PATIENTS: PATient-centered Involvement in Evaluating effectivNess of Treatment

患者：以患者为中心参与评估治疗效果

• 批准号: 8494177
• 负责人: C. DANIEL MULLINS
• 金额: $ 99.53万
• 依托单位: UNIVERSITY OF MARYLAND BALTIMORE
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-30 至 2018-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8494177
• 关键词: PATIENTS; PATient; centered; Involvement; Evaluating

DESCRIPTION (provided by the applicant): Incorporating patients' perspectives can improve healthcare research and delivery. When patients are included in healthcare research, they are empowered to ask and receive relevant answers to questions they have about their health. Patient-centered outcomes research (PCOR) is designed to provide meaningful evidence that enables informed healthcare decision making by patients and other stakeholders. The University of Maryland (UM) is applying the concept of continuous patient engagement to a long history of successful community based participatory research to propose an innovative approach to PATient-centered Involvement in Evaluating the effectiveNess of Treatments (PATIENTS). PATIENTS is designed to enhance existing UM infrastructure to: (1) Foster sustainable partnerships with local, regional, and national communities of diverse patients and healthcare systems to improve PCOR, investigators' cultural competency and, ultimately, health outcomes; (2) Conduct and expand PCOR in partnership with patients and healthcare delivery systems that will better inform patient-centered health care decision making and healthcare systems design; and (3) Advance dissemination and implementation strategies for PCOR findings for patients, health care providers, and healthcare systems to utilize evidence-based interventions. A major focus of PATIENTS will be to select health outcomes and comparator interventions that matter to diverse patients or their surrogates, address the applicability and feasibility of PCOR across healthcare systems, and accelerate adoption of effective interventions through implementation science. The cornerstone of the PATIENTS program is UM, including the Baltimore (UMB) and College Park (UMCP) campuses, the University of Maryland Medical Center (UMMC) and related clinics and hospitals within the UM network; however, it is the inclusion of diverse patient communities and healthcare systems into the infrastructure that will ensure meaningful stakeholder involvement. Four individual investigator research projects support the development of the PCOR infrastructure and add to the sustainability of partnerships.

描述（由申请人提供）：结合患者的观点可以改善医疗保健研究和分娩。当患者被纳入医疗保健研究中时，他们有权询问并收到有关他们对健康问题的问题的相关答案。以患者为中心的结果研究（PCOR）旨在提供有意义的证据，以实现患者和其他利益相关者的知情医疗决策。马里兰州大学（UM）将连续患者参与度的概念应用于成功的基于社区的参与性研究的悠久历史，以提出一种以患者为中心的创新方法 参与评估治疗的有效性（患者）。患者旨在增强现有的UM基础设施，以：（1）与本地，区域，区域建立可持续合作伙伴关系 以及各种患者和医疗保健系统的国家社区，以提高PCOR，研究人员的文化能力以及最终的健康成果； （2）与患者和医疗保健提供系统合作进行和扩展PCOR，以更好地为以患者为中心的医疗保健决策和医疗保健系统设计提供信息； （3）针对患者，医疗保健提供者和医疗保健系统的PCOR发现提高传播和实施策略，以利用基于证据的干预措施。患者的主要重点是选择对各种患者或其代理人至关重要的健康结果和比较者干预措施，解决PCOR在医疗保健系统中的适用性和可行性，并通过实施科学加速采用有效的干预措施。 患者计划的基石是UM，包括巴尔的摩（UMB）和大学公园（UMCP）校园，马里兰大学医学中心（UMMC）以及UM网络中相关的诊所和医院；但是，正是将不同的患者社区和医疗保健系统纳入基础设施，这将确保有意义的利益相关者参与。四个个人研究者研究项目支持PCOR基础设施的发展，并增加了合作伙伴关系的可持续性。