Evaluating the Tablet-based Turkish-PAINReportIt for Assessing Pain of Lung Cancer Patients Post Thoracotomy in TURKEY

评估基于平板电脑的 Turkey-PAINReportIt 用于评估土耳其肺癌患者开胸术后疼痛

• 批准号: 9383202
• 负责人: DIANA J WILKIE
• 金额: $ 14.26万
• 依托单位: UNIVERSITY OF FLORIDA
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-21 至 2020-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9383202
• 关键词: Address; Adoption; Adult; American; Cancer Patient; Chinese People; Chronic; Clinic; Clinical; Cognitive; Collaborations; Computer software; Computers; Data; Diagnosis; Dimensions; Focus Groups; Future; Goals; Health Personnel; Hospitals; Human; Incidence; Inpatients; Instruction; Internet; Interview; Language; Lead; Location; Longitudinal Studies; Lung; Malignant Neoplasms; Malignant neoplasm of lung; McGill Pain Scale; Meleagris gallopavo; Methods; Modeling; Nurses; Operative Surgical Procedures; Outpatients; Pain; Pain Assessment Tool; Pain Measurement; Pain intensity; Pain management; Pain quality; Patients; Pattern; Perioperative Nursing; Physicians; Population; Postoperative Pain; Postoperative Period; Process; Provider; Publishing; Questionnaires; Recovery; Reporting; Sampling; Sickle Cell; Surgeon; Syndrome; Tablets; Technology; Testing; Thoracic Surgical Procedures; Thoracotomy; Time; Translating; United States National Institutes of Health; Validation; Visit; Wireless Technology; anticancer research; base; bilingualism; cancer care; cancer pain; cancer surgery; cancer therapy; cancer type; chronic pain; clinical practice; computerized; experience; follow-up; hospice environment; improved; innovation; instrument; member; multilevel analysis; novel; prevent; programs; research study; skills; statistics; technology validation; tool; usability

Abstract Our long-term goal is to first assess and ultimately manage pain after lung cancer surgery using computer technologies to minimize pain assessment barriers and thereby support clinical pain management processes. The first step in assuring high quality pain management is appropriate pain assessment. However, the barriers to pain assessment are among the causes for unrelieved pain. The lack of time-efficient comprehensive pain assessment tools and patients' difficulties in completing the tools are among the most known barriers to assessing pain in Turkey. Recent studies show that Americans are able to use computers to report their pain. A computerized format for pain assessment called PAINReportIt®, published in 2003, is the first interactive software extension of the 1970 McGill Pain Questionnaire. This innovative method can provide pain measurement items to responders in serial display screens accompanied by pop-up screens. It has been tested in English-, Spanish-, and Mandarin Chinese-speaking adults, but it has not been tested among Turkish- speaking adults. Furthermore, there are not any tablet-based pain assessment tools being used in hospitals or clinics in Turkey. Therefore, to establish our potential for collaboration, we used a committee approach with 3 bilingual translators to independently translate PAINReportIt® from English to Turkish, reconcile differences, and agree on an integrated version. We now propose a three-component study to validate and facilitate implementation of the Turkish- PAINReportIt® in Turkey: (1) a qualitative study to assess patients' interpretation of the Turkish-PAINReportIt® items and instructions among 20 Turkish lung cancer outpatients who will participate in cognitive (think-aloud) interviews to validate the Turkish-PAINReportIt®, (2) an 8-member focus group with lung cancer surgeons and surgical nurses to discuss the issues and benefits they would anticipate if the Turkish-PAINReportIt® were implemented in research studies and cancer care, and (3) a longitudinal study to profile post-thoracotomy pain recovery among 80 Turkish lung cancer patients who will be asked to complete the tool on an Internet-enabled tablet daily on postoperative days 1 to 4 and at their 2-week postoperative follow-up visit. Patients will complete a usability and acceptability questionnaire to share their opinions about using Turkish-PAINReportIt® to report their pain. The specific aims are to (1) describe the meanings attributed to the Turkish-PAINReportIt® items and instructions by Turkish patients who are post- thoracotomy for lung cancer treatment, (2) identify the technical and human (patient, nurse, and physician) factors that could be barriers or facilitators to use the Turkish-PAINReportIt®, (3) characterize the pain (location, intensity, quality, pattern) they experience longitudinally after surgery when pain is expected to decrease as their recovery progresses. We expect to discover barriers that can be addressed and facilitators for successful adoption in cancer research and practice in Turkey. Successful use of the tablet-based pain tool could lead to improved pain control for the Turkish people diagnosed annually with lung and other cancers.

摘要 我们的长期目标是首先使用计算机评估并最终管理肺癌手术后的疼痛 最大限度地减少疼痛评估障碍的技术，从而支持临床疼痛管理过程。 确保高质量疼痛管理的第一步是适当的疼痛评估。然而，障碍 疼痛评估是疼痛未缓解的原因之一。缺乏时效性的综合痛点 评估工具和患者在完成这些工具方面的困难是最常见的障碍， 在土耳其的疼痛。最近的研究表明，美国人能够使用计算机来报告他们的痛苦。 2003年出版的一种名为PAINReportIt®的疼痛评估计算机格式是第一个交互式的 1970年麦吉尔疼痛问卷的软件扩展。这种创新的方法可以提供疼痛 测量项目的响应者在串行显示屏伴随弹出屏幕。已经 在讲英语、西班牙语和汉语普通话的成年人中进行了测试，但尚未在土耳其人中进行测试， 成年人说话。此外，没有任何基于平板电脑的疼痛评估工具在医院或医疗机构中使用。 土耳其的诊所因此，为了建立我们的合作潜力，我们采用了委员会的方法， 双语译员独立将PAINReportIt®从英语翻译成土耳其语，调和差异， 并商定一个综合版本。我们现在提出一个三部分的研究，以验证和促进 土耳其- PAINReportIt®在土耳其的实施：（1）评估患者解释的定性研究 20名土耳其肺癌门诊患者中的Turkish-PainReportIt®项目和说明， 参与认知（有声思维）访谈，以验证Turkish-PainReportIt®，（2）8人焦点 与肺癌外科医生和外科护士一起讨论他们预期的问题和好处， Turkish-PAINReportIt®在研究和癌症护理中实施，以及（3）纵向研究 描述80名土耳其肺癌患者的开胸术后疼痛恢复情况， 在术后第1 - 4天和术后第2周，每天在支持互联网的平板电脑上完成工具 术后随访。患者将完成一份可用性和可接受性问卷， 关于使用Turkish-PainReportIt®报告疼痛的意见。具体目标是（1）描述 土耳其疼痛报告（Turkish-PainReportIt®）项目和说明的含义， 肺癌治疗的开胸手术，（2）确定技术人员和人员（患者，护士和医生） 可能成为使用Turkish-PainReportIt®的障碍或促进因素，（3）描述疼痛特征 （位置，强度，质量，模式）他们在手术后纵向经历疼痛时， 随着恢复的进展而减少。我们希望发现可以解决的障碍和促进因素 在土耳其的癌症研究和实践中成功采用。成功使用基于平板电脑的疼痛工具 可能会改善每年被诊断患有肺癌和其他癌症的土耳其人的疼痛控制。