Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10666445
• 负责人: DAVID K JOHNSON
• 金额: $ 30.67万
• 依托单位: UNIVERSITY OF CALIFORNIA AT DAVIS
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10666445
• 关键词: Advocacy; Affect; African American; Age; Alzheimer' s Disease; Alzheimer' s disease related dementia; Awareness; Back; Biological Markers; Black Populations; Black race; California; Caring; Catalogs; Clinical; Clinical Research; Cognitive; Collaborations; Color; Communities; Community Actions; Complex; Consent; Cultural Backgrounds; Dementia; Detection; Diagnosis; Disease; Disparity; Economics; Education; Educational Background; Elderly; Environment; Equity; Event; Facebook; Family; Gender; Goals; Health education; Healthcare; Heterogeneity; Hispanic; Hispanic Populations; Impaired cognition; Incentives; Individual; Knowledge; Life Experience; Loneliness; Marketing; Minority Recruitment; Nature; Newsletter; Not Hispanic or Latino; Older Population; Participant; Persons; Phenotype; Population; Population Heterogeneity; Prevalence; Prevention strategy; Process; Proxy; Public Health; Race; Recommendation; Recording of previous events; Research; Research Personnel; Research Project Grants; Resources; Risk; Services; Severity of illness; Time; Underrepresented Populations; Variant; Vision; cohort; community based participatory research; community based research; community engagement; coping; demographics; design; digital; digital media; digital platform; disability; disease classification; disease phenotype; efficacious treatment; ethnoracial; experience; hispanic community; indexing; innovation; interest; minority communities; novel; outreach; patient engagement; programs; recruit; research study; social; social determinants; social media; socioeconomics; tailored messaging; tool; treatment strategy; trend; urban setting

PROJECT SUMMARY – Outreach Recruitment and Engagement Core (OREC) Increased prevalence of dementia in African American and Hispanic communities compounds the disproportionate economic and social burden that ADRD has in these historically under-represented groups, thereby creating a public health crisis should these trends continue unabated. To innovate cures and treatments, we need to understand the broadest characterization of AD phenotypes to enable discovery for new biomarkers that index disease nosology and stage. UC Davis is a national leader for minority recruitment and retention due to its commitment to the principles of Community-Based Participatory Research (CBPR). Over its nearly 30-year history, the UC Davis ADRC has developed robust outreach and recruitment processes that reliably identifies, efficiently screens, and clearly consents older adult participants from a wide range of SES, educational and cultural backgrounds. We propose to enhance our continuing in-person efforts with a complimentary digital e-toolbox. These e-tools use novel digital media marketing that allows us to match unique participant demographics/interests (e.g., African American older adult without cognitive impairment living alone in an urban setting) with specific content (e.g., a video vignette about coping with loneliness and signs for when to see a doctor), thus enhancing participant engagement and creating a personally meaningful recruitment experience. We refer to the combined toolbox of both in-person and e-resources as the Memorable Outreach, Recruitment, Retention and Engagement (MORRE) toolbox. Using the enhanced MORRE toolbox we aim to: (1) Outreach to diverse older adult communities of Black, Hispanic and White older adults across Northern California; (2). Pique interest and call-to-action communities of color to participate in a clinical research program focusing on Alzheimer’s disease and related dementias; (3) Retain our participants in this clinical cohort by tailor making (a) appreciation events (in-person and digital) to focus on how their personal contributions of time and effort make the difference in care and treatment discovery; (b) easy-to-use health education media environment personalized to each participant’s age, education and level/stage of disability in-person using familiar digital platforms (e.g., Facebook, YouTube, e-newsletters, recommended content based on likes and viewing histories); and (4) Engage community leaders through our community advisory board (CAB) in an ongoing dialogue about research project design, community principles and priorities, potential facilitators and barriers that may impact recruitment, and strategize community-based research project implementation. The significance of this OREC is its foundational support and advocacy for a center-wide vision of CBPR though extensive collaboration with NIA, other ADRC cores and local community partners. The scientific impact of the OREC will be its creation of sophisticated technical resources that enhance recruitment, assessment and retention of Blacks and Hispanics into clinical research studies.

项目摘要--外联、征聘和接洽核心(OREC) 非洲裔美国人和西班牙裔社区痴呆症患病率的增加加剧了 ADRD在这些历史上代表性不足的群体中造成了不成比例的经济和社会负担， 因此，如果这些趋势继续有增无减，就会造成公共卫生危机。创新治疗方法和 治疗方面，我们需要了解AD表型的最广泛特征，以便能够发现 指示疾病病因学和分期的新生物标记物。加州大学戴维斯分校是全国少数族裔招聘的领先者 由于致力于以社区为基础的参与性研究(CBPR)原则，教科文组织将继续致力于保护和保留。 在其近30年的历史中，加州大学戴维斯分校制定了强有力的外展和招聘流程 可靠地识别、有效地筛选并明确同意来自广泛范围的老年参与者 社会、教育和文化背景。我们建议通过以下方式加强我们持续的面对面工作 免费数字电子工具箱。这些电子工具使用新的数字媒体营销，使我们能够匹配 独特的参与者人口统计/兴趣(例如，没有认知障碍的非裔美国老年人 独自生活在城市环境中)具有特定内容(例如，关于应对孤独的视频片段和 何时看病的标志)，从而增强参与者的参与度并创建个人 有意义的招聘经历。我们将面对面资源和电子资源的组合工具箱称为 令人难忘的外联、招聘、保留和参与(Morre)工具箱。使用增强型 Morre工具箱我们的目标是：(1)向黑人、西班牙裔和白人的不同老年社区伸出援手 北加州的老年人；(2)。Pique兴趣和行动号召有色人种社区参与 在一个专注于阿尔茨海默病和相关痴呆症的临床研究计划中；(3)保留我们的 这个临床队列的参与者通过量身定做(A)欣赏活动(面对面和数字)来重点关注 他们个人的时间和努力贡献如何在护理和治疗发现方面产生差异；(B) 易于使用的健康教育媒体环境，针对每个参与者的年龄、教育程度和 使用熟悉的数字平台(例如，Facebook、YouTube、电子新闻通讯、 基于点赞和观看历史的推荐内容)；以及(4)通过我们的 社区咨询委员会(CAB)正在就研究项目设计、社区原则进行对话 和优先事项、潜在的促进者和可能影响招聘的障碍，并制定基于社区的战略 研究项目实施情况。这个OREC的意义在于它对 通过与NIA、其他ADRC核心和当地社区的广泛合作，实现中心范围内的CBPR愿景 合伙人。OREC的科学影响将是它创造了复杂的技术资源， 加强对黑人和拉美裔美国人的招募、评估和保留，使其进入临床研究研究。