Reducing Barriers to Autism Care in Latino Children

减少拉丁裔儿童自闭症护理的障碍

• 批准号: 8649086
• 负责人: Katharine Elizabeth Zuckerman
• 金额: $ 17.95万
• 依托单位: OREGON HEALTH & SCIENCE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-04-05 至 2017-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8649086
• 关键词: Address; Adult; Affect; Age; Area; Autistic Disorder; Behavioral; Belief; Caring; Case Manager; Characteristics; Child; Child Development; Chronic; Colorado; Communities; Community Healthcare; Data; Development; Development Plans; Developmental Disabilities; Diagnosis; Diagnostic; Diagnostic Services; Disadvantaged; Disease; Early Diagnosis; Early treatment; Evidence based intervention; Family; Family health status; Funding; Genetic; Goals; Health Sciences; Health Services Accessibility; Healthcare Systems; Improve Access; Intervention; Intervention Studies; Journals; Knowledge; Latino; Malignant Neoplasms; Medical; Mental Health; Methods; Minority; Modeling; National Institute of Mental Health; Oregon; Outcome; Parents; Patients; Pediatric Hospitals; Peer Review; Pennsylvania; Philadelphia; Population; Prevalence; Principal Investigator; Publishing; Reporting; Research; Research Design; Research Personnel; Services; Site; Strategic Planning; Surveys; Symptoms; Testing; Training; Underrepresented Minority; United States National Institutes of Health; Universities; Variant; autism spectrum disorder; base; career development; community intervention; coping; cost; design; effective intervention; ethnic difference; evidence base; health belief; health disparity; improved; meetings; member; outcome forecast; programs; screening; skills; therapy design; usability

DESCRIPTION (provided by applicant): Early Autism Spectrum Disorder (ASD) diagnosis improves long-term child development and families' ability to cope with this disorder. Latino children are diagnosed with ASDs at older ages and at the point of more severe symptoms, putting them and their families at significant disadvantage. Interventions addressing family, community, and health care systems factors hold promise for improving access to ASD diagnostic services for minority children. The goal of this project is to develop an evidence-based intervention to reduce ethnic differences in ASD care among Latinos. To accomplish this goal, we will develop a survey of 350 Latino parents of either typically-developing children or children with ASDs, to assess common beliefs about autism in Latino communities, and to assess which community factors, health beliefs, and health care system factors are associated with delays in ASD diagnosis. The survey will be conducted at three sites within the Autism Treatment Network: Oregon Health & Science University in Portland, Oregon; University of Colorado/The Children's Hospital in Denver; and University of Pennsylvania/Children's Hospital of Philadelphia. Based on the barriers found in the survey, we will develop a pilot community-based patient navigator intervention designed to reduce barriers to care. This research will be incorporated into a career development plan that includes increasing the Principal Investigator's knowledge and skills in the areas of autism diagnosis and treatment, mental health disparities, interventional study design, and community-based research. The results of this research will be published in peer-reviewed journals and used as the basis for an NIH-funded proposal to conduct a multi-site test of the intervention designed in this project. Over 120,000 U.S. Latino children have been diagnosed with an ASD, a figure that likely underestimates the true prevalence. This project will help such children achieve earlier diagnosis and better long-term prognosis.

描述(由申请人提供)：自闭症谱系障碍(ASD)的早期诊断改善了儿童的长期发展和家庭应对这种障碍的能力。拉丁裔儿童在年龄较大、症状更严重的时候被诊断为自闭症，这使他们及其家人处于严重的不利地位。针对家庭、社区和卫生保健系统因素的干预措施有望改善少数族裔儿童获得自闭症诊断服务的机会。该项目的目标是开发一种以证据为基础的干预措施，以减少拉美裔自闭症护理的种族差异。为了实现这一目标，我们将对350名典型发育儿童或患有自闭症儿童的拉丁裔父母进行调查，以评估拉丁裔社区对自闭症的普遍看法，并评估哪些社区因素、健康信念和医疗保健系统因素与自闭症诊断的延迟有关。这项调查将在自闭症治疗网络的三个地点进行：俄勒冈州波特兰市的俄勒冈健康与科学大学；科罗拉多大学/丹佛的儿童医院；以及宾夕法尼亚大学/费城儿童医院。根据调查中发现的障碍，我们将开发一种基于社区的患者导航器干预试点，旨在减少护理障碍。这项研究将被纳入职业发展计划，其中包括增加首席调查员在自闭症诊断和治疗、心理健康差异、干预性研究设计和基于社区的研究领域的知识和技能。这项研究的结果将发表在同行评议的期刊上，并作为NIH资助的一项提案的基础，该提案将对该项目中设计的干预措施进行多点测试。超过12万名美国拉丁裔儿童被诊断出患有自闭症，这个数字可能低估了真实的患病率。该项目将帮助这些儿童获得更早的诊断和更好的长期预后。