ELSI Biennial Congress

ELSI 双年度大会

• 批准号: 9978098
• 负责人: Mildred K. Cho
• 金额: --
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-15 至 2024-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9978098
• 关键词: Address; Affect; American; Bioethics; Biomedical Research; Budgets; Collaborations; Communities; Congresses; Databases; Department of Energy; Development; Discipline; Emerging Technologies; Engineering; Ethics; Family; Feedback; Funding; Generations; Genetic; Genetic Research; Genomics; Goals; Grant; Growth; Health; Human Genetics; Humanities; Individual; Investments; Journals; Knowledge; Laboratories; Laws; Leadership; Medical Genetics; Medicine; Methods; Mission; National Human Genome Research Institute; National Institute of Child Health and Human Development; Natural Sciences; Participant; Publications; Reporting; Research; Research Personnel; Research Project Grants; Research Training; Resources; Schedule; Social Sciences; Societies; Speed; Training; Training Programs; Translations; Underrepresented Groups; United States National Institutes of Health; Universities; Work; base; clinical care; design; disability; ethical legal social implication; experience; falls; improved; innovation; medical schools; meetings; multidisciplinary; next generation; outreach; programs; racial and ethnic; response; symposium; translational genomics

PROJECT SUMMARY For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for individuals, families and communities and supported the growth of a generation of ELSI researchers. ELSI research has developed into a multidisciplinary field that spans the humanities, social sciences, natural sciences, engineering, medicine and law. Despite these developments, opportunities for ELSI researchers to present their research to their ELSI colleagues have been limited, as there is no regularly scheduled conference dedicated to ELSI research. Current opportunities are limited to ad hoc sessions in related professional meetings, and tend to be few in number and do not include the range of research or researchers conducting ELSI studies nor offer the depth of exchange and dialogue that a dedicated meeting would provide. To address the need for a regularly scheduled ELSI Congress, we propose to organize biennial ELSI Congresses in 2020, 2022, and 2024. Our multi-disciplinary team brings over two decades of experience in leading ELSI funded research and training programs and engaging a broad range of stakeholders in ELSI research and translational genomics. Guided by the principles of inclusion, diversity and access, the specific aims of this proposal are: 1. To organize three biennial Congresses (2020, 2022, 2024) that highlight high-quality, high-impact ELSI research. 2. To achieve diversity of perspectives and approaches represented in the Congresses towards the goal of increasing the rigor and expanding the intellectual base of ELSI research. 3. To use feedback from Congress organizers and participants to develop improved approaches and features with each subsequent meeting.

项目摘要 近三十年来，国家人类基因组研究所（NHGRI）一直支持 研究遗传和基因组研究对个人的伦理、法律的和社会影响， 家庭和社区，并支持了一代ELSI研究人员的成长。ELSI研究已经 发展成为一个跨人文、社会科学、自然科学、 工程、医学和法律。尽管有这些发展，ELSI研究人员提出的机会， 由于没有定期安排的会议，他们向ELSI同事提供的研究有限 致力于ELSI研究。目前的机会仅限于相关专业的临时会议 会议，往往是在数量很少，不包括研究或研究人员的范围 进行ELSI研究，也不能提供专门会议所能提供的交流和对话的深度。 提供. 为满足定期举行电子信息学大会的需要，我们建议每两年举办一次电子信息学大会 2020年、2022年和2024年的国会。我们的多学科团队带来了超过二十年的经验， 领导ELSI资助的研究和培训计划，并吸引广泛的利益相关者参与ELSI 研究和翻译基因组学。在包容性、多样性和可及性原则的指导下， 这项建议的目的是： 1.组织三届两年一次的大会（2020年、2022年、2024年），突出高质量、高影响力的ELSI research. 2.为实现这一目标， 增加了ELSI研究的严谨性和扩大了ELSI研究的知识基础。 3.利用大会组织者和与会者的反馈意见，制定改进的办法， 在以后的每一次会议上。