Analysis of Linked NHIS Registry Data

关联 NHIS 登记数据分析

• 批准号: 8887105
• 负责人: David J Lee
• 金额: $ 7.68万
• 依托单位: UNIVERSITY OF MIAMI SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-07-04 至 2017-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8887105
• 关键词: American; Behavior; Biological; Cancer Survivor; Centers for Disease Control and Prevention (U.S.); Certification; Cessation of life; Clinical; Collaborations; Complex; Confidentiality; Data; Data Analyses; Data Linkages; Data Set; Data Sources; Databases; Development; Diagnosis; Expenditure; Florida; Funding; Future; Goals; Health; Health Services Accessibility; Health Services Research; Health Status; Health Surveys; Health behavior; Healthcare; Housing; Individual; Information Systems; Interview; Journals; Leadership; Letters; Link; Malignant Neoplasms; Measures; Medical; Medical Surveillance; Medicare claim; Morbidity - disease rate; National Cancer Institute; National Health Interview Survey; National Health and Nutrition Examination Survey; Nature; Obesity; Participant; Patient Self-Report; Patients; Peer Review; Persons; Plant Roots; Population; Publications; Publishing; Reading; Recording of previous events; Records; Registries; Relative (related person); Research; Research Personnel; Respondent; Risk; Risk Factors; Series; Smoker; Staging; Surveys; Survival Rate; Time; United States; United States National Center for Health Statistics; Universities; cancer risk; cohort; data registry; demographics; health care quality; health care service utilization; health data; health disparity; improved; indexing; meetings; member; mortality; neoplasm registry; programs; screening; statistics; treatment strategy; trend

DESCRIPTION (provided by applicant): The historically de-centralized nature of cancer surveillance in the United States, combined with the paramount need for the protection of patient and survey respondent confidentiality, has hampered efforts to perform cancer registry linkages with nationally representative health studies. Expansion of such data linkages has enormous potential for furthering the disparities along the cancer continuum. Since 1986, over two million people have participated in nationally representative health surveys undertaken by the National Center for Health for Health Statistics (NCHS) including the National Health Interview Survey (NHIS). In close collaboration with key NCHS members, Investigators at the University of Miami have recently completed a linkage with NHIS survey data and the Florida cancer registry, the Florida Cancer Data System (FCDS), which annually identifies 6% of all cancer cases in the US. There were over 1.7 million eligible records from the NHIS and 2.5 million eligible records from the FCDS, which resulted in a final linked and greatly enriched dataset of 7,483 cancer cases. This linkage is now housed at the NCHS Research Data Center (RDC) with strict confidentiality controls for indirect analysis access. Our long-term objective is to create a Consortium to perform data linkages utilizing the records from the NCHS surveys with all US cancer registries. Once in place, this Consortium will enable us to create a highly enriched database of an estimated 96,000 or more persons diagnosed with cancer before and after their participation in the nationally-representative NCHS surveys, creating unique cohorts of both cancer survivors and future cancer cases. Prior to undertaking the complex task of building this Consortium, we seek R03 funding to analyze these data for the purpose of demonstrating the utility of the linkage to key stakeholders and to gather data needed for future power calculations. Our study Aims include: 1) Document health behavior, health and morbidity status of FCDS-identified cancer survivors; perform a multivariable comparison with those cancer-free at the time of their NHIS interview; 2) Document predictors of cancer onset in those cancer-free at the time of their NHIS interview; 3) Document changes in mortality trends of cancer survivors and among participants who go on to develop cancer; 4) Disseminate study findings to key stakeholders through presentations and publications in targeted peer-reviewed publications to promote development of the Consortium.

描述（由申请人提供）：美国癌症监测的历史分散性，加上保护患者和调查应答者的机密性的首要需要，阻碍了将癌症登记与具有全国代表性的健康研究联系起来的努力。这种数据联系的扩大对于进一步扩大癌症连续体的差异具有巨大的潜力。自1986年以来，有200多万人参加了由国家卫生统计中心进行的具有全国代表性的健康调查，包括全国健康访谈调查。在与NCHS主要成员的密切合作下，迈阿密大学的研究人员最近完成了与NHIS调查数据和佛罗里达癌症登记处（佛罗里达癌症数据系统（FCDS））的联系，该系统每年确定美国6%的癌症病例。NHIS有超过170万份符合条件的记录，FCDS有250万份符合条件的记录，最终形成了7483例癌症病例的关联和极大丰富的数据集。该链接现在位于NCHS研究数据中心（RDC），对间接分析访问具有严格的机密控制。我们的长期目标是

项目成果

Linking the National Health Interview Survey with the Florida Cancer Data System: A Pilot Study.

将全国健康访谈调查与佛罗里达癌症数据系统联系起来：一项试点研究。

• 发表时间: 2016
• 期刊: Journal of registry management
• 作者: McClure,LauraA;Miller,EricA;Tannenbaum,StaceyL;Hernandez,MoniqueN;MacKinnon,JillA;He,Yulei;LeBlanc,WilliamG;Lee,DavidJ
• 通讯作者: Lee,DavidJ