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Improving Quality of Life and Quality of Care for Oncology Family Caregivers

提高肿瘤家庭护理人员的生活质量和护理质量

基本信息

批准号：
8669919
负责人：
BETTY R FERRELL
金额：
$ 21.63万
依托单位：
BECKMAN RESEARCH INSTITUTE/CITY OF HOPE
依托单位国家：
美国
项目类别：
财政年份：
2010
资助国家：
美国
起止时间：
2010-05-01 至 2015-04-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8669919
关键词：
Address Adult American Association of Community Cancer Centers Attention Cancer Center Cancer Patient Cancer Survivorship Caring Characteristics Clinical Collaborations Communities Complex Comprehensive Cancer Center Continuing Education Continuity of Patient Care Development Discipline of Nursing Education Education Projects Educational Activities Educational Curriculum Educational workshop Evaluation Faculty Family Family Caregiver Goals Grant Health Educators Health Personnel Health Professional Individual Institution Literature Longevity Malignant Neoplasms Medicine Methods Modeling National Cancer Institute Nurses Nursing Education Outcome Pain management Palliative Care Participant Patients Pediatric Oncology Peer Review Physicians Process Measure Professional Organizations Provider Psychologist Psychology Publications Quality of Care Quality of life Research Research Personnel Social Work Social Workers Survivors Training Vulnerable Populations base cancer diagnosis cancer education cancer therapy caregiving cohort college end of life evidence base experience improved innovation loved ones oncology patient home care programs psychologic psychosocial research to practice skills social success treatment center

项目摘要

DESCRIPTION (provided by applicant): The ultimate aim of this training proposal is to improve quality of care and quality of life for those impacted by a loved one's cancer across the trajectory of illness. This proposal uses a quality of life model (QOL) to address physical, social, psychological and spiritual concerns associated with cancer and its treatment. Family caregivers (FC), although profoundly impacted by a loved one's cancer diagnosis, have received only minimal attention by most healthcare providers who are focused primarily upon the physical needs of the patient. The primary aim of this proposal is to develop and implement a national education program on family caregiving in cancer and this will be achieved through four annual workshops for two professionals each from 50 cancer treatment centers (total of N=400). Additional dissemination methods and an extensive evaluation will provide a basis for the continuing education of health care professionals beyond the project period. Specific Aims include: 1. Develop a comprehensive FC curriculum for training an interdisciplinary professional audience from cancer centers. The professional audience will include nurses, physicians and social workers as a first tier, and chaplains, psychologists, health educators and other professionals as a second tier. 2. Implement the Family Caregiving curriculum in national workshops to competitively selected staff from National Cancer Institute-designated clinical and comprehensive cancer centers, and community cancer centers as identified through the Association of Community Cancer Centers (ACCC). 3. Evaluate the impact of this curriculum by measuring process and outcomes of the educational activities on family caregivers and change-efforts initiated by the participants that impact family caregivers. 4. Disseminate the findings through peer-reviewed publications, various oncology organizations and professional networks and develop a network of course participants to share experiences in dissemination of the FC curriculum to the staff of participating cancer centers. Describe successes and issues related to dissemination of project actions in cancer centers in terms of the characteristics of individual course participants, interdisciplinary teams, and institutions. This proposal is consistent with the NCI Cancer Plan for 2008 strategic goal to "Improve the Quality of Life for Cancer Patients, Survivors and their families".

描述（由申请人提供）：本培训计划的最终目的是提高护理质量和生活质量，为那些受亲人癌症影响的人提供全面的疾病轨迹。该提案使用生活质量模型（QOL）来解决与癌症及其治疗相关的身体，社会，心理和精神问题。家庭照顾者（FC）虽然深受亲人癌症诊断的影响，但大多数医疗保健提供者只关注最小的关注，他们主要关注患者的身体需求。该提案的主要目的是制定和实施一项关于癌症家庭健康的国家教育计划，这将通过四个年度研讨会来实现，每个研讨会有来自50个癌症治疗中心的两名专业人员参加（总共N=400）。额外的传播方法和广泛的评估将为项目期后的卫生保健专业人员继续教育提供基础。具体目标包括：1。开发一个全面的FC课程，用于培训来自癌症中心的跨学科专业观众。专业观众将包括护士、医生和社会工作者作为第一层，牧师、心理学家、卫生教育工作者和其他专业人员作为第二层。 2.在国家研讨会上实施家庭护理课程，从国家癌症研究所指定的临床和综合癌症中心以及通过社区癌症中心协会（ACCC）确定的社区癌症中心竞争性地选择工作人员。 3.通过衡量家庭照顾者的教育活动的过程和结果，以及影响家庭照顾者的参与者发起的变革努力，评估本课程的影响。 4.通过同行评审的出版物、各种肿瘤学组织和专业网络传播研究结果，并建立一个课程参与者网络，以分享向参与癌症中心的工作人员传播FC课程的经验。根据个别课程参与者、跨学科团队和机构的特点，描述与癌症中心项目行动传播相关的成功和问题。这一建议符合NCI癌症计划2008年的战略目标，即“提高癌症患者、幸存者及其家属的生活质量”。