨在减少护理障碍。这项研究将纳入一项职业发展计划中，其中包括提高自闭症诊断和治疗领域的知识和技能，心理健康差异，介入研究设计以及基于社区的研究。这项研究的结果将在经过同行评审的期刊上发表，并用作NIH资助的建议的基础，以对该项目设计的干预措施进行多站点测试。超过120,000名美国拉丁裔儿童被诊断出患有ASD，这一数字可能低估了真正的患病率。该项目将有助于此类儿童获得较早的诊断和更好的长期预后。