ELSI Biennial Congress

ELSI 双年度大会

• 批准号: 9978098
• 负责人: Mildred K. Cho
• 金额: --
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-15 至 2024-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9978098
• 关键词: Address; Affect; American; Bioethics; Biomedical Research; Budgets; Collaborations; Communities; Congresses; Databases; Department of Energy; Development; Discipline; Emerging Technologies; Engineering; Ethics; Family; Feedback; Funding; Generations; Genetic; Genetic Research; Genomics; Goals; Grant; Growth; Health; Human Genetics; Humanities; Individual; Investments; Journals; Knowledge; Laboratories; Laws; Leadership; Medical Genetics; Medicine; Methods; Mission; National Human Genome Research Institute; National Institute of Child Health and Human Development; Natural Sciences; Participant; Publications; Reporting; Research; Research Personnel; Research Project Grants; Research Training; Resources; Schedule; Social Sciences; Societies; Speed; Training; Training Programs; Translations; Underrepresented Groups; United States National Institutes of Health; Universities; Work; base; clinical care; design; disability; ethical legal social implication; experience; falls; improved; innovation; medical schools; meetings; multidisciplinary; next generation; outreach; programs; racial and ethnic; response; symposium; translational genomics

PROJECT SUMMARY For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for individuals, families and communities and supported the growth of a generation of ELSI researchers. ELSI research has developed into a multidisciplinary field that spans the humanities, social sciences, natural sciences, engineering, medicine and law. Despite these developments, opportunities for ELSI researchers to present their research to their ELSI colleagues have been limited, as there is no regularly scheduled conference dedicated to ELSI research. Current opportunities are limited to ad hoc sessions in related professional meetings, and tend to be few in number and do not include the range of research or researchers conducting ELSI studies nor offer the depth of exchange and dialogue that a dedicated meeting would provide. To address the need for a regularly scheduled ELSI Congress, we propose to organize biennial ELSI Congresses in 2020, 2022, and 2024. Our multi-disciplinary team brings over two decades of experience in leading ELSI funded research and training programs and engaging a broad range of stakeholders in ELSI research and translational genomics. Guided by the principles of inclusion, diversity and access, the specific aims of this proposal are: 1. To organize three biennial Congresses (2020, 2022, 2024) that highlight high-quality, high-impact ELSI research. 2. To achieve diversity of perspectives and approaches represented in the Congresses towards the goal of increasing the rigor and expanding the intellectual base of ELSI research. 3. To use feedback from Congress organizers and participants to develop improved approaches and features with each subsequent meeting.

项目总结