Reducing Barriers to Autism Care in Latino Children
减少拉丁裔儿童自闭症护理的障碍
基本信息
- 批准号:8649086
- 负责人:
- 金额:$ 17.95万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2012
- 资助国家:美国
- 起止时间:2012-04-05 至 2017-03-31
- 项目状态:已结题
- 来源:
- 关键词:AddressAdultAffectAgeAreaAutistic DisorderBehavioralBeliefCaringCase ManagerCharacteristicsChildChild DevelopmentChronicColoradoCommunitiesCommunity HealthcareDataDevelopmentDevelopment PlansDevelopmental DisabilitiesDiagnosisDiagnosticDiagnostic ServicesDisadvantagedDiseaseEarly DiagnosisEarly treatmentEvidence based interventionFamilyFamily health statusFundingGeneticGoalsHealth SciencesHealth Services AccessibilityHealthcare SystemsImprove AccessInterventionIntervention StudiesJournalsKnowledgeLatinoMalignant NeoplasmsMedicalMental HealthMethodsMinorityModelingNational Institute of Mental HealthOregonOutcomeParentsPatientsPediatric HospitalsPeer ReviewPennsylvaniaPhiladelphiaPopulationPrevalencePrincipal InvestigatorPublishingReportingResearchResearch DesignResearch PersonnelServicesSiteStrategic PlanningSurveysSymptomsTestingTrainingUnderrepresented MinorityUnited States National Institutes of HealthUniversitiesVariantautism spectrum disorderbasecareer developmentcommunity interventioncopingcostdesigneffective interventionethnic differenceevidence basehealth beliefhealth disparityimprovedmeetingsmemberoutcome forecastprogramsscreeningskillstherapy designusability
项目摘要
DESCRIPTION (provided by applicant): Early Autism Spectrum Disorder (ASD) diagnosis improves long-term child development and families' ability to cope with this disorder. Latino children are diagnosed with ASDs at older ages and at the point of more severe symptoms, putting them and their families at significant disadvantage. Interventions addressing family, community, and health care systems factors hold promise for improving access to ASD diagnostic services for minority children. The goal of this project is to develop an evidence-based intervention to reduce ethnic differences in ASD care among Latinos. To accomplish this goal, we will develop a survey of 350 Latino parents of either typically-developing children or children with ASDs, to assess common beliefs about autism in Latino communities, and to assess which community factors, health beliefs, and health care system factors are associated with delays in ASD diagnosis. The survey will be conducted at three sites within the Autism Treatment Network: Oregon Health & Science University in Portland, Oregon; University of Colorado/The Children's Hospital in Denver; and University of Pennsylvania/Children's Hospital of Philadelphia. Based on the barriers found in the survey, we will develop a pilot community-based patient navigator intervention designed to reduce barriers to care. This research will be incorporated into a career development plan that includes increasing the Principal Investigator's knowledge and skills in the areas of autism diagnosis and treatment, mental health disparities, interventional study design, and community-based research. The results of this research will be published in peer-reviewed journals and used as the basis for an NIH-funded proposal to conduct a multi-site test of the intervention designed in this project. Over 120,000 U.S. Latino children have been diagnosed with an ASD, a figure that likely underestimates the true prevalence. This project will help such children achieve earlier diagnosis and better long-term prognosis.
描述(由申请人提供):早期自闭症谱系障碍(ASD)诊断可以改善儿童的长期发展和家庭应对这种疾病的能力。拉丁裔儿童在年龄较大时被诊断为自闭症,在出现更严重的症状时,他们和他们的家庭处于非常不利的地位。针对家庭、社区和卫生保健系统因素的干预措施有望改善少数民族儿童获得ASD诊断服务的机会。该项目的目标是开发一种基于证据的干预措施,以减少拉丁美洲人在自闭症治疗方面的种族差异。为了实现这一目标,我们将对350名典型发育儿童或自闭症儿童的拉丁裔父母进行调查,以评估拉丁裔社区对自闭症的普遍看法,并评估哪些社区因素、健康信念和医疗保健系统因素与ASD诊断延迟有关。这项调查将在自闭症治疗网络的三个地点进行:俄勒冈州波特兰市的俄勒冈健康与科学大学;科罗拉多大学/丹佛儿童医院;宾夕法尼亚大学/费城儿童医院。基于调查中发现的障碍,我们将开发一个试点社区患者导航干预,旨在减少护理障碍。这项研究将纳入职业发展计划,包括增加首席研究员在自闭症诊断和治疗、心理健康差异、介入性研究设计和社区研究领域的知识和技能。这项研究的结果将发表在同行评议的期刊上,并作为美国国立卫生研究院资助的一项提案的基础,该提案旨在对该项目设计的干预措施进行多地点测试。超过12万美国拉丁裔儿童被诊断患有自闭症谱系障碍,这个数字可能低估了真正的患病率。该项目将帮助这些儿童获得早期诊断和更好的长期预后。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
数据更新时间:{{ journalArticles.updateTime }}
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
数据更新时间:{{ journalArticles.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ monograph.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ sciAawards.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ conferencePapers.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ patent.updateTime }}
Katharine Elizabeth Zuckerman其他文献
Katharine Elizabeth Zuckerman的其他文献
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
{{ truncateString('Katharine Elizabeth Zuckerman', 18)}}的其他基金
Parent Training for Latinx Autistic Toddlers: Development and Preliminary Testing
拉丁裔自闭症幼儿家长培训:发展和初步测试
- 批准号:
10644658 - 财政年份:2023
- 资助金额:
$ 17.95万 - 项目类别:
Autism Access Link for Early Referral and Treatment
自闭症早期转诊和治疗访问链接
- 批准号:
9806288 - 财政年份:2019
- 资助金额:
$ 17.95万 - 项目类别:
Autism Access Link for Early Referral and Treatment
自闭症早期转诊和治疗访问链接
- 批准号:
10207407 - 财政年份:2019
- 资助金额:
$ 17.95万 - 项目类别:
Assessing Usability of mHealth Autism Screeners in the Medically Underserved
评估 mHealth 自闭症筛查仪在医疗服务不足的地区的可用性
- 批准号:
9805696 - 财政年份:2019
- 资助金额:
$ 17.95万 - 项目类别:
Reducing Barriers to Autism Care in Latino Children
减少拉丁裔儿童自闭症护理的障碍
- 批准号:
8452602 - 财政年份:2012
- 资助金额:
$ 17.95万 - 项目类别:
Reducing Barriers to Autism Care in Latino Children
减少拉丁裔儿童自闭症护理的障碍
- 批准号:
8224230 - 财政年份:2012
- 资助金额:
$ 17.95万 - 项目类别:
相似海外基金
Co-designing a lifestyle, stop-vaping intervention for ex-smoking, adult vapers (CLOVER study)
为戒烟的成年电子烟使用者共同设计生活方式、戒烟干预措施(CLOVER 研究)
- 批准号:
MR/Z503605/1 - 财政年份:2024
- 资助金额:
$ 17.95万 - 项目类别:
Research Grant
Early Life Antecedents Predicting Adult Daily Affective Reactivity to Stress
早期生活经历预测成人对压力的日常情感反应
- 批准号:
2336167 - 财政年份:2024
- 资助金额:
$ 17.95万 - 项目类别:
Standard Grant
RAPID: Affective Mechanisms of Adjustment in Diverse Emerging Adult Student Communities Before, During, and Beyond the COVID-19 Pandemic
RAPID:COVID-19 大流行之前、期间和之后不同新兴成人学生社区的情感调整机制
- 批准号:
2402691 - 财政年份:2024
- 资助金额:
$ 17.95万 - 项目类别:
Standard Grant
Migrant Youth and the Sociolegal Construction of Child and Adult Categories
流动青年与儿童和成人类别的社会法律建构
- 批准号:
2341428 - 财政年份:2024
- 资助金额:
$ 17.95万 - 项目类别:
Standard Grant
Elucidation of Adult Newt Cells Regulating the ZRS enhancer during Limb Regeneration
阐明成体蝾螈细胞在肢体再生过程中调节 ZRS 增强子
- 批准号:
24K12150 - 财政年份:2024
- 资助金额:
$ 17.95万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
Understanding how platelets mediate new neuron formation in the adult brain
了解血小板如何介导成人大脑中新神经元的形成
- 批准号:
DE240100561 - 财政年份:2024
- 资助金额:
$ 17.95万 - 项目类别:
Discovery Early Career Researcher Award
RUI: Evaluation of Neurotrophic-Like properties of Spaetzle-Toll Signaling in the Developing and Adult Cricket CNS
RUI:评估发育中和成年蟋蟀中枢神经系统中 Spaetzle-Toll 信号传导的神经营养样特性
- 批准号:
2230829 - 财政年份:2023
- 资助金额:
$ 17.95万 - 项目类别:
Standard Grant
Usefulness of a question prompt sheet for onco-fertility in adolescent and young adult patients under 25 years old.
问题提示表对于 25 岁以下青少年和年轻成年患者的肿瘤生育力的有用性。
- 批准号:
23K09542 - 财政年份:2023
- 资助金额:
$ 17.95万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
Identification of new specific molecules associated with right ventricular dysfunction in adult patients with congenital heart disease
鉴定与成年先天性心脏病患者右心室功能障碍相关的新特异性分子
- 批准号:
23K07552 - 财政年份:2023
- 资助金额:
$ 17.95万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
Issue identifications and model developments in transitional care for patients with adult congenital heart disease.
成人先天性心脏病患者过渡护理的问题识别和模型开发。
- 批准号:
23K07559 - 财政年份:2023
- 资助金额:
$ 17.95万 - 项目类别:
Grant-in-Aid for Scientific Research (C)