PATIENTS: PATient-centered Involvement in Evaluating effectivNess of Treatment

描述（由申请人提供）：纳入患者的观点可以改善医疗保健研究和服务。当患者参与医疗保健研究时，他们有权询问并获得有关其健康问题的相关答案。以患者为中心的结果研究 (PCOR) 旨在提供有意义的证据，使患者和其他利益相关者能够做出明智的医疗决策。马里兰大学 (UM) 正在将患者持续参与的概念应用于基于社区的参与性研究的悠久成功历史，提出一种以患者为中心的创新方法 参与评估治疗效果（患者）。 PATIENTS 旨在增强现有的 UM 基础设施，以：(1) 促进与地方、区域、 以及由不同患者和医疗保健系统组成的国家社区，以改善 PCOR、研究人员的文化能力以及最终的健康结果； (2) 与患者和医疗保健提供系统合作开展和扩大 PCOR，这将更好地为以患者为中心的医疗保健决策和医疗保健系统设计提供信息； (3) 为患者、医疗保健提供者和医疗保健系统推进 PCOR 结果的传播和实施策略，以利用循证干预措施。 PATIENTS 的主要关注点是选择对不同患者或其代理人重要的健康结果和比较干预措施，解决 PCOR 在整个医疗保健系统中的适用性和可行性，并通过实施科学加速有效干预措施的采用。 PATIENTS 计划的基石是 UM，包括巴尔的摩 (UMB) 和大学公园 (UMCP) 校区、马里兰大学医学中心 (UMMC) 以及 UM 网络内的相关诊所和医院；然而，将不同的患者社区和医疗保健系统纳入基础设施才能确保利益相关者有意义的参与。四个个人研究者研究项目支持 PCOR 基础设施的发展，并增强伙伴关系的可持续性。

DESCRIPTION (provided by the applicant): Incorporating patients' perspectives can improve healthcare research and delivery. When patients are included in healthcare research, they are empowered to ask and receive relevant answers to questions they have about their health. Patient-centered outcomes research (PCOR) is designed to provide meaningful evidence that enables informed healthcare decision making by patients and other stakeholders. The University of Maryland (UM) is applying the concept of continuous patient engagement to a long history of successful community based participatory research to propose an innovative approach to PATient-centered Involvement in Evaluating the effectiveNess of Treatments (PATIENTS). PATIENTS is designed to enhance existing UM infrastructure to: (1) Foster sustainable partnerships with local, regional, and national communities of diverse patients and healthcare systems to improve PCOR, investigators' cultural competency and, ultimately, health outcomes; (2) Conduct and expand PCOR in partnership with patients and healthcare delivery systems that will better inform patient-centered health care decision making and healthcare systems design; and (3) Advance dissemination and implementation strategies for PCOR findings for patients, health care providers, and healthcare systems to utilize evidence-based interventions. A major focus of PATIENTS will be to select health outcomes and comparator interventions that matter to diverse patients or their surrogates, address the applicability and feasibility of PCOR across healthcare systems, and accelerate adoption of effective interventions through implementation science. The cornerstone of the PATIENTS program is UM, including the Baltimore (UMB) and College Park (UMCP) campuses, the University of Maryland Medical Center (UMMC) and related clinics and hospitals within the UM network; however, it is the inclusion of diverse patient communities and healthcare systems into the infrastructure that will ensure meaningful stakeholder involvement. Four individual investigator research projects support the development of the PCOR infrastructure and add to the sustainability of partnerships.