Live Smart Live Safe: Healthy Development for Girls and Adolescents with Intellec

描述(由申请人提供)：本项目的目标是创建一个基于网络的交互式健康交流应用程序[IHCA]1，以促进轻度至中度智力残疾(MTM-ID)少女和青少年的健康身体和社会发展。该项目名为“Live Smart Live Safe(R)：智障女孩和青少年的健康发展”，将被开发为一种工具，帮助女孩和青少年(7-21岁)的父母和服务提供商向患有MTM-ID的女孩传授生理成熟、自我护理技能培养(例如月经管理)和社会发展(例如防止虐待)。该计划针对尤尼斯·肯尼迪·施莱弗国家儿童健康和人类发展研究所(NICHD)的使命，该研究所感兴趣的是开发有效的工具，用于与性传播疾病/艾滋病毒、怀孕、包括人际和社会因素在内的健康促进以及健康素养有关的预防研究和干预计划。第一阶段项目将创建一个关于发展机构的IHCA方案。第一阶段的内容将由六个模块组成：1)父母和服务提供者的激励部分，解决与生理和社交成熟主题相关的情感问题，并促进父母/服务提供者的自我效能，以指导这些讨论；2)生理变化的意义；3)与身体变化相关的卫生做法(例如，如何使用和处置卫生巾)；4)跟踪月经周期；5)与青春期相关的社会规范(例如，在你的月经期间是私人的)；6)沟通技巧。在第二阶段IHCA中，我们将扩大方案内容，并将制定一个针对年龄(7-12岁和13-21岁)的发展的社会方面部分。例如，我们将开发一个名为“交友”的模块，它将提供以下培训：(A)尊重你的身体(例如，在多种互动环境中区分好坏的触摸)，(B)报告不安全的触摸，以及(C)发展健康的友谊(例如，如何结识他人)。第二阶段的产品将是可下载的IHCA，用于个人电脑、iPad(R)和其他基于平板电脑的技术，适合成人和患有MTM-ID的儿童/青少年联合使用。形成性程序将被用于征求患有MTM-ID的女孩的父母和服务提供商(n=20)的意见，以帮助确定帮助父母和服务提供商感到舒适并准备教授生理成熟知识所需的材料类型(例如，月经初潮、月经周期管理和身体变化)，并确定影响此类讨论的显著情感问题(例如，尴尬)。10名患有MTM-ID的女孩的父母和服务提供商将对该计划进行试点测试，以测试该计划的功能和易用性。这个 第一阶段项目的可行性将使用准试验性的受试者内设计进行评估，受试者包括20名家长、20名患有MTM-ID的女孩和10名服务提供者。

DESCRIPTION (provided by applicant): The objective of this project is to create a web-based, interactive health communication application [IHCA]1 that promotes healthy physical and social development in young girls and adolescents with mild to moderate intellectual disability (MTM-ID). The program, "Live Smart Live Safe(R): Healthy Development for Girls and Adolescents with Intellectual Disability," will be developed as a tool to aid parents and service providers of girls and adolescents (7-21 years of age) in teaching girls with MTM-ID about physiologic maturation, self-care skill building (e.g., menstrual management), and social development (e.g., abuse prevention). The program addresses the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) mission, which is interested in the development of effective tools for prevention research and intervention programs related to STD/HIV, pregnancy, health promotion including interpersonal and social factors, and health literacy. The Phase I project will create an IHCA program on the developing body. Phase I content will be comprised of six modules: 1) motivational segment for parents and service providers that addresses the affective concerns associated with the topics of physiologic and social maturation and promotes parent/service provider self-efficacy to guide these discussions, 2) the meaning of physiologic changes, 3) hygienic practices associated with changes in the body (e.g., how to use and dispose of sanitary pads), 4) tracking the menstrual cycle, 5) social norms associated with pubescence (e.g., being on your period is private), & 6) communication skills. In the Phase II IHCA, we will expand program content and will develop an age-tailored (7-12 and 13-21) segment on the social aspects of development. For example, we will develop a module called "Making Friends," and it will provide training on: (a) treating your body with respect (e.g., distinguishing between good and bad touch in multiple interactional contexts), (b) reporting unsafe touch, and (c) developing healthy friendships (e.g., how to get to know people). The Phase II product will be a downloadable IHCA for use on personal computers, iPad(R), and other tablet based technologies, suitable for joint use by both adults and children/adolescents with ID. Formative procedures will be used to solicit input from parents and service providers (n=20) of girls with MTM-ID to help identify the types of materials needed to help parents and service providers feel comfortable and prepared to teach about physiological maturation (e.g., menarche, managing monthly cycles, and bodily changes) and to identify the salient affective issues that impact such discussions (e.g., embarrassment). Ten parents and service providers of girls with MTM-ID will pilot test the program to test program functionality and ease of use. The feasibility of the Phase I project will be evaluated using a quasi-experimental within-subjects design with 20 parents, 20 girls with MTM-ID, and 10 service providers.