PATIENTS: PATient-centered Involvement in Evaluating effectivNess of Treatment

患者：以患者为中心参与评估治疗效果

• 批准号: 8494177
• 负责人: C. DANIEL MULLINS
• 金额: $ 99.53万
• 依托单位: UNIVERSITY OF MARYLAND BALTIMORE
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-30 至 2018-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8494177
• 关键词: PATIENTS; PATient; centered; Involvement; Evaluating

DESCRIPTION (provided by the applicant): Incorporating patients' perspectives can improve healthcare research and delivery. When patients are included in healthcare research, they are empowered to ask and receive relevant answers to questions they have about their health. Patient-centered outcomes research (PCOR) is designed to provide meaningful evidence that enables informed healthcare decision making by patients and other stakeholders. The University of Maryland (UM) is applying the concept of continuous patient engagement to a long history of successful community based participatory research to propose an innovative approach to PATient-centered Involvement in Evaluating the effectiveNess of Treatments (PATIENTS). PATIENTS is designed to enhance existing UM infrastructure to: (1) Foster sustainable partnerships with local, regional, and national communities of diverse patients and healthcare systems to improve PCOR, investigators' cultural competency and, ultimately, health outcomes; (2) Conduct and expand PCOR in partnership with patients and healthcare delivery systems that will better inform patient-centered health care decision making and healthcare systems design; and (3) Advance dissemination and implementation strategies for PCOR findings for patients, health care providers, and healthcare systems to utilize evidence-based interventions. A major focus of PATIENTS will be to select health outcomes and comparator interventions that matter to diverse patients or their surrogates, address the applicability and feasibility of PCOR across healthcare systems, and accelerate adoption of effective interventions through implementation science. The cornerstone of the PATIENTS program is UM, including the Baltimore (UMB) and College Park (UMCP) campuses, the University of Maryland Medical Center (UMMC) and related clinics and hospitals within the UM network; however, it is the inclusion of diverse patient communities and healthcare systems into the infrastructure that will ensure meaningful stakeholder involvement. Four individual investigator research projects support the development of the PCOR infrastructure and add to the sustainability of partnerships.

描述（由申请人提供）：结合患者的观点可以改善医疗保健研究和服务。当患者被纳入医疗保健研究时，他们有权询问并获得有关他们健康问题的相关答案。以患者为中心的结果研究（PCOR）旨在提供有意义的证据，使患者和其他利益相关者能够做出明智的医疗保健决策。马里兰大学（UM）正在将患者持续参与的概念应用于长期成功的基于社区的参与性研究，提出了一种以患者为中心的创新方法