UCLA ALZHEIMER'S DISEASE CENTER DATABASE

这个子项目是许多研究子项目中利用 资源由NIH/NCRR资助的中心拨款提供。子项目和 调查员(PI)可能从NIH的另一个来源获得了主要资金， 并因此可以在其他清晰的条目中表示。列出的机构是 该中心不一定是调查人员的机构。 这项研究涉及收集和归档临床和研究数据，这些数据来自：(1)阿尔茨海默病或相关痴呆症的受试者，(2)非痴呆的记忆问题受试者，(3)正常志愿者，以及(4)受试者的照顾者/告密者。 正在对从受试者及其照料者/信息者那里收集的临床和研究数据进行存档，以便确定和更好地了解与记忆力丧失、阿尔茨海默病和相关痴呆有关的疾病过程。临床和研究数据将被输入加州大学洛杉矶分校ADC研究数据库，并以保护个人身份的方式进行编码。已取消识别的已定义数据集将被发布到该州阿尔茨海默病研究中心(ARCC)的协调站点、NIA的国家阿尔茨海默氏症协调中心(NACC)以及具有IRB批准协议的个人调查人员，他们被ADC主任授权接收数据。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. This research involves collecting and archiving clinical and research data gathered from: (1) subjects with Alzheimer's disease or a related dementia, (2) subjects with memory problems who are not demented, (3) normal volunteers, and (4) caregivers/informants of subjects. Clinical and research data gathered from subjects and their caregivers/informants is being archived in order to characterize and better understand the disease processes involved in memory loss, Alzheimer's disease and related dementias. Clinical and research data will be entered into the UCLA ADC Research Database and coded in such a way as to shield personal identities. Defined data sets that have been de-identified will be released to the coordinating site for the state's Alzheimer's Disease Research Center of California (ARCC), to the NIA's National Alzheimer's Coordinating Center (NACC), and to individual investigators with IRB approved protocols who are authorized to receive data by the ADC Director.