ELSI Biennial Congress

项目总结 近三十年来，美国国家人类基因组研究所一直支持 研究遗传和基因组研究对个人的伦理、法律和社会影响， 家庭和社区，并支持新一代ELSI研究人员的成长。ELSI的研究已经 发展成为一个跨越人文、社会科学、自然科学、 工程学、医学和法学。尽管有这些发展，ELSI研究人员仍有机会提出 他们对ELSI同事的研究有限，因为没有定期安排的会议 致力于ELSI研究。目前的机会仅限于相关专业人员的临时会议 会议，数量往往很少，不包括研究或研究人员的范围 进行ELSI研究，也不提供专门会议所能提供的交流和对话的深度 提供。 为了满足定期召开ELSI大会的需要，我们建议每两年举办一次ELSI 2020年、2022年和2024年的国会。我们的多学科团队带来了二十多年的经验 领导ELSI资助的研究和培训计划，并让广泛的利益相关者参与ELSI 研究和翻译基因组学。在包容性、多样性和可获取性原则的指导下， 这项建议的目的是： 1.组织三届两年一度的大会(2020、2022、2024)，突出高质量、高影响力的经济、社会和文化权利倡议 研究。 2.实现大会所代表的实现千年发展目标的观点和方法的多样性 提高ELSI研究的严谨性和扩大其智力基础。 3.利用大会组织者和与会者的反馈意见，制定改进的方法和 每一次后续会议的特点。

PROJECT SUMMARY For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for individuals, families and communities and supported the growth of a generation of ELSI researchers. ELSI research has developed into a multidisciplinary field that spans the humanities, social sciences, natural sciences, engineering, medicine and law. Despite these developments, opportunities for ELSI researchers to present their research to their ELSI colleagues have been limited, as there is no regularly scheduled conference dedicated to ELSI research. Current opportunities are limited to ad hoc sessions in related professional meetings, and tend to be few in number and do not include the range of research or researchers conducting ELSI studies nor offer the depth of exchange and dialogue that a dedicated meeting would provide. To address the need for a regularly scheduled ELSI Congress, we propose to organize biennial ELSI Congresses in 2020, 2022, and 2024. Our multi-disciplinary team brings over two decades of experience in leading ELSI funded research and training programs and engaging a broad range of stakeholders in ELSI research and translational genomics. Guided by the principles of inclusion, diversity and access, the specific aims of this proposal are: 1. To organize three biennial Congresses (2020, 2022, 2024) that highlight high-quality, high-impact ELSI research. 2. To achieve diversity of perspectives and approaches represented in the Congresses towards the goal of increasing the rigor and expanding the intellectual base of ELSI research. 3. To use feedback from Congress organizers and participants to develop improved approaches and features with each subsequent meeting.