Center for End-of-Life Transition Research (CEoLTR)

临终过渡研究中心 (CEoLTR)

• 批准号: 8097425
• 负责人: DIANA J WILKIE
• 金额: $ 45.6万
• 依托单位: UNIVERSITY OF ILLINOIS AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-09-29 至 2012-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8097425
• 关键词: Center; End; Life; Transition; Research

The overall purpose of the Center for End-of-Life Transition Research is to advance the science of care for people facing the end-of-life transition across the life span (e.g., babies born dying, children, adults, and older adults). We will emphasize patient-centered, family-focused respectful death with planning for end-of life care that is consistent with the patients' and families' values and priorities (e.g., awareness about ways people die and advance care planning) and expected death experiences (e.g., palliative care, approaching dying, and bereavement). The specific aims of this Center application are to: (1) advance nursing science related to the end-of-life transition; (2) strengthen the ethical use of qualitative and quantitative (mixed methods) methodologies by Center investigators/affiliates and train novices regarding the ethical issues in end of life research and mixed methods measurement of biobehavioral (biological, behavioral, and experiential) variables, management of data, and analysis of data; (3) expand the capacity to conduct end of-life research with informatics solutions that contribute to high integrity processes and efficient, valid, and reliable outcomes in institutional and community-based settings; and (4) facilitate the dissemination of end of-life research findings to the scientific and clinical communities and to the general public. Through the Center activities, we will advance the science of disparities in care at end-of-Iife and support research training in this area by providing core services and resources to investigators. The scientific focus is conceptually organized according to an ecologically based, health-related quality of life framework that addresses both person and environmental factors as they interact to affect respectful death outcomes for individuals and families. Studies supported by the Center will be designed to: (a) elucidate underlying physiological, experiential, and behavioral mechanisms that prognosticate or influence approaching death or bereavement; and (b) test culturally relevant interventions for death awareness and respectful death. The research supported by the Center will have a biobehavioral orientation and will include end-of life-care concepts that are measured physiologically (biologic function), experientially (symptoms, perceived health, quality of life), and behaviorally (functional status). The interaction of investigators with expertise in diverse groups of subjects will move the science of end-of-life care forward in new directions.

生命终结过渡研究中心的总体目的是促进对面临生命终结过渡的人的护理科学（例如，出生时死亡的婴儿、儿童、成年人和老年人）。我们将强调以患者为中心，以家庭为中心的尊重死亡，并制定与患者和家属的价值观和优先事项（例如，了解人们死亡的方式和提前护理计划）和预期死亡体验（例如，姑息治疗，接近死亡和丧亲之痛）相一致的临终关怀计划。本中心申请的具体目标是：(1)推进与生命终结过渡相关的护理科学；(2)加强中心研究人员/附属机构对定性和定量（混合方法）方法的伦理使用，并培训新手关于生命终结研究和生物行为（生物学、行为和经验）变量的混合方法测量、数据管理和数据分析的伦理问题；(3)利用信息学解决方案扩大开展生命末期研究的能力，这些解决方案有助于在机构和社区环境中实现高完整性过程和高效、有效和可靠的结果；(4)促进向科学界、临床界和公众传播临终研究成果。通过中心的活动，我们将推进临终关怀差异科学，并通过向研究人员提供核心服务和资源，支持这一领域的研究培训。科学重点在概念上是根据基于生态的、与健康有关的生活质量框架组织的，该框架处理个人和环境因素，因为它们相互作用，影响个人和家庭的体面死亡结果。该中心支持的研究将旨在：(a)阐明预测或影响临近死亡或丧亲的潜在生理、经验和行为机制；(b)测试与死亡意识和尊重死亡相关的文化干预措施。该中心支持的研究将以生物行为为导向，并将包括生理上（生物功能）、经验上（症状、感知健康、生活质量）和行为上（功能状态）的临终关怀概念。具有不同学科专业知识的研究人员的互动将推动临终关怀科学向新的方向发展。

项目成果

Pediatric nurses' beliefs and pain management practices: an intervention pilot.

• DOI: 10.1177/0193945910391681
• 发表时间: 2011-10
• 期刊: Western journal of nursing research
• 影响因子: 1.8
• 作者: Van Hulle Vincent C;Wilkie DJ;Wang E
• 通讯作者: Wang E

Implementation challenges in end-of-life research with adults with intellectual and developmental disabilities.

对患有智力和发育障碍的成年人进行临终研究的实施挑战。

• DOI: 10.1016/j.apnr.2014.10.002
• 发表时间: 2015
• 期刊: Applied nursing research : ANR
• 作者: Savage,TeresaA;Moro,TeresaThalia;Boyden,JackelynY;Brown,AllisonA;Kavanaugh,KarenL
• 通讯作者: Kavanaugh,KarenL

Developing a blended course on dying, loss, and grief.

• DOI: 10.1097/nne.0b013e31819fcad1
• 发表时间: 2009-05
• 期刊: Nurse educator
• 影响因子: 2.6
• 作者: Kavanaugh K;Andreoni VA;Wilkie DJ;Burgener S;Buschmann MB;Henderson G;Hsiung YF;Zhao Z
• 通讯作者: Zhao Z

Predictors of valid engagement with a video streaming web study among asian american and non-Hispanic white college students.

亚裔美国和非西班牙裔白人大学生有效参与视频流网络研究的预测因素。

• DOI: 10.1097/cin.0000000000000035
• 发表时间: 2014
• 期刊: Computers, informatics, nursing : CIN
• 作者: Park,Hanjong;Choi,Heeseung;Suarez,MarieL;Zhao,Zhongsheng;Park,Chang;Wilkie,DianaJ
• 通讯作者: Wilkie,DianaJ

Development of an informational web site for recruiting research participants: process, implementation, and evaluation.

• DOI: 10.1097/ncn.0b013e318224b52f
• 发表时间: 2011-10
• 期刊: Computers, informatics, nursing : CIN
• 作者: Hershberger PE;Kavanaugh K;Hamilton R;Klock SC;Merry L;Olshansky E;Pierce PF
• 通讯作者: Pierce PF