An Interactive Health Communication Program For Young Urban Adults With Asthma

针对患有哮喘的城市年轻人的互动健康沟通计划

• 批准号: 8540988
• 负责人: ALAN P. BAPTIST
• 金额: $ 14.61万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-30 至 2015-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8540988
• 关键词: Interactive; Health; Communication; Program; Young

DESCRIPTION (provided by applicant): Asthma is condition in which a tremendous amount of health care disparities and inequities are observed. Emergency department visits, hospitalizations, and mortality rates are often three to five times higher in African Americans compared to Caucasians. While our group and others have developed programs to improve asthma outcomes for urban adolescents (age 13 - 17), no one has developed interventions for young African American adults (age 18 - 30) with asthma. This population unfortunately has one of the highest asthma prevalence rates, as well as very poor measures of asthma control. Part of this reason is due to the fact that young adulthood represents a dramatic change for an individual, where for the first time they may be responsible for their own health care, finances, education, and employment responsibilities. An internet-based interactive health communication program offers a unique way to address challenges and improve asthma care for this difficult-to-reach population. It provides a mechanism to deliver asthma education, personalize recommendations, improve communication with health care providers, and be delivered at a time convenient to the participant. Such a program would also be delivered with minimal human support, making it ideal for urban environments which may not have the resources for health educators. We will develop and pilot test such a program, which will be tailored to the challenges each individual faces. The program will be based on the self-regulation theory of behavior, which will enhance the participants' ability to self-manage this chronic condition. Focus groups will first be utilized to ensure that the participant's perspectiveis fully conveyed. The findings from the focus groups will be incorporated into a multi-session internet based intervention. This intervention will incorporate both standard asthma education delivered by video and personalized messages of how to overcome the specific challenges each individual faces. We will assess the ability of such a program to attract potential participants, retain participants who agree to participate, communicate relevant information back to the participant's health care provider, and operate seamlessly with minimal live support. We will explore any participant preferences, challenges, and obstacles to the use of the program over the entire multi-session intervention. Asthma specific outcomes will also be assessed at 3 and 6 months. These will include quality of life, asthma symptoms, asthma control, self-efficacy, and health care utilization. This exploratory study is critical to develop a consumer health informatics intervention, which we will fully evaluate in a subsequent R01 application.

描述（由申请人提供）：哮喘是一种观察到大量卫生保健差异和不公平的疾病。非裔美国人的急诊就诊率、住院率和死亡率通常是白人的三到五倍。虽然我们的团队和其他人已经开发了改善城市青少年（13 - 17岁）哮喘预后的项目，但还没有人为患有哮喘的年轻非洲裔美国成年人（18 - 30岁）开发干预措施。不幸的是，这一人群的哮喘患病率最高，哮喘控制措施也很差。部分原因是，青年期对个人来说是一个巨大的变化，他们可能第一次对自己的医疗保健、财务、教育和就业负责。 一个基于互联网的互动健康交流计划提供了一种独特的方式来应对挑战，并改善哮喘护理这一难以达到的人群。它提供了一种机制，提供哮喘教育，个性化建议，改善与卫生保健提供者的沟通，并在方便的时间提供给参与者。这样的计划也将在最少的人力支持下交付，使其成为可能没有健康教育者资源的城市环境的理想选择。 我们将开发和试点测试这样一个计划，这将是针对每个人面临的挑战。该计划将基于行为的自我调节理论，这将提高参与者自我管理这种慢性疾病的能力。首先将利用焦点小组来确保参与者的观点得到充分传达。焦点小组的调查结果将被纳入一个基于互联网的多阶段干预。这种干预将包括通过视频提供的标准哮喘教育和如何克服每个人面临的具体挑战的个性化信息。我们将评估该计划吸引潜在参与者的能力，留住同意参与的参与者，将相关信息反馈给参与者的医疗保健提供者，并在最低限度的现场支持下无缝运营。我们将探讨任何参与者的偏好，挑战，以及在整个多会话干预中使用该程序的障碍。还将在3个月和6个月时评估哮喘特异性结局。这些将包括生活质量，哮喘症状，哮喘控制，自我效能和卫生保健利用。这项探索性研究对于制定消费者健康信息干预措施至关重要，我们将在随后的R 01应用程序中对其进行全面评估。

项目成果

An Electronic Asthma Self-Management Intervention for Young African American Adults.

针对年轻非洲裔美国成年人的电子哮喘自我管理干预措施。

• DOI: 10.1016/j.jaip.2015.08.007
• 发表时间: 2016
• 期刊: The journal of allergy and clinical immunology. In practice
• 作者: Speck,AimeeL;Hess,Michael;Baptist,AlanP
• 通讯作者: Baptist,AlanP

Young, African American adults with asthma: what matters to them?

患有哮喘的年轻非洲裔美国成年人：什么对他们来说重要？

• DOI: 10.1016/j.anai.2013.10.016
• 发表时间: 2014
• 期刊: Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology
• 作者: Speck,AimeeL;Nelson,Belinda;Jefferson,SOlivia;Baptist,AlanP
• 通讯作者: Baptist,AlanP