We Ask Because We Care: Enhancing Sexual Orientation and Gender Identity Data Collection in New Mexico Cancer Centers (Ask SOGI)
We Ask Because We Care: Enhancing Sexual Orientation and Gender Identity Data Collection in New Mexico Cancer Centers (Ask SOGI)
批准号:
10640767
负责人:
Alan E Tomkinson
金额:
$15.0万
依托单位国家:
美国
项目类别:
财政年份:
2005
资助国家:
美国
项目状态:
未结题
起止时间:
2005-09-26 至 2026-08-31
关键词:
Administrative SupplementAdoptionAnusAsianBehaviorBreastCancer CenterCancer Center Support GrantCancer PatientCaregiversCaringCervicalChronic stressClinical OncologyCollectionColorectalComplexComprehensive Cancer CenterDataData CollectionDiscriminationEducational InterventionEndometrialEvaluationFamilyFundingGender IdentityGeographyGrantHealthHeterosexualsHispanicIncidenceIndividualInterventionKnowledgeLeadLesbian Gay Bisexual TransgenderLifeLungMalignant NeoplasmsMeasuresMedicalMedical ResearchMedicineMissionNational Cancer InstituteNatureNew MexicoOutcomePatientsPopulationPopulation HeterogeneityProstateProviderPublic HealthRadialResearchResearch InstituteRiskRuralSex OrientationSexual and Gender MinoritiesStressTrainingTraining and EducationUnited States National Academy of SciencesUnited States National Institutes of HealthUniversitiesanticancer researchcancer carecisgendercultural competencedisabilityexperiencegender minority groupgender minority healthhealth equityhealth recordhormone related cancerimplementation frameworkimprovedminority patientpublic health relevanceracial and ethnicranpirnaseresponsesatisfactionscience and societyservice deliverysocial stigmasocioeconomicstherapy design
中文摘要
项目摘要/摘要
为回应NCI资助的P30癌症中心支持赠款机会,《P30的行政补编
癌症中心支持拨款以加强性取向和性别认同(SOGI)数据收集
研究将使用质量实施框架(QIF)来指导多层次SOGI数据的收集和利用
新墨西哥大学综合癌症中心的干预。美国国家科学院
科学和临床肿瘤学会呼吁SGM专门的教育和培训,以及与文化相关的服务
对于患有肛门、乳房、宫颈、结直肠癌风险较高且发病率较高的SGM患者,
子宫内膜癌、肺癌、前列腺癌和激素相关癌症。SGM个人,以及种族、民族、农村和其他
小规模人群,经历耻辱和歧视,可能会导致慢性压力,从而加剧癌症-
与异性、顺性白人相比,相关的压力、医疗不信任和导致更差的结果。
联合国儿童行动中心是方圆500英里内唯一由NCI指定的综合癌症中心,将在全州范围内提供
据估计,新墨西哥州75,000名SGM居民中有28,800人患有癌症,他们可能会在有生之年患上癌症。
SGM人具有复杂和交叉的身份,存在于国家内部和跨民族/种族(即49.1%
西班牙裔,10.9%的AI和37.1%的nhw,2.6%的黑人,1.8%的亚洲人)和地理上的不同人口。联合国儿童基金会也是
形成新墨西哥州癌症研究联盟的25个附属癌症护理机构的联系。合伙经营
与太平洋研究与评估研究所和国家LGBT癌症网络合作,研究小组将使用QIF
要确定系统性收集患者SOGI数据的潜在障碍,请纳入美国国家科学院
工程医学建议将SOGI措施纳入联合国儿童基金会电子健康记录,用于医疗和研究
利用,量身定制员工/提供者-文化能力/文化谦逊培训干预措施,并设计面向患者的“我们
询问,因为我们关心“活动,以鼓励欢迎和舒适的护理SGM患者及其家人。一个
使用智能目标的评估策略将用于评估开发的干预措施,以衡量纵向
联东综合团系统收集和利用特别保护措施的采用、覆盖范围和忠诚度、工作人员和
提供者培训,以及SGM患者、照顾者和家庭对“我们问,因为我们关心”活动的满意度。
英文摘要
PROJECT SUMMARY/ABSTRACT
In response to the NCI-funded P30 Cancer Center Support Grant opportunity, “Administrative Supplement for the P30
Cancer Center Support Grant to Enhance Sexual Orientation and Gender Identity (SOGI) Data Collection,” this proposed
research will use the Quality Implementation Framework (QIF) to guide a multi-level SOGI data collection and utilization
intervention at the University of New Mexico Comprehensive Cancer Center (UNMCCC). The National Academy of
Science and the Society of Clinical Oncology call for SGM specific education and training, and culturally relevant service
delivery for SGM persons at increased risk for, and with high incidence rates of, anal, breast, cervical, colorectal,
endometrial, lung, prostate, and hormone related cancers. SGM individuals, along with racial, ethnic, rural and other
minoritized populations, experience stigma and discrimination that may result in chronic stress that can compound cancer-
related-stress, medical mistrust, and lead to poorer outcomes when compared to heterosexual, cisgender white counterparts.
The UNMCCC is the only NCI-designated Comprehensive Cancer Center in a 500 mile radius, and will provide statewide
cancer care to an estimated 28,800 of New Mexico’s 75,000 SGM residents who will likely develop cancer in their lifetimes.
SGM persons have complex and intersecting identities existing within and across the State’s ethnically/racially (i.e. 49.1%
Hispanic, 10.9% AI and 37.1% NHW, 2.6% black, 1.8% Asian) and geographically diverse populations. UNMCCC is also
a nexus for twenty-five affiliate cancer care settings that form the New Mexico Cancer Research Alliance. In partnership
with the Pacific Institute for Research and Evaluation and the National LGBT Cancer Network, the study team will use QIF
to identify potential barriers to the systematic collection of patient SOGI data, incorporate National Academy of Science
Engeneering Medicine recommended SOGI measures into UNMCCC Eelectronic Health Records for medical and research
utilization, tailor staff/provider-cultural competency/cultural humility training interventions, and design patient-facing “We
Ask Because We Care” campaigns to encourage welcoming and comfortable care for SGM patients and their families. An
evaluation strategy using SMART objectives will be used to assess the developed intervention to measure the longitudinal
adoption, reach, and fidelity of systematic collection and utilization of SOGI measures at UNMCCC, efficacy of staff and
provider training, and SGM patient, caregiver and family satisfaction with the “We Ask Because We Care” campaign.
期刊论文(0)
专著(0)
科研奖励(0)
会议论文
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