A regionally coordinated intervention to reduce racial disparities in access to k

区域协调干预措施，以减少获得知识方面的种族差异

• 批准号: 8588351
• 负责人: Rachel E Patzer
• 金额: $ 29.56万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-01-01 至 2015-11-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8588351
• 关键词: Administrator; Adopted; Adult; African American; Caring; Censuses; Collaborations; Communities; Cost Savings; Data; Data Sources; Development; Dialysis patients; Dialysis procedure; Education; Effectiveness; End stage renal failure; Evaluation; Feedback; Goals; Grant; Health Services Accessibility; Hospitalization; Improve Access; Intervention; Kidney; Kidney Diseases; Kidney Transplantation; Life; Link; Living Donors; Modeling; Modification; Needs Assessment; Neighborhoods; North Carolina; Organ; Organ Procurements; Patient advocacy; Patients; Population; Positioning Attribute; Poverty; Process; Provider; Quality of Care; Quality of life; Randomized; Reporting; Research; Research Methodology; Research Personnel; Resources; Social Workers; South Carolina; Surveys; System; Testing; Time; Transplant Recipients; Transplantation; United States; advocacy organizations; base; community based participatory research; community intervention; disease diagnosis; experience; health disparity; member; multidisciplinary; novel; patient advocacy group; post intervention; programs; quality improvement organization; volunteer

DESCRIPTION (provided by applicant): The Southeastern Kidney Transplant (SEKTx) Coalition is an academic-community collaboration between partners in the kidney disease community who share the common goal of eliminating health disparities in access to kidney transplantation (KTx) among African American End Stage Renal Disease (ESRD) living in Georgia, North Carolina, and South Carolina. Volunteer members of this community-based coalition include ESRD and transplant patients, dialysis facility staff and providers, transplant centers, quality improvement organizations, and patient advocacy organizations. The burden of CKD and ESRD is highest in the Southeast, and yet the rate of KTx is the lowest in the nation. Further, our research suggests that racial disparities in access to KTx are concentrated in the Southeast, where African Americans (AA) are less likely to access each step in the KTx process. The long-term goal of the SEKTx Coalition is to use community- based participatory research approaches to develop, test, and disseminate sustainable, community interventions improve access to KTx for AA ESRD patients. In this planning grant, our specific aims are: Specific Aim 1. To determine the patient-, dialysis facility-, and neighborhood-level barriers to KTx in ESRD Network 6. Specific Aim 2: To develop a multilevel intervention to reduce racial disparities in access to KTx. Specific Aim 3: To determine the feasibility and effectiveness of a pilot intervention to reduce disparities in' KTx access in GA. The long-term impact of this application will be to reduce racial disparities in the kidney disease community. RELEVANCE: The burden of CKD and ESRD is highest in the Southeast, and yet the rate of KTx is the lowest in the nation. The proposed study seeks to leverage an existing academic-community collaboration with the Southeastern Kidney Transplant Coalition to identify barriers to KTx and to plan, implement, and evaluate a multilevel intervention targeting ESRD patients and dialysis facility staff.

描述(由申请人提供)：东南肾移植(SEKTx)联盟是肾脏疾病社区合作伙伴之间的学术和社区合作，他们的共同目标是消除居住在佐治亚州、北卡罗来纳州和南卡罗来纳州的非裔美国人终末期肾病(ESRD)患者在获得肾脏移植(KTX)方面的健康差距。这个以社区为基础的联盟的志愿者成员包括ESRD和移植患者、透析设施工作人员和提供者、移植中心、质量改进组织和患者倡导组织。东南部CKD和ESRD的负担最高，而KTX的患病率却是全国最低的。此外，我们的研究表明，获得KTX的种族差异集中在东南部，那里的非裔美国人(AA)不太可能获得KTX过程的每一步。SEKTx联盟的长期目标是使用以社区为基础的参与性研究方法来开发、测试和传播可持续的社区干预措施，改善AA ESRD患者获得KTX的机会。在这项计划拨款中，我们的具体目标是：具体目标1.确定ESRD网络中患者、透析设施和社区层面对KTX的障碍6.具体目标2：发展多层次干预措施，以减少获得KTX的种族差异。具体目标3：确定试点干预措施的可行性和有效性，以减少在GA获得KTX方面的差距。这一应用的长期影响将是减少肾脏疾病社区的种族差异。 相关性：慢性肾脏病和终末期肾病的负担在东南部最高，而KTX的发病率在全国是最低的。这项拟议的研究旨在利用现有的学术界和社区与东南肾移植联盟的合作来确定KTX的障碍，并计划、实施和评估针对终末期肾病患者和透析设施工作人员的多水平干预。