Personal Health Information Needs and Practices for Maternal Fetal Care

描述(由申请人提供)：拟议的研究调查孕妇及其照顾者的特征、信息需求和信息管理实践，为健康信息技术的设计提供信息。孕妇有各种各样和重要的信息需求，从怀孕的医疗问题到医院政策的后勤问题。个人，如配偶，可以成为照顾母亲和婴儿的伴侣。这些照顾者有独特的特征、信息需求和偏好。人们对这些需求知之甚少，不知道它们是否得到满足，也不知道用于管理它们的资源。充分满足这类需求可以改善产前护理以及孕产妇和胎儿结局。从互联网网站到复杂的患者门户网站，患者和家属越来越多地采用健康信息技术。这类技术可以满足信息需求，但在使用过程中注意到种族和族裔差异。复杂的社会、经济和认知因素可能会导致人们愿意使用技术。了解患者和护理人员的特点、信息需求和偏好可以指导设计和支持采用卫生信息技术。该项目将在范德比尔特妇女健康中心和范德比尔特少年团胎儿中心的集体产前护理环境中创建关于孕妇和照顾者的特征、信息需求和管理战略的广泛知识库。研究小组将在怀孕期间和怀孕后每隔一段时间通过有效的调查、访谈和家访来评估特征、能力和信仰。将对人口统计学、社会经济因素、健康素养、计算能力、压力水平、控制点、技术使用和技能、情绪、嗜睡和家庭环境进行评估。将研究网站、博客和微博的使用情况。信息需求、管理策略和偏好将通过连续访谈和参与者日记来确定。这项工作将描述信息需求的类型、发生这些需求的背景以及用于满足这些需求的资源。将使用疾病轨迹概念框架来定义需求模式和管理战略。参与者将接受使用MyHealthAtVanderbilt患者门户的培训，研究小组将研究如何使用该门户来满足信息需求。特征、能力和信念将与信息需求、管理策略和门户使用相关联。这项研究将产生对围产期环境中消费者健康信息需求、管理策略和偏好的深入理解，并将为使用已建立的人因工程学和以用户为中心的设计方法为孕妇及其照顾者创建相关健康信息技术提供广泛的设计指导。

DESCRIPTION (provided by applicant): The proposed research investigates the characteristics, information needs, and information management practices of pregnant women and their caregivers to inform the design of health information technologies. Pregnant women have widely varied and important information needs, ranging from medical questions about pregnancy to logistical concerns about hospital policies. Individuals such as spouses may partner in the care of the mother and baby. These caregivers have unique characteristics, information needs, and preferences. Little is known about these needs, whether they are met, or the resources used to manage them. Adequately addressing such needs can improve prenatal care and maternal and fetal outcomes. Patients and families are increasingly adopting health information technologies ranging from Internet web sites to sophisticated patient portals. Such technologies can meet information needs, but concerning racial and ethnic disparities have been observed in their use. Complex social, economic, and cognitive factors are likely to contribute to the willingness to use technologies. Knowledge about patient and caregiver characteristics, information needs, and preferences could guide the design and support the adoption of health information technologies. This project will create an extensive knowledge base of characteristics, information needs, and management strategies of pregnant women and caregivers seen in the group prenatal care setting at the Vanderbilt Center for Women's Heath and at the Junior League Fetal Center at Vanderbilt. The research team will assess characteristics, capacities, and beliefs using validated surveys, interviews, and home visits at intervals during and after pregnancy. Demographics, socioeconomic factors, health literacy, numeracy, stress level, locus of control, technology usage and skills, mood, sleepiness, and home environment will be evaluated. Web site, blog, and micro-blog use will be studied. Information needs, management strategies, and preferences will be determined using sequential interviews and participant journals. This work will describe the types of information needs, the contexts in which they occur, and resources used to meet them. Patterns of needs and management strategies will be defined using the illness trajectory conceptual framework. Participants will be trained to use the MyHealthAtVanderbilt patient portal, and the research team will study how this portal is employed to meet information needs. Characteristics, capacities, and beliefs will be correlated with information needs, management strategies, and portal usage. This study will produce a robust understanding of consumer health information needs, management strategies, and preferences in perinatal setting and will provide broad design guidance for the creation of relevant health information technologies for pregnant women and their caregivers using established human factors engineering and user-centered design methods.