A Partnership to Enhance Research Related to the Management of Chronic Disease

加强慢性病管理相关研究的合作

• 批准号: 7689229
• 负责人: NOREEN M CLARK
• 金额: $ 3.86万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-09-30 至 2010-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7689229
• 关键词: Arthritis; Behavioral; Biological; Categories; Charities; Chronic; Chronic Disease; Clinical; Communication; Communities; Data; Data Analyses; Development; Diabetes Mellitus; Disease; Disease Management; Economics; Ensure; Face; Family; Heart; Individual; Informal Social Control; Intervention; Lead; Learning; Lung diseases; Malignant Neoplasms; Michigan; Modeling; Neurologic; Patient advocacy; Patients; Process; Research; Self Management; Surveys; United States National Institutes of Health; Universities; Work; base; biological research; community based participatory research; design; experience; implementation research; instrument; patient population; research and development; social

DESCRIPTION (as provided by applicant): Using a participatory research process, Advocacy for Patients with Chronic Illness Inc, 12 Patient Partners, and the Center for Managing Chronic Disease will conduct a survey of 1500 patients currently managing digestive, neurological or rheumatological (excluding arthritis) conditions. The aim of the survey is to identify the commonalities in a) the social, behavioral, economic and clinical challenges in day to day management by patients across these conditions; b) the importance and value that patients place on NIH-type research (biological, behavioral, clinical) and how they believe such research can help them; and c) the ways in which interventions and communications directed to them could be enhanced to be more accessible, informative and helpful. A model of self regulation combined with the direct day to day experience of the patient partners will guide the development of research instruments and implementation of the survey. Although considerable information about self management by patients with heart, cancer, respiratory disease, arthritis and diabetes is available, very little exploration of management tasks by patients with the targeted conditions is available. Findings from the study are expected to inform the efforts of clinicians and voluntary groups assisting such patients and to lead to the development of self management intervention to assist them. Individuals and their families face significant social, behavioral, economic and clinical challenges in managing a chronic condition and little is known about the commonalities in these challenges across digestive, neurological, and rheumatological (excluding arthritis) diseases. How patients find out about and value research related to these diseases is also not well understood. This participatory research will identify the common patient management challenges and how research and interventions can be made more accessible, informative, and helpful to patients among 1500 people managing the target conditions.

描述（如申请人提供）：使用参与式研究过程，倡导慢性病患者，12名患者伴侣和管理慢性病中心将对目前管理消化，神经学或流变学（不包括关节炎）病的1500名患者进行调查。调查的目的是确定a）患者在这些条件下，患者在日常管理中的社会，行为，经济和临床挑战； b）患者对NIH型研究（生物学，行为，临床）的重要性和价值，以及他们认为这种研究可以帮助他们； c）可以增强针对他们的干预和通讯的方式，以更容易获得，信息性和乐于助人。自我调节的模型与患者伴侣的直接日常经验相结合，将指导研究工具的开发和调查的实施。尽管可以使用心脏，癌症，呼吸道疾病，关节炎和糖尿病的患者有关自我管理的大量信息，但有针对性疾病的患者对管理任务的探索很少。该研究的发现预计将为临床医生和自愿团体的努力提供帮助，以协助此类患者，并导致自我管理干预的发展以协助他们。个人及其家人在管理慢性病方面面临着重大的社会，行为，经济和临床挑战，对消化，神经和风湿病（不包括关节炎）疾病的这些挑战的共同点知之甚少。患者如何发现与这些疾病有关的研究和价值研究也不了解。这项参与性研究将确定常见的患者管理挑战，以及如何使研究和干预措施更容易获得，内容丰富，并为管理目标状况管理的1500人中的患者提供帮助。