Administrative Core

摘要 脑血管畸形联盟（BVMC）管理核心（AC）是一个中心资源， 解决与拟议研究的进行有关的广泛的行政问题，包括人类 研究监管问题、出版物、报告和财务管理。AC将提供行政 支持所有BVMC项目，并将在进度报告生成，手稿准备， 并集中安排研究会议和研讨会。此外，顾问委员会亦会提供有关研究的意见， BVMC项目的设计、统计和遗传支持。行政协调会对于协调 跨学科的临床计划，是BVMC的一部分，并将管理职业提升核心 和试点/可行性核心。总体目标是提供一个相互支持的环境， 通过各种委员会、会议和互动，在组成项目中开展临床研究活动 关于研究设计和数据分析。 目标1：为BVMC提供科学领导。AC包括具有广泛和 设计和开展临床研究的补充经验，包括统计学家， 流行病学家、遗传学家和血管神经外科医生（临床联络员）。此外，AC还进行了研究， 在脑血管畸形和正在研究的疾病的临床专业知识。结合患者 咨询委员会将为所有项目提供科学支持和指导。 目标2：协调会议，为相互交流意见提供支持性环境。交流 可供所有核心和项目的领导人和联合领导人安排和协调委员会 会议和研究研讨会。这包括安排和安排旅行和酒店住宿， BVMC成员将与患者倡导小组（PAG）一起参加年度面对面会议- 主办科学会议。 目标3：为BVMC项目提供行政支持。咨询委员会将提供协助， 手稿和演示文稿，进度报告生成，跟踪当前IRB批准，并协助 负责财务管理报告的项目/核心领导人。AC还将负责更新BVMC 提供相关公告、研讨会和研究成果门户网站的网络服务器。AC也将 负责中继RDCRN数据管理和协调中心的所有通信 （DMCC），NIH和更大的RDCRC网络。

Abstract The Brain Vascular Malformation Consortium (BVMC) Administrative Core (AC) is a central resource for addressing a wide range of administrative issues related to the conduct of proposed research, including human research regulatory issues, publications, reports, and fiscal management. The AC will provide administrative support to all BVMC Projects, and will provide assistance in progress report generation, manuscript preparation, and central scheduling of research meetings and seminars. In addition, the AC will provide advice on study design, and statistical and genetic support for BVMC Projects. The AC is essential for the coordination of the interdisciplinary clinical programs that are part of the BVMC, and will manage the Career Enhancement Core and the Pilot/Feasibility Core. The overarching goal will be to provide a mutually supportive environment to foster clinical research activities in the component projects through its various committees, meetings, and interactions regarding research design and data analysis. Aim 1: Provide scientific leadership for the BVMC. The AC includes key personnel with extensive and complementary experience in designing and conducting clinical research studies, including a statistician, epidemiologist, geneticist, and a vascular neurosurgeon (clinical liaison). In addition, the AC has research and clinical expertise in brain vascular malformations and the diseases under study. Combined with the patient advocacy group representatives, the AC will provide scientific support and direction for all the Projects. Aim 2: Coordinate meetings and provide supportive environment for mutual exchange of ideas. The AC is available to the Leaders and Co-Leaders of all Cores and Projects for scheduling and coordinating committee meetings and research seminars. This includes scheduling and arranging travel and hotel accommodations for BVMC members to attend the annual in-person meeting in conjunction with Patient Advocacy Group (PAG)- sponsored scientific meetings. Aim 3: Provide administrative support to BVMC Projects. The AC will provide assistance in preparation of manuscripts and presentations, progress report generation, keeping track of current IRB approvals, and assisting Project/Core Leaders with fiscal management reports. The AC will also be responsible for updating the BVMC web server with relevant announcements, seminars, and a portal to research results. The AC will also be responsible for relaying all communications to/from the RDCRN Data Management and Coordinating Center (DMCC), NIH, and the larger RDCRC network.