Parent Training for Latinx Autistic Toddlers: Development and Preliminary Testing

项目总结 被诊断或怀疑患有自闭症的拉丁裔儿童等待诊断和治疗的时间特别长 干预，长达一年甚至更长时间。这种延迟获得干预的机会可能会阻止儿童患上 充分发挥他们在技能和适应能力方面的潜力。全面的、基于在线移动设备的 在这些等待名单上的父母可以使用的免费干预可能会优化他们孩子的发展。 我们已经开发了这样一个项目，即在线家长早期干预培训(Opt-in-Early)项目。 它向父母传授应用行为分析和自然干预的基本原则， 使用非技术语言、视频演示、指导选择合适的技能进行授课， 将教学融入日常生活，减少干扰行为。它是一种自定进度、个性化的 平台为家长提供加强亲子关系的策略，传授基本技能，如 简单的沟通，减少干扰行为，并建立有用的常规。在试行RCT时， 父母(其中一半自称是拉丁裔)对该项目的评价非常高，并表现出积极的一面 行为和知识的变化。 目前项目的目标是开发和试点测试一种根据文化定制的西班牙语/英语双语 为美国的拉丁裔家庭提供的Opt-In-Easy版本。首先，我们将从以下方面获得详细的迭代反馈 有自闭症儿童的双语拉丁裔父母关于早期选择。我们将利用这些反馈在文化上 调整节目内容和格式。接下来，我们将通过西班牙语用户测试来修改改编后的程序- 会说话的父母。最后，我们将在为期六个月的RCT试点中测试双语版本，为全面- 动力R01试用版。我们将使用等待列表控制设计：现在干预ARM将被给予在线 计划和稍后的干预ARM(对照)将获得关于自闭症的教育材料。所有儿童 将接受基线和6个月的后续评估，这将衡量父母在使用 干预原则(主要结果)、儿童社交、自闭症症状水平、 自闭症症状和发育迟缓的程度。 在本研究的结论中，我们将制定一种循证的、全面的、自由的 提供家长提供的干预，可供美国拉美裔家庭在移动设备上使用，因为他们 等待诊断和干预。这将提高父母的效能感，减轻他们的压力，加速 提高儿童技能，减少干预行为，提高PCP实施普适性自闭症的意愿 放映。

PROJECT SUMMARY Latinx children with diagnosed or suspected autism have especially long wait times for diagnoses and intervention, up to a year or even more. This delayed access to intervention is likely to prevent children from reaching their full potential in skills and adaptive functioning. A comprehensive, online mobile device-based, free intervention that can be used by parents while on these wait lists may optimize their child's development. We have developed such a program, the Online Parent Training in Early Intervention (OPT-In-Early) program. It teaches parents the fundamental principles of both applied behavior analysis and naturalistic interventions, uses non-technical language, video demonstrations, guidance in selecting appropriate skills to teach, embedding teaching into daily routines, and reducing interfering behaviors. It is a self-paced, individualized platform giving parents strategies to strengthen the parent-child relationship, to teach basic skills, such as simple communication, to reduce interfering behaviors, and to establish helpful routines. In pilot the RCT, parents (half of whom were self-identified as Latinx) rated the program very highly and showed positive changes in behavior and knowledge. The goal of the current project is to develop, and pilot test a bilingual Spanish/English culturally tailored version of OPT-In-Early for Latinx families in the US. First, we will obtain detailed, iterative feedback from bilingual Latinx parents with an autistic child regarding OPT-In-Early. We will use this feedback to culturally adapt the program content and format. Next, we will modify the adapted program via user testing with Spanish- speaking parents. Finally, we will test the bilingual version in a six-month pilot RCT, in preparation for a fully- powered R01 trial. We will use a wait-list control design: the Intervention Now arm will be given the online program and the Intervention Later arm (controls) will be given educational material about autism. All children will receive a baseline and 6-month follow-up assessment, which will measure parent fidelity in using the intervention principles (the primary outcome), child social communication, level of autism symptoms, impact of autism symptoms, and degree of developmental delays. At the conclusion of this research, we will have developed an evidence-based, comprehensive, freely available, parent-delivered intervention that can be used by US Latinx families on their mobile devices as they await diagnosis and intervention. This will increase parent efficacy and reduce their stress, accelerate children's skills, reduce interfering behavior, and enhance PCPs' willingness to implement universal autism screening.