Administrative Core

摘要 脑血管畸形联合会(BVMC)管理核心(AC)是 处理与开展拟议研究有关的广泛行政问题，包括人权 研究监管问题、出版物、报告和财务管理。管理委员会将提供行政管理 支持BVMC的所有项目，并将在编写进度报告、编写手稿、 以及研究会议和研讨会的集中安排。此外，咨询委员会还将提供学习方面的建议 为BVMC项目提供设计、统计和遗传支持。AC对于协调 作为BVMC的一部分并将管理职业提升核心的跨学科临床计划 和试点/可行性核心。首要目标将是提供一个相互支持的环境，以促进 通过其各种委员会、会议和互动，在组成部分项目中开展临床研究活动 关于研究设计和数据分析。 目标1：为BVMC提供科学领导。审计委员会包括具有广泛和广泛的 在设计和进行临床研究方面的补充经验，包括一名统计学家， 流行病学家、遗传学家和血管神经外科医生(临床联络人)。此外，AC还进行了研究和 在脑血管畸形和正在研究的疾病方面的临床专长。与患者相结合 倡导团体代表表示，AC将为所有项目提供科学支持和指导。 目标2：协调会议，为相互交流意见提供支持性环境。交流电 可供所有核心和项目的领导和联合领导用于调度和协调委员会 会议和研究研讨会。这包括计划和安排旅行和酒店住宿 BVMC成员将与患者倡导组织(PAG)一起出席年度面对面会议- 赞助科学会议。 目标3：为BVMC项目提供行政支持。咨询委员会将提供协助，准备 手稿和演示文稿，进度报告生成，跟踪当前IRB批准情况，并协助 具有财务管理报告的项目/核心领导。咨询委员会还将负责更新BVMC 带有相关公告、研讨会和研究结果门户的Web服务器。空调也将是 负责转发RDCRN数据管理和协调中心的所有通信 (DMCC)、NIH和更大的RDCRC网络。

Abstract The Brain Vascular Malformation Consortium (BVMC) Administrative Core (AC) is a central resource for addressing a wide range of administrative issues related to the conduct of proposed research, including human research regulatory issues, publications, reports, and fiscal management. The AC will provide administrative support to all BVMC Projects, and will provide assistance in progress report generation, manuscript preparation, and central scheduling of research meetings and seminars. In addition, the AC will provide advice on study design, and statistical and genetic support for BVMC Projects. The AC is essential for the coordination of the interdisciplinary clinical programs that are part of the BVMC, and will manage the Career Enhancement Core and the Pilot/Feasibility Core. The overarching goal will be to provide a mutually supportive environment to foster clinical research activities in the component projects through its various committees, meetings, and interactions regarding research design and data analysis. Aim 1: Provide scientific leadership for the BVMC. The AC includes key personnel with extensive and complementary experience in designing and conducting clinical research studies, including a statistician, epidemiologist, geneticist, and a vascular neurosurgeon (clinical liaison). In addition, the AC has research and clinical expertise in brain vascular malformations and the diseases under study. Combined with the patient advocacy group representatives, the AC will provide scientific support and direction for all the Projects. Aim 2: Coordinate meetings and provide supportive environment for mutual exchange of ideas. The AC is available to the Leaders and Co-Leaders of all Cores and Projects for scheduling and coordinating committee meetings and research seminars. This includes scheduling and arranging travel and hotel accommodations for BVMC members to attend the annual in-person meeting in conjunction with Patient Advocacy Group (PAG)- sponsored scientific meetings. Aim 3: Provide administrative support to BVMC Projects. The AC will provide assistance in preparation of manuscripts and presentations, progress report generation, keeping track of current IRB approvals, and assisting Project/Core Leaders with fiscal management reports. The AC will also be responsible for updating the BVMC web server with relevant announcements, seminars, and a portal to research results. The AC will also be responsible for relaying all communications to/from the RDCRN Data Management and Coordinating Center (DMCC), NIH, and the larger RDCRC network.