ELSI Biennial Congress
ELSI 双年度大会
基本信息
- 批准号:9978098
- 负责人:
- 金额:--
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2019
- 资助国家:美国
- 起止时间:2019-07-15 至 2024-06-30
- 项目状态:已结题
- 来源:
- 关键词:AddressAffectAmericanBioethicsBiomedical ResearchBudgetsCollaborationsCommunitiesCongressesDatabasesDepartment of EnergyDevelopmentDisciplineEmerging TechnologiesEngineeringEthicsFamilyFeedbackFundingGenerationsGeneticGenetic ResearchGenomicsGoalsGrantGrowthHealthHuman GeneticsHumanitiesIndividualInvestmentsJournalsKnowledgeLaboratoriesLawsLeadershipMedical GeneticsMedicineMethodsMissionNational Human Genome Research InstituteNational Institute of Child Health and Human DevelopmentNatural SciencesParticipantPublicationsReportingResearchResearch PersonnelResearch Project GrantsResearch TrainingResourcesScheduleSocial SciencesSocietiesSpeedTrainingTraining ProgramsTranslationsUnderrepresented GroupsUnited States National Institutes of HealthUniversitiesWorkbaseclinical caredesigndisabilityethical legal social implicationexperiencefallsimprovedinnovationmedical schoolsmeetingsmultidisciplinarynext generationoutreachprogramsracial and ethnicresponsesymposiumtranslational genomics
项目摘要
PROJECT SUMMARY
For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the
study of the ethical, legal and social implications (ELSI) of genetic and genomic research for individuals,
families and communities and supported the growth of a generation of ELSI researchers. ELSI research has
developed into a multidisciplinary field that spans the humanities, social sciences, natural sciences,
engineering, medicine and law. Despite these developments, opportunities for ELSI researchers to present
their research to their ELSI colleagues have been limited, as there is no regularly scheduled conference
dedicated to ELSI research. Current opportunities are limited to ad hoc sessions in related professional
meetings, and tend to be few in number and do not include the range of research or researchers
conducting ELSI studies nor offer the depth of exchange and dialogue that a dedicated meeting would
provide.
To address the need for a regularly scheduled ELSI Congress, we propose to organize biennial ELSI
Congresses in 2020, 2022, and 2024. Our multi-disciplinary team brings over two decades of experience in
leading ELSI funded research and training programs and engaging a broad range of stakeholders in ELSI
research and translational genomics. Guided by the principles of inclusion, diversity and access, the specific
aims of this proposal are:
1. To organize three biennial Congresses (2020, 2022, 2024) that highlight high-quality, high-impact ELSI
research.
2. To achieve diversity of perspectives and approaches represented in the Congresses towards the goal
of increasing the rigor and expanding the intellectual base of ELSI research.
3. To use feedback from Congress organizers and participants to develop improved approaches and
features with each subsequent meeting.
项目摘要
近三十年来,国家人类基因组研究所(NHGRI)一直支持
研究遗传和基因组研究对个人的伦理、法律的和社会影响,
家庭和社区,并支持了一代ELSI研究人员的成长。ELSI研究已经
发展成为一个跨人文、社会科学、自然科学、
工程、医学和法律。尽管有这些发展,ELSI研究人员提出的机会,
由于没有定期安排的会议,他们向ELSI同事提供的研究有限
致力于ELSI研究。目前的机会仅限于相关专业的临时会议
会议,往往是在数量很少,不包括研究或研究人员的范围
进行ELSI研究,也不能提供专门会议所能提供的交流和对话的深度。
提供.
为满足定期举行电子信息学大会的需要,我们建议每两年举办一次电子信息学大会
2020年、2022年和2024年的国会。我们的多学科团队带来了超过二十年的经验,
领导ELSI资助的研究和培训计划,并吸引广泛的利益相关者参与ELSI
研究和翻译基因组学。在包容性、多样性和可及性原则的指导下,
这项建议的目的是:
1.组织三届两年一次的大会(2020年、2022年、2024年),突出高质量、高影响力的ELSI
research.
2.为实现这一目标,
增加了ELSI研究的严谨性和扩大了ELSI研究的知识基础。
3.利用大会组织者和与会者的反馈意见,制定改进的办法,
在以后的每一次会议上。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Mildred K. Cho其他文献
Consent and engagement, security, and authentic living using wearable and mobile health technology
使用可穿戴和移动健康技术的同意和参与、安全性和真实的生活
- DOI:
10.1038/nbt.3887 - 发表时间:
2017 - 期刊:
- 影响因子:46.9
- 作者:
Karola V Kreitmair;Mildred K. Cho;David C Magnus - 通讯作者:
David C Magnus
Toward a framework for risk mitigation of potential misuse of artificial intelligence in biomedical research
迈向用于减轻生物医学研究中人工智能潜在滥用风险的框架
- DOI:
10.1038/s42256-024-00926-3 - 发表时间:
2024-11-26 - 期刊:
- 影响因子:23.900
- 作者:
Artem A. Trotsyuk;Quinn Waeiss;Raina Talwar Bhatia;Brandon J. Aponte;Isabella M. L. Heffernan;Devika Madgavkar;Ryan Marshall Felder;Lisa Soleymani Lehmann;Megan J. Palmer;Hank Greely;Russell Wald;Lea Goetz;Markus Trengove;Robert Vandersluis;Herbert Lin;Mildred K. Cho;Russ B. Altman;Drew Endy;David A. Relman;Margaret Levi;Debra Satz;David Magnus - 通讯作者:
David Magnus
Moral Engagement and Disengagement in Health Care AI Development.
医疗保健人工智能开发中的道德参与和脱离。
- DOI:
10.1080/23294515.2024.2336906 - 发表时间:
2024 - 期刊:
- 影响因子:0
- 作者:
A. Nichol;Meghan Halley;Carole A Federico;Mildred K. Cho;Pamela L Sankar - 通讯作者:
Pamela L Sankar
Understanding the Gap: A Cross-Sectional Survey of ELSI Scholars’ Dissemination Practices and Translation Goals
了解差距:ELSI 学者传播实践和翻译目标的横断面调查
- DOI:
10.1080/23294515.2024.2355898 - 发表时间:
2024 - 期刊:
- 影响因子:0
- 作者:
Deanne Dunbar Dolan;Rachel H Lee;Mildred K. Cho;Sandra Soo - 通讯作者:
Sandra Soo
Spotlighting Structural Constraints on Decisions About Participation in Genomic and Precision Medicine.
关注参与基因组和精准医学决策的结构性限制。
- DOI:
- 发表时间:
2024 - 期刊:
- 影响因子:0
- 作者:
Deanne Dunbar Dolan;Mildred K. Cho;Sandra Soo - 通讯作者:
Sandra Soo
Mildred K. Cho的其他文献
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{{ truncateString('Mildred K. Cho', 18)}}的其他基金
ELSI.hub: National Center for ELSI Resources and Analysis
ELSI.hub:国家 ELSI 资源和分析中心
- 批准号:
10165779 - 财政年份:2019
- 资助金额:
-- - 项目类别:
ELSIhub/ Center for ELSI Resources and Analysis (CERA) Accessibility Upgrades
ELSIhub/ELSI 资源和分析中心 (CERA) 辅助功能升级
- 批准号:
10809333 - 财政年份:2019
- 资助金额:
-- - 项目类别:
ELSI.hub: National Center for ELSI Resources and Analysis
ELSI.hub:国家 ELSI 资源和分析中心
- 批准号:
10409725 - 财政年份:2019
- 资助金额:
-- - 项目类别:
ELSI.hub: National Center for ELSI Resources and Analysis
ELSI.hub:国家 ELSI 资源和分析中心
- 批准号:
10681216 - 财政年份:2019
- 资助金额:
-- - 项目类别:
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